Dup15q Alliance is proud to be a member of CORD, Canada's national network for organizations representing all those...
Partnerships
The Dup15q Alliance recognizes the importance of working together to achieve common goals through partnerships with other groups and initiatives that are focused on improving the lives of those with rare disorders.
National Organization for Rare Disorders – NORD
Dup15q Alliance is proud to be a patient organization member with NORD. NORD Mission Statement NORD, a 501(c)(3)...
Rare As One Project
The Rare As One grant will support Project 8p’s collaboration with the Dup15q Alliance, another patient-led advocacy...
LADDER
Integrated Database and Registry for Dup15q and Angelman Syndromes Aims to Improve Patient Care and Treatment The new...
AGENDA
Dup15q Alliance is proud to be among 9 partners with AGENDA - Alliance for Genetic Etiologies in Neurodevelopmental...
American Epilepsy Society
Dup15q Alliance is proud to be a member of the American Epilepsy Society and joining over 40 other professional...
The Epilepsy Leadership Council
Dup15q Alliance is proud to be a partner with the The Epilepsy Leadership Council (ELC) is a coalition of more than 40...
Epilepsy Learning Healthcare System (ELHS)
The Dup15q Alliance is proud to be a partner in the Epilepsy Learning Healthcare System (ELHS):...
Infantile Spasms Action Network (ISAN)
Dup15q Alliance is proud to be a partner of the Infantile Spasms Action Network In 2015, CNF partnered with the...
DEE-P initiative (the Developmental and Epileptic Encephalopathies-Project)
The Dup15q Alliance is proud to be a partner of the DEE-P initiative (the Developmental and Epileptic...
Really Crappy Seizures Club
Dupq Alliance is proud to be a partner of the Really Crappy Seizures Club (RSCS) Overview: The RCSC will provide...