On May 15th our community came together, as went LIVE for our 4th annual BIG GIVE event: “Everything I know about Dup15q I learned from my Dup15q Family.” No one knows a rare disorder better than those who live it every day.
LIVE streams included Dup15q doctors, researchers, and parents. It was a day of sharing stories, spreading awareness about Dup15q Syndrome and answering questions.
You have raised over 30k! This year we took on the challenge to provide access and reach more families at home and internationally by offering a virtual ticket. This undertaking brings the cost of our 2021 Science and Family Conference to over a quarter of a million dollars.
You can watch all of the recorded Live Streams right on our Public Facebook page. You do not need a Facebook account to visit our page.
Some Highlights Include:
Dup15q research using stem cells
Research Priorities of the 15q CRN
EEG Biomarker of Dup15q Syndrome
Sleep Patterns in Dup15q
Upcoming Clinical Trials
Junior Believe Ambassadors