Rare Drug Development Symposium

Global Genes, in partnership with the Orphan Disease Center (ODC) at the University of Pennsylvania School of Medicine, is proud to host the annual RARE Drug Development Symposium designed to connect, educate and inspire rare advocates. The Symposium focuses on the drug development process and the role of rare disease advocates. Learn about key points in the process at which the involvement and contributions of rare disease patients and advocates are crucial, the organizations and partners you might collaborate with, and how to ensure the patient voice is heard at each step of the road.