Dup15q Family Stories

“Life with Extra” looks different for every family. While each individual with dup15q is unique, the Dup15q community experiences ‘Life with Extra’ on a daily basis…extra services, therapies, medications, expenses, one on one time, doubt, anxiety, and concern. But with this also comes ‘Extra’ love and support.

These are our family stories.

Share Your Family Story!

Sharing your family story is one of the greatest gifts you can give. Your story is vital to raising awareness, understanding, and compassion, as it helps people feel connected and impacted. You are an empowered activist changing the future!

Blog Spot – Super Duper Coral

Coral and Our Family Our daughter, Coral, was born on July 28th, 2016. Three days later she stopped breathing. After numerous tests that returned as “normal”, the genetic testing report showed that she had a rare chromosomal duplication, Dup 15q. Dup 15q is...

Reid – Family Story

Hi Kelly & Adam, we’d love for you to start by introducing yourself. Our son Reid was diagnosed with Dup15q Syndrome in July 2021. He was 2.5 years old and we finally had an answer after about a year of knowing that something wasn’t quite right. The genetic test...

Tate – Dup15q Family Story

My husband and I grew up in Tennessee around the Chattanooga area. We got married and I went to nursing school at Chattanooga State. After a couple of years, we had a little girl named Reagan. Reagan was such a blessing to us and we wanted another baby a couple of...