So far Congress has passed three COVID-19 relief packages and is considering a fourth. Last week, NORD joined with 156 other patient organizations calling on Congress to expand eligibility for the paid family and medical leave program to include high risk individuals and working members of their households in the next COVID-19 relief package.
Currently, the law provides paid sick leave in limited circumstances for certain employees during the COVID-19 pandemic, but this doesn’t go far enough. People living with rare diseases could be more vulnerable to severe complications from COVID-19. Yet, they and their working family members may not be eligible for leave if they decide to stay home to avoid exposure of COVID-19. Family members of loved ones with rare diseases shouldn’t be forced to choose between losing their job or putting their loved ones at risk.
We need YOU to join our efforts by advocating for this important expansion of leave in the next COVID-19 relief package.
Make Your Voice Heard!
Reach out to your Senators and Representative and urge them to expand family medical leave to include high risk individuals and working members of their households in the next COVID-19 relief package.
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Tell Congress to Protect the Orphan Drug Tax Credit!
This week, the House Ways and Means Committee in Congress will consider the Build Back Better Agenda, part of which would change the Orphan Drug Tax Credit (ODTC) in ways that would severely undercut the original goal of the 1983 Orphan Drug Act. NORD is deeply...
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