SEIZURE DETECTION AND PREDICTION DEVICES: While no device has been proven to prevent epilepsy-related mortality (including SUDEP), the Danny Did Foundation has developed a list of seizure detection and seizure prediction devices – as well as other technologies – that are designed to enable intervention by a caregiver. Intervention is believed to reduce the risks that accompany epilepsy. We present these products for further review and investigation by anyone connected to seizure disorders.
DANNY DID SEIZURE DETECTION DEVICE GRANT PROGRAM: If you are seeking funds to help with the cost of a device, review and research the product options below, and then complete our application. Note, the DDF does not provide funding support for every system listed below. See each product for details to learn more.
CHELSEA HUTCHISON FOUNDTAION: This Foundation provide grants for seizure-response dogs and epilepsy monitors for those in need, educate the public about SUDEP (Sudden Unexpected Death in Epilepsy), and provide support to those who have been affected by SUDEP.
JOSH PROVIDES EPILEPSY ASSISTANCE FOUNDATION: Program provides financial assistance to individuals affected by epilepsy or other seizure disorders. Financial assistance for medical services, seizure alert and detection devices, seizure response dogs and transportation and travel.
SEIZURE TRACKER: Seizure Tracker is dedicated to providing patients, doctors and researchers with free comprehensive tools to help understand relationships between seizure activity and anti-epileptic therapies. The reports generated by Seizure Tracker become a valuable communication aid when meeting with doctors because all the necessary information is in one brief report. With a simple keystroke, you can customize a report to outline talking points you’d like to discuss with your doctor.
SEIZURE RESPONSE DOGS:
CANINE ASSITANTS: Canine Assistants also teaches and provides seizure response dogs for recipients who have seizures. Following general education, seizure response dogs are taught to remain next to the person during the course of a seizure, summon help in a controlled environment, or retrieve a phone prior to the seizure when indicated by the recipient. Certain dogs may even develop the ability to predict and react in advance to an oncoming seizure once they are placed with their recipient.
K94LIFE: Service Dogs provide greater independence, joy, fulfillment, confidence, security, and love. Our service dogs are trained to help individuals who have a wide range of disabilities. CPL trains service dogs to assist individuals who have mobility impairments, balance disorders, difficulty using their hands/arms, health-related fatigue issues, people with seizure/cardiac syncope and diabetes/ blood pressure disorders.
PAWS WITH A CAUSE: PAWS Seizure Response Dogs are custom-trained to assist people who have epilepsy with tasks such as activating a life-alert system, finding someone to help, retrieving a phone or stimulating a person during a seizure. As a person recovers from a seizure, a PAWS Dog can retrieve medications or food, act as a brace to help them up and provide comfort. PAWS Seizure Response Dogs are NOT trained to protect or predict seizure activity. However, after several years with a client, some may develop the ability to alert their owner of an oncoming seizure. This behavior is not guaranteed to develop, nor to be consistent if it does develop.
VNS THERAPY ACCESS PROGRAM: This program was established to provide access to VNS Therapy System for appropriate patients lacking both insurance coverage and the ability to pay for the VNS Therapy System. To establish eligibility, patients should contact their physicians.