unnamed 5

Global Genes Rare Advocacy Summit

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Advocacy Summit.
This is an unparalleled opportunity to forge meaningful connections with others in the rare disease community for future collaboration. Sessions provide attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies they can take home and implement immediately to accelerate change. This year, the Summit will be held in San Diego California. Join us for networking, learning and inspiration.
  • Who should attend?
  • Patient Advocacy Group Leaders
  • Rare Disease patients
  • Caregivers
  • Rare Disease Advocates
Advocate Support Program
The Advocate Support Program is offered to offset the cost associated with attending the 2023 RARE Advocacy Summit. Advocate Support will cover a portion of your meeting and travel expenses for the conference.
Advocate Support (formerly known as stipends) is available to individual patients, close family and friends of advocates in the rare disease community, or staff (paid/volunteer) of rare disease nonprofit organizations or support groups.  Learn More: RARE Advocacy Summit Advocate Support – Global Genes



Sep 19 - 21 2023


All Day

More Info

Learn More


In-Person Events
Learn More

Additional Information