Dup15q Clinical Trial Locations Open

August 30, 2023

NEW US Dup15q Clinical Trial Location Open:

Children’s Hospital Los Angeles. Interested in enrolling at CHLA? Contact nagonzalez@chla.usc.edu

Also Enrolling at Rush University Medical Center. Interested in Enrolling? Contact Margaret_R_Porwit@rush.edu

For General Questions call 1-888-662-6278

Introducing a clinical study for children with Dup15q Syndrome

Quindecim (study name)

Basmisanil is a drug that modulates the activity of a GABAA receptor subtype that is thought to be overactive in Dup15q Syndrome. In this trial, researchers aim to find out what effects, good or bad, Basmisanil may have compared to a placebo, on motor, language and social skills of children with Dup15q Syndrome and on their ability to do day-to-day activities.

The Quindecim study is currently running and plans to include about 90 children with Dup15q syndrome, between the ages of 2 and 11 years old (inclusive). To learn more about the study, please talk to your doctor and check the following resources:

Study: https://forpatients.roche.com/en/trials/neurodevelopmental-disorder/dup15q-syndrome/a-study-to-evaluate-the-safety-and-efficacy-of-basmisan-98150.html

IMPORTANT: If your child does not meet current eligibility requirements, please check back as it is projected two additional groups may open.

The Quindecim clinical research study is sponsored by a pharmaceutical company called Roche.

*more locations expected to open in 2023

2023 Lucas T. Ahn Family Scholarship Recipient

by Naka King | Sep 25, 2023

Congratulations to Nadia Wallace, an undergraduate working in Dr. Lawrence T. Reiter’s lab, on being the second recipient of the Lucas T. Ahn Family Scholarship! "At the Neurology department of UTHSC in Dr. Reiter's lab, I dedicate my time to finding possible UBE3A...

LADDER Family-Friendly Reports

by Naka King | Aug 16, 2023

LADDER has some new family-friendly resources that you can view on the LADDER website! In May, LADDER launched a social media campaign with the goal to increase the number of adults enrolled in LADDER and highlight experiences of caregivers, researchers, and...

6th Annual Big Give Event

by Naka King | May 2, 2023

Each May our community comes together, as we go LIVE for our annual BIG GIVE event. The BIG GIVE event brings a platform of dynamic speakers who have a passion for our loved ones with dup15q syndrome. Our speakers GIVE to our Community on an ongoing basis and are our...

Dup15q Clinical Trial Locations Open

Related Posts

2023 Lucas T. Ahn Family Scholarship Recipient

LADDER Family-Friendly Reports

6th Annual Big Give Event

Contact Information