Rare Teleplay

Our Friends at the  Barth Syndrome Foundation have invited the Rare Community to participate in their monthly Rare Teleplay play hour with Project Sunshine.
Rare Teleplay has an assigned group of volunteers from California Polytechnic University who are there every month to entertain children who are 5 to 18 years old for an hour.  Parents don’t need to be there.  But they can be if they want to be.  This is all about the kids.  It is free and it is fun.  It’s like a Child Life house call.
Rare Teleplay is not just for the person who has the rare disease, it is also for their siblings.   It is a condition agnostic group.  Project Sunshine was established to give kids a chance to play.  There is no talking about their condition or their sibling’s condition.  It’s just about having fun and meeting other people who are living a life that’s a little like theirs.  Activities vary.


Jul 22 2024


7:30 pm - 8:30 pm

Additional Information