Closing Plenary Announced
RARE BREAKTHROUGHS NOW AND ON THE HORIZON
New innovations are helping to improve the diagnosis, treatment and care of rare disease patients. This session will highlight available technologies that benefit rare disease patients and their families, tools currently in development and possible advances we may be seeing in the future.Catch this plenary featuring Rare Breakthroughs Now and On the Horizon moderator Marshall Summar, MD and speakers Euan A. Ashley, MD, PhD; PJ Brooks, PhD; and Wendy Chung, MD, PhD at the Living Rare, Living Stronger NORD Patient and Family Forum coming up on June 26-27.
This week, the House Ways and Means Committee in Congress will consider the Build Back Better Agenda, part of which would change the Orphan Drug Tax Credit (ODTC) in ways that would severely undercut the original goal of the 1983 Orphan Drug Act. NORD is deeply...