Dup15q Alliance Anniversary Celebration
Celebrating 28 years of family support provided to families affected by Dup15q Syndrome.
Dup15q Alliance was originally founded under the name of IsoDicentric 15 Exchange, Advocacy and Support (IDEAS) in 1994 by Donna Bennett, mother to Joshua (a young man with idic15) and Brenda Finucane, MS, CGC, the Director of Genetic Services at Elwyn Inc. Starting as a list of 13 families raising children with chromosome 15q duplications, the support group grew.
In 2004, the IDEAS community was officially incorporated into a nonprofit organization. To best reflect the variations of the disorder known as chromosome 15q11.2 – 13.1 duplication syndrome, the organization’s name was changed in 2011 to Dup15q Alliance. Today, there are over 2,200 families from around the world affiliated with Dup15q Alliance.
This year on our anniversary we are reflecting on the foundation of our organization and celebrating providing advocacy and support for 28 years. We are excited to announce our goals to increase program offerings to our community to help uplift, support, and engage them by providing the basic principles that the Alliance was founded upon.
Join us as we go LIVE on our public facebook page at 12pm EST 8/12/22
Thank you to our sponsors: