DEE-P initiative (the Developmental and Epileptic Encephalopathies-Project)

June 29, 2020

The Dup15q Alliance is proud to be a partner of the DEE-P initiative (the Developmental and Epileptic Encephalopathies-Project), which is dedicated to serving the distinct needs of families with children most severely affected by DEEs.

Developmental and Epileptic Encephalopathies (DEEs) are defined as a group of rare neurodevelopmental disorders, characterized by early-onset seizures that are often intractable with a developmental delay.

As DEE-P Connections adds more webinars and resources from the many researchers, organizations, doctors, journals, families and carers working independently to help people with DEES, the resources database continues to grow.

Visit the resources center here: