SUDEP Communication

Understanding the caregiver perspective and developing a SUDEP conversation guide

This webinar will feature Monica Lemmon, MD, Assistant Professor of Pediatrics within the Division of Pediatric Neurology at DUKE, speaking about the development of a SUDEP conversation guide.

Monica Lemmon, MD works as a fetal and neonatal neurologist and directs Duke’s Neuro-Intensive Care Nursery Program. Dr. Lemmon’s research aims to understand, measure, and improve how parents and clinicians partner to make decisions for critically ill children. Specific areas of interest include measures of shared decision making, parent outcomes after neonatal illness, and parent-clinician communication. Dr. Lemmon’s work has received support from the National Palliative Care Research Center, NINDS Child Neurologist Career Development Program, and Derfner Foundation. recently she has led research efforts to identify barriers to effective SUDEP communication and to develop communication tools, including a SUDEP conversation guide, to facilitate conversations about SUDEP risk.