RDLA May Webinar

May RDLA Webinar

An Overview on Drug Pricing Policy Priorities & Current Proposals in Congress

The May RDLA Webinar will be a webinar only. We will not be meeting in person in DC.

Agenda: 

Jennifer Dexter, National Health Council

Mike Eging, Rare Access Action Project

Jamie Sullivan, EveryLife Foundation for Rare Diseases

Sarah-Lloyd Stevenson, Faegre Drinker Consulting

Closed captioning and language translation services are available for all RDLA webinars. 

You can find recordings of previous RDLA monthly webinars here.    

The agenda is open. If you would like to speak or have a topic presented on please contact Katelyn at klaws@everylifefoundation.org.

Once a month RDLA convenes via Zoom webinar to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participation does not imply support for any of the policy proposals or legislation that are discussed or promoted.

These meetings help facilitate open dialog about legislation that affects the rare disease community. They are open to the public and the media. We ask that media formally announce their participation and refrain from quoting any of the discussion during the meeting. We encourage media to follow up with participants after the meeting for direct quotes.