Dup15q Alliance is proud to be a founding organization for the Commission on Novel Technology in CNVs
To establish a Commission that is a patient-driven collaborative group of stakeholders to advance novel technologies to treat neurodevelopmental diseases with large chromosome anomalies.
With hope and perseverance, everything is possible
No one knows a disease better than those who live it every day. Patients’ active involvement is critical for accelerating the development of treatments.The Rare As One grant will support Project 8p’s collaboration with the Dup15q Alliance, another patient-led advocacy group, to develop the Commission on Novel Technologies for Neurodevelopmental Copy Number Variants (CNVs). The Commission, recently founded by the two organizations, aims to investigate the challenges common to neurodevelopmental CNVs in order to accelerate therapeutic developments.
“Patients’ active involvement is critical for accelerating the development of treatments.”