Providing High-Quality Medical Care for Individuals with Dup15q Syndrome
We connect those who practice evidence-based medicine for Dup15q syndrome with a
high level of excellence and ensure as many families have access to it as possible.
Each clinic is completely comprehensive yet has its own unique capabilities that leverage the expertise and specialized care available from each partnering organization. At the clinics, individuals have access to a variety of professionals all specializing in syndromes affecting the 15th chromosome:
- Clinical geneticist
- Speech Language Pathologist
- Physical/Occupational Therapist
- Genetic counselor
- Social worker
Dup15q Alliance does not directly provide or guide any clinical care or medical decision-making.
MORE THAN A MEDICAL NETWORK
Dup15q Clinics also link providers together to share information about their most challenging cases, links patients to clinical trials and links all the data together—to pave the way for the cure.
Find a Clinic
|Boston Children’s Hospital||Boston, MA||Neurology, Developmental Pediatrics, Psychology, Sleep, Gastroenterology, Orthopedics||More Info|
|Children’s Hospital Colorado||Aurora, CO||Genetics, Neurology, Developmental Pediatrics, Diet and nutrition, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Speech Therapy (Augmentative Alternative Communication and Feeding), Social Work||More Info|
|Children’s Hospital Los Angeles||Los Angeles, CA||Neurology, Genetics, Psychology, Speech Therapy, Social Work||More Info|
|Children’s Hospital of Eastern Ontario||Ottawa, Ontario||Neurology, Developmental Pediatrics, Genetics, Psychology||More Info|
|Geisinger Autism & Developmental Medicine Institute||Lewisburg, PA||Developmental Assessments, Psychological and Educational Testing, Genetic Counseling, Medication Management, Neurology, Behavior||More Info|
|Massachusetts General Hospital||Boston, MA||Neurology, Epilepsy, Psychiatry, Neuro-Psychology, Gastroenterology, Sleep||More Info|
|Mayo Clinic||Rochester, MN||Clinical Genomics, Epilepsy, Sleep, Speech therapy, Behavioral, Physical Medicine||More Info|
|Minnesota Epilepsy Group||St. Paul, MN||Neurology, Neuropsychological Testing, Psychiatry||More Info|
|Nicklaus Children’s Hospital||Miami, FL||Neurology, Genetics, Nutrition, Psychology, Social Work||More Info|
|NYU Langone Health||New York, NY||Epilepsy, Psychiatry, Neuropsychology, Nutrition, Gastroenterology, Speech Pathology/Rehabilitation Services||More Info|
|Rush University Medical Center||Chicago, IL||Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology||More Info|
|Texas Children’s Hospital||Houston, TX||Genetics, Neurology, Physical Medicine & Rehabilitation, Developmental Pediatrics||More Info|
|UCSF Benioff Children’s Hospital||San Francisco, CA||Epilepsy, Movement Disorders, Development and Behavior Issues, Sleep Disorders||More Info|
|UNC Carolina Institute for Developmental Disabilities||Carrboro, NC||Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Social Work||More Info|
|Vanderbilt University Medical Center||Nashville, TN||Pediatric Neurology, Sleep Neurology, Nutrition, SLP Services – AAC Device Focus||More Info|
|Weill Cornell Medicine||New York, NY||Pediatric Medicine, Neurology, Genetics, Psychiatry, Psychology, Speech-Language Pathology, Physical/Occupational Therapy, Social Work, Nutrition||More Info|
|Erasmus MC Sophia Children’s Hospital||Rotterdam, Netherlands||Neurology, Psychology, Speech and Language/AAC, Physical Therapy, Diet and Nutrition, Behavior and Development Management||More Info|
|Buenos Aires, Argentina||Buenos Aires, Argentina||Neurology, Orthopedics, AAC and Assistive Technology, Development and Learning, Occupational Therapy, Sensory Integration||More Info|
Clinic Travel Fund
This fund is designed to help families who have a need for their child seen at a Dup15q Clinic, but do not have the means to do so. With special emphasis to those patients struggling with hard-to-control seizures or other major medical issues (despite local treatment) get to a Dup15q clinic. Funds are limited, but the hope is to help as many families in need as possible.