Congratulations to Vanessa Vogel-Farley who has been nominated for the Global Genes 2020 Rare Champion of Hope Awards....
Archived News
In 2020 we have worked hard on developing and expanding committees and programs that will help provide guidance...
16th Anniversary Raffle Winners!!
A huge THANK YOU to everyone who helped us celebrate the 16th anniversary of the Dup15q Alliance and congrats to...
15q Clinical Research Network Receives Rare Patient Impact Grant
15q Clinical Research Network Receives Rare Patient Impact Grant from Global Genes Earlier this year, Global Genes...
G2MH Research Participation & COVID-19 Survey
G2MH, an international group of scientists and healthcare providers, many of whom are supported by the US National...
ARCADE study is complete.
June 25, 2020 Dear CDKL5 Deficiency Disorder and Dup15q Syndrome Communities, Last week we shared with IFCR and Dup15q...
CNF Caregiver Telehealth Experience Survey
Our partners at CNF have organized a Caregiver Telehealth Experience Survey The COVID-19 pandemic has changed the way...
Ovid Therapeutics Announces Multiple Presentations…
Ovid Therapeutics Announces Multiple Presentations on the 2020 American Academy of Neurology Science Highlights...
2020 – BIG GIVE
Together you have raised over $23,000 in honor of the 3rd Annual BIG GIVE with donations still coming in! On May...
2021 Conference News
To our Dup 15q Families, Greetings to you! What a moment in time! We hope your families are staying happy and...
Ovid Therapeutics Announces Initial Data with Soticlestat in CDKL5 Deficiency Disorder and Dup15q Syndrome
Soticlestat continues to appear to be safe and well-tolerated; the majority of the 11 patients showed a reduction in...
COVID-19 Resources
The Dup15q Alliance is doing our part to prevent the spread of COVID-19 by cancelling in person events and hosting...