Partnerships

The Dup15q Alliance recognizes the importance of working together to achieve common goals through partnerships with other groups and initiatives that are focused on improving the lives of those with rare disorders.

Purple Day – The Anita Kaufmann Foundation

EPILEPSY AWARENESS 365 DAYS A YEAR Purple (lavender) is the international color representing epilepsy awareness and we want everyone across the world to know. Inspired by Purple Day® – March 26, the international day for epilepsy awareness, we created Purple Day Every...

ICARE Epilepsy Research Portfolio

Dup15q Alliance is proud to be a participant of the The Interagency Collaborative to Advance Research in Epilepsy (ICARE).  ICARE is a voluntary working group of public and non-profit organizations in the United States that provide sustained funding for epilepsy...

THRIVE Initiative

Dup15q Alliance is proud to be a part of the THRIVE initiative. THRIVE is a collaborative initiative to engage, embrace and drive change in the rare disease community. By acknowledging the need to communicate and lean on the strengths of our allies, brighter futures...

Global Genes Rare Foundation Alliance

Dup15q Alliance is proud to be a member of the The Global Genes RARE Foundation Alliance. We are a global community changing the way the world tackles rare disease. Our partners include nonprofit, government, academic, research, service and industry organizations that...
Rare As One Project

Rare As One Project

The Rare As One grant will support Project 8p’s collaboration with the Dup15q Alliance, another patient-led advocacy...

LADDER

LADDER

Integrated Database and Registry for Dup15q and Angelman Syndromes Aims to Improve Patient Care and Treatment  The new...

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AGENDA

AGENDA

Dup15q Alliance is proud to be among 9 partners with AGENDA - Alliance for Genetic Etiologies in Neurodevelopmental...

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