Dup15q Family Stories

“Life with Extra” looks different for every family. While each individual with dup15q is unique, the Dup15q community experiences ‘Life with Extra’ on a daily basis…extra services, therapies, medications, expenses, one on one time, doubt, anxiety, and concern. But with this also comes ‘Extra’ love and support. 

These are our family stories.

Share Your Family Story!

Sharing your family story is one of the greatest gifts you can give. Your story is vital to raising awareness, understanding, and compassion, as it helps people feel connected and impacted.  You are an empowered activist changing the future!   

Tate – Dup15q Family Story

My husband and I grew up in Tennessee around the Chattanooga area. We got married and I went to nursing school at Chattanooga State. After a couple of years, we had a little girl named Reagan. Reagan was such a blessing to us and we wanted another baby a couple of...

Haven – Dup15q Family Story

When I was first pregnant with Haven, during my 12-week ultrasound the technician found that Haven had a thick nuchal fold. I then saw a high-risk OB who did extensive ultrasounds of her development, focusing heavily on her heart and found nothing. Other than the...

Ella – Dup15q Family Story

My husband Matt and I have been married for 23 years. We live in the western suburbs of Chicago with our kids Ava, Ella, and Peter and dog Hank. I have worked in labor and delivery for 20 years as a surgical technician. Matt is an employee benefits consultant and a...