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Rare Aware: What you need to know about Infantile Spasms

Join us on Monday, 12/11 at 1pm ET as we learn from two amazing rare epilepsy advocates, Jackie Steinberg (STXBP1 Foundation) and our own Dup15q Parent, Julie Oberlander, and Dr. John Mytinger of Nationwide Children’s about important facts about the seizure emergency that is IS. Together we’ll discuss and work to spread awareness.

Register for free here.


Dec 11 2023


1:00 pm - 2:00 pm

Additional Information