About the Gala
The Dup15q Alliance is honored to invite you to our second annual Believe in a Cure Gala for a night of fun and to raise funds for Dup15q syndrome research. The night will be filled with inspirational messages, incredible food, a top-shelf open bar, and dancing! Our silent auction is coming soon- check back for updates!
March 29, 2025
Philadelphia, PA
Your Gala ticket includes Event Admission, Silent Auction, Premium Food, and Drink with Open Bar.
Formal Dress Requested.
Guests are required to be 21 or older.
Ticket sales close 3/21/2025
About the Gala
The Dup15q Alliance is honored to invite you to our second annual Believe in a Cure Gala for a night of fun and to raise funds for Dup15q syndrome research. The night will be filled with inspirational messages, incredible food, a top-shelf open bar, and dancing! Our silent auction is coming soon- check back for updates!
March 29, 2025
Philadelphia, PA
Your Gala ticket includes Event Admission, Silent Auction, Premium Food, and Drink with Open Bar.
Formal Dress Requested.
Guests are required to be 21 or older.
Ticket sales close 3/21/2025
Location
Vie by Cescaphe
600 N Broad St, Philadelphia, PA 19130
YOUR IMPACT
Imagine having a child who suffers through dozens of seizures on a daily basis. Their GI issues are so severe that they may require a feeding tube. They’re non-verbal, so it’s hard for them to tell you if they’re in pain or need your help. They’re resilient and love you, but their inability to easily communicate with you frustrates them and leads to challenging behaviors.
What is the underlying cause behind these symptoms? A duplication in their 15th chromosome- called Dup15q Syndrome.
Now imagine that you can help them in a real, disease-modifying way. Precise, genetically-based therapies are the future of modern medicine. We are embarking on a new era of disease-modifying treatments that will meaningfully alter the future of our children. You can be a part of that change. Your sponsorship will fund our tireless efforts to create a life-changing therapeutic designed specifically for individuals with Dup15q syndrome.
YOUR IMPACT
Imagine having a child who suffers through dozens of seizures on a daily basis. Their GI issues are so severe that they may require a feeding tube. They’re non-verbal, so it’s hard for them to tell you if they’re in pain or need your help. They’re resilient and love you, but their inability to easily communicate with you frustrates them and leads to challenging behaviors.
What is the underlying cause behind these symptoms? A duplication in their 15th chromosome- called Dup15q Syndrome.
Now imagine that you can help them in a real, disease-modifying way. Precise, genetically-based therapies are the future of modern medicine. We are embarking on a new era of disease-modifying treatments that will meaningfully alter the future of our children. You can be a part of that change. Your sponsorship will fund our tireless efforts to create a life-changing therapeutic designed specifically for individuals with Dup15q syndrome.
Become A Sponsor
Meet Fiona
Fiona is a beautiful, sweet, and funny 3-year old little girl with Dup15q syndrome. By the time she was 8 months old, she was having dozens of seizures a day. She continues to face significant challenges in her daily life. She just learned to walk in January of this year, but falls frequently due to low muscle tone, a common symptom with Dup15q.
In an attempt to keep her seizures in check, Fiona is kept on a very restricted diet that keeps her from sharing in typical “kid foods” with her brothers and sisters. Because she is non-verbal and has cognitive delays, Fiona frequently grows frustrated and experiences severe tantrums and occasionally self-harming behaviors. Still, there is cause for hope.
Join us as we fundraise for a brighter future for Fiona and others like her through development of targeted genetic therapies.
Interested in a Corporate Sponsorship or donating to the Silent Auction Contact: jackie.vanderhoof@dup15q.org
www.dup15q.org/gala