July 9, 2020

Dup15q Alliance is proud to be among 9 partners with AGENDA – Alliance for Genetic Etiologies in Neurodevelopmental Disorders and Autism. 

The mission of AGENDA is to improve outcomes of individuals with all forms of autism by fostering a genetics-first approach to autism research, and by strengthening collaborations among organizations representing genetically-defined disorders associated with autism.


Each of our partner organizations have resources to help families and researchers navigate the complexities of disabilities, support communities, and research. Genetics play an influential role in the respective disabilities of each of our partner organizations. To learn more about how genetic research influences treatment and the variety resources available from each of our partners, click on the menu above, or …

Click here to watch a video describing the importance of families with a known genetic mutation to understand all forms of ASD

Click here to read about how AGENDA is compiling information across natural history registries to allow researchers to make cross-disorder comparisons

Click here for a description of the activities, resources, scientific activities and contact information across the different AGENDA members