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Join the Rare Action Network for virtual Rare Disease Day

NORD Rare Action Network Rare Disease Day Virtual Advocacy Event Registrations Are Now Open! NORD Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual Rare Disease Day events across the country to educate state legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the state could address the needs of those living with a rare disease in their state by providing stakeholders an opportunity to make formal recommendations to state leaders about the most important issues they face, including the need for increased research and awareness, knowledgeable health care providers, and timely access to affordable diagnostics, treatments and cures.  Visit your states page and register today! If you don’t see an event listed for your state, please consider joining the event of a neighboring state. Events start on Monday February 23rd and the last state event is on Saturday February 28th

Check Your State Here!


Feb 23 - 28 2021


8:00 am - 3:30 pm

Additional Information