Closing Plenary Announced
RARE BREAKTHROUGHS NOW AND ON THE HORIZON
New innovations are helping to improve the diagnosis, treatment and care of rare disease patients. This session will highlight available technologies that benefit rare disease patients and their families, tools currently in development and possible advances we may be seeing in the future.Catch this plenary featuring Rare Breakthroughs Now and On the Horizon moderator Marshall Summar, MD and speakers Euan A. Ashley, MD, PhD; PJ Brooks, PhD; and Wendy Chung, MD, PhD at the Living Rare, Living Stronger NORD Patient and Family Forum coming up on June 26-27.
Rare Disease Week on Capitol Hill brings together rare disease community members from across the country to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. No prior experience necessary. Registration...