In order to support research of brain development and activity in as many dup15q syndrome patients as possible the...

In 2020 we have worked hard on developing and expanding committees and programs that will help provide guidance and resources for families affected by Dup15q Syndrome. As we turn the corner into 2021, we are expanding our research and the search for targeted treatments in Dup15q Syndrome.
“There has never been progress in any RARE disease without the participation of the patient community. Dup15q Alliance is taking the next steps to drive progress in research and targeted treatments for Dup15q Syndrome.” – Vanessa Vogel-Farley
In order to support research of brain development and activity in as many dup15q syndrome patients as possible the...
ARCADE Study ARCADE is a Phase 2 open-label, signal-finding pilot study designed to inform the potential for future...
About this SurveyThis survey is being conducted by The Mighty on behalf of a biopharmaceutical company. The purpose of...
9/30/20 @ 5pm EST – Humanizing Language in Healthcare: Rachel Callender [button...
Emily Soludczyk, Genetic Counseling Student and former Dup15q Alliance intern is conducting a research study on the...
We are pushing forward in our mission to find targeted treatments for Dup15q Syndrome through research and clinical...
We are excited to expand on research in Dup15q Syndrome and continue our search for targeted treatments. Participation...
ADA Center
Southwest ADA Center
2323 S. Shepherd, #1000
Houston, TX, 77019
http://www.southwestada.org
Assistive Technology
Louisiana Assistive Technology Access Network
P.O. Box 14115
Baton Rouge, LA, 70898
http://www.latan.org
Autism
Autism Society of Louisiana
P.O. Box 80162
Baton Rouge, LA, 70898
http://www.lastateautism.org
CHIP
(health care for low-income uninsured children)
Louisiana Children’s Health Insurance Program
LaCHIP Processing Office
628 N. 4th Street
P. O. Bo 629
Baton Rouge, LA 70821-0629
http://new.dhh.louisiana.gov/index.cfm/page/222
D D Council
Louisiana Developmental Disabilities Council
P.O. Box 3455
Baton Rouge, LA, 70821-3455
swinchel@dhh.la.gov
http://www.laddc.org
Developmental Disabilities
Office for Citizens with Developmental Disabilities
P.O. Box 3117, Bin 21
Baton Rouge, LA, Baton Rouge
http://www.dhh.louisiana.gov
Early Intervention
Louisiana Part C Early Intervention
Office for Citizens with Developmental Disabilities
Louisiana Department of Health & Hospitals
P.O. Box 3117, Bin 21, 682 N. 4th Street
Baton Rouge, LA, 70802
http://www.earlysteps.dhh.louisiana.gov
Epilepsy
Epilepsy Foundation of Louisiana
3701 Canal Street, Suite H
New Orleans, LA, 70119
http://www.epilepsylouisiana.org
Independent Living
To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact:
Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX, 77019
http://www.ilru.org/projects/cil-net/cil-center-and-association-directory
To find out the contact information for centers for independent living (CILs) in your state, contact:
National Council on Independent Living
2013 H St. NW – 6th Floor
Washington, DC, 20006
http://www.ncil.org
Intellectual & Developmental Disabilities
The Arc of Louisiana
8336 Kelwood Drive
Baton Rouge, LA, 70806
http://www.thearcla.org
Learning Disabilities
Division of Educational Improvement and Assistance
Louisiana Department of Education
P.O. Box 94064
Baton Rouge, LA, 70804-9064
http://www.louisianabelieves.com/academics/students-with-disabilities
Mediation
Dispute Resolution
Louisiana Department of Education
1201 North Third Street
Baton Rouge, LA 70802-5243
http://www.louisianabelieves.com/academics/students-with-disabilities/dispute-resolution
Mental Health
Office of Behavioral Health
Louisiana Department of Health and Hospitals
628 N. 4th Street, 4th Floor
P.O. Box 4049
Baton Rouge, LA, 70821-4049
http://new.dhh.louisiana.gov/index.cfm/subhome/10
Mental Health America of Louisiana
660 N. Foster Drive, Suite C-201
Baton Rouge, LA, 70806
http://www.mentalhealthamerica.net/mental-health-america-louisiana
NAMI Louisiana, National Alliance on Mental Illness
P.O. Box 40517
Baton Rouge, LA, 70835
(866) 851-6264
http://www.namilouisiana.org
Louisiana Federation of Families for Children’s Mental Health
5627 Superior Drive, Suite #2
Baton Rouge, LA, 70816-6085
(225) 293-3508
Parent Organizations
Community Parent Resource Center
(Serving greater New Orleans area)
Pyramid Community Parent Resource Center
3132 Napoleon Avenue
New Orleans, LA, 70125
http://www.pyramidparentcenter.org
Families Helping Families of Louisiana
(a statewide network of ten regional family resource centers)
100 Benman Rd. Lafayette, LA 70506
Lafayette, LA 70506
http://www.fhfla.org
Parent Teacher Association (PTA)
Louisiana Parent-Teacher Association
9151 Interline Avenue, suite 1A
Baton Rouge, LA, 70809
http://www.louisianapta.org/
Preschool, Disabilities
Division of Standards, Assessments and Accountability
Louisiana Department of Education
1201 North Third Street
P.O. Box 94064
Baton Rouge, LA 70802-5243
http://www.louisianabelieves.com/early-childhood/early-childhood-programs
Protection & Advocacy
Advocacy Center
8325 Oak Street
New Orleans, LA, 70118
http://www.advocacyla.org
Relay Services
(800) 947-5277 (V)
(800) 846-5277 (TTY); 711 (TTY)
(888) 550-5277 (ASCII)
(888) 272-5530 (Speech to Speech)
(800) 737-1813 (Spanish)
Speech, Language, and Hearing
Louisiana Speech-Language-Hearing Association
8550 United Plaza Boulevard, Suite 1001
Baton Rouge, LA, 70809
http://www.lsha.org
Special Education