Clinical Trial Readiness

September 29, 2020
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9/30/20 @ 5pm EST – Humanizing Language in Healthcare: Rachel Callender  
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10/7/20 @12pm EST – A Conversation About Patient Data

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10/14/20 @2pm EST – Clinical Trials 101

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Register for the LADDER Database

Register for the LADDER Database

The Dup15q Alliance is excited to announce the launch of a new program designed to help advance research and clinical service for individuals living with Dup15q syndrome! Linking Angelman and Dup15q Databases for Expanded Research (LADDER) will allow information...

EEG Database

EEG Database

In order to support research of brain development and activity in as many dup15q syndrome patients as possible the Dup15q Alliance has created an electroencephalogram (EEG) and  magnetic resonance imaging (MRI) storage system that families can directly upload...

ARCADE and ENDYMION Studies

ARCADE and ENDYMION Studies

ARCADE Study   ARCADE is a Phase 2 open-label, signal-finding pilot study designed to inform the potential for future development of soticlestat in CDD and Dup15q. The study enrolled 20 patients, ages 2 to 55 years, with refractory epileptic seizures associated with...