15q Clinical Research Network Receives Rare Patient Impact Grant from Global Genes
Earlier this year, Global Genes awarded the 2020 General Advocacy RARE Patient Impact Grant in three categories: RARE Innovation, RARE Support and RARE Capacity Building. Congratulations to the 2020 General Advocacy RARE Patient Impact Grant awardees!
RARE Innovation $15,000 Grant awarded to the 15q Clinical Research Network
.With the support of the RARE Patient Impact Grant, this project will work to standardize clinical data collected in 15q Clinical Research Network clinics for use as we move into clinical trials. The database will focus primarily on synergizing and streamlining the data collected through the 15q Clinical Research Network, with flexibility built in to accommodate additional data sources such as existing enrollment, historical and new natural history studies, as well as other potential future collaborators.