Dup15q Alliance Awarded RARE Impact Grant

August 20, 2021
FAIR Grant

Dup15q Alliance is proud to be one of eight organizations to be awarded the 2021 Financial Advocacy RARE Patient Impact Grant from Global Genes!

The Financial Advocacy RARE Patient Impact Grant seeks to promote financial health and positive financial decisions along your healthcare journey for RARE Foundation Alliance members. This one time grant opportunity will be awarded to members who are interested in expanding their research, resource development, outreach, education, and awareness efforts supporting financial literacy as well as financial advocacy and planning in healthcare.

Preventing and mitigating the impact of financial hardship can greatly improve care satisfaction, clinical outcomes and quality of life. By being proactive in understanding and navigating the healthcare system, we can prevent financial difficulties such as bankruptcy, borrowing money, or change in employment/loss of work as well as financial distress that may come as a result of unexpected barriers to healthcare and support services.

With the support of this grant, Dup15q Alliance will be launching educational programming in Navigating Social Security and Special Needs Trusts.
Stay tuned for more information to be rolled out this fall.

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