Archived News

November 15th – International 15q Day

November 15th - International 15q Day Together with Angelman Syndrome Foundation and the Foundation for Prader-Willi Research, we are raising awareness of the similarities between Dup15q Syndrome, Angelman and Prader-Willi Syndromes. Prader-Willi, Angelman and Dup15q...

2020 – Rare Champion of Hope Award Nominee

Congratulations to Vanessa Vogel-Farley who has been nominated for the Global Genes 2020 Rare Champion of Hope Awards. These individuals, organizations and collaborations are the groundbreakers, leaders and advocates who inspire and catalyze change in rare disease....

In 2020 we have worked hard on developing and expanding committees and programs that will help provide guidance and resources for families affected by Dup15q Syndrome. As we turn the corner into 2021, we are expanding our research and the search for targeted...

16th Anniversary Raffle Winners!!

A huge THANK YOU to everyone who helped us celebrate the 16th anniversary of the Dup15q Alliance and congrats to raffle winners! We appreciate everyone who donated a gift card, purchased tickets and shared our posts. We couldn't do what we do without you. Winners will...