2021 Conference Update
We are excited to announce that our family conference will look a little different this year, but we are hoping it will be even better. This year we are hosting a joint conference between Dup15q Alliance, Project 8p and Ring14 USA. We believe we can do more together!
The Dup15q Alliance, Project 8p and Ring14 USA communities share very similar life experiences – our children face many of the same challenges and our parents have many of the same questions. We can answer these common questions more effectively together.
All 3 communities are neurodevelopmental disorders that have large chromosome copy number changes (duplications, deletions and/or rings) that involve multiple genes. To investigate and accelerate therapeutic developments in complex genetic changes, these communities developed the “Commission for Neurodevelopmental Copy Number Variants (CNVs)” funded by the Chan Zuckerberg Initiative. Since this commission is pushing for cross-syndrome therapies, we want the clinicians to see how similar our children are.
Thus, we are coming together in Colorado to tackle our common challenges. Teaming up to bring more information, to share resources and to stream our conference worldwide for the first time. We will be all together when it makes sense, but we will also meet separately to address unique issues and to encourage community within each association. We want to deliver big conference content while maintaining the small conference experience.
Together We Are Moving Mountains!
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