Dup15q Clinics

Dup15q Clinics 4C Tag 2 1

Providing High-Quality Medical Care for Individuals with Dup15q Syndrome

We connect those who practice evidence-based medicine for Dup15q syndrome with a
high level of excellence and ensure as many families have access to it as possible.

 

Specialized Care

Each clinic is completely comprehensive yet has its own unique capabilities that leverage the expertise and specialized care available from each partnering organization. At the clinics, individuals have access to a variety of professionals all specializing in syndromes affecting the 15th chromosome:

  • Clinical geneticist
  • Neurologist
  • Psychiatrist
  • Psychologist
  • Speech Language Pathologist
  • Physical/Occupational Therapist
  • Genetic counselor
  • Social worker
  • Nutritionist

Dup15q Alliance does not directly provide or guide any clinical care or medical decision-making.

MORE THAN A MEDICAL NETWORK

Dup15q Clinics also link providers together to share information about their most challenging cases, links patients to clinical trials and links all the data together—to pave the way for the cure.

LADDER INFO 2

PCincinnati Children’s HospitalFind a Clinic

Dup15q Clinic Location Specialties
Children’s Hospital Colorado Aurora, CO Genetics, Neurology, Developmental Pediatrics, Diet and nutrition, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Speech Therapy (Augmentative Alternative Communication and Feeding), Social Work
Children’s Hospital Los Angeles Los Angeles, CA Neurology, Genetics, Psychology, Speech Therapy, Social Work
Geisinger Autism & Developmental Medicine Institute Lewisburg, PA Developmental Assessments, Psychological and Educational Testing, Genetic Counseling, Medication Management, Neurology, Behavior
Children’s Hospital of Philadelphia Philadelphia, PA Neurology, Genetics, Social Work, Physical Therapy, Occupational Therapy More Info
Massachusetts General Hospital Boston, MA Neurology, Epilepsy, Psychiatry, Neuro-Psychology, Gastroenterology, Sleep
Minnesota Epilepsy Group St. Paul, MN Neurology, Neuropsychological Testing, Psychiatry
Nicklaus Children’s Hospital Miami, FL Neurology, Genetics, Nutrition, Psychology, Social Work
NYU Langone Health New York, NY Epilepsy, Psychiatry, Neuropsychology, Nutrition, Gastroenterology, Speech Pathology/Rehabilitation Services
Rush University Medical Center Chicago, IL Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology
Texas Children’s Hospital Houston, TX Genetics, Neurology, Physical Medicine & Rehabilitation, Developmental Pediatrics
UCSF Benioff Children’s Hospital San Francisco, CA Epilepsy, Movement Disorders, Development and Behavior Issues, Sleep Disorders
UNC Carolina Institute for Developmental Disabilities Carrboro, NC Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Social Work
Vanderbilt University Medical Center Nashville, TN Pediatric Neurology, Sleep Neurology, Nutrition, SLP Services – AAC Device Focus
Weill Cornell Medicine New York, NY Pediatric Medicine, Neurology, Genetics, Psychiatry, Psychology, Speech-Language Pathology, Physical/Occupational Therapy, Social Work, Nutrition
Erasmus MC Sophia Children’s Hospital Rotterdam, Netherlands Neurology, Psychology, Speech and Language/AAC, Physical Therapy, Diet and Nutrition, Behavior and Development Management More Info
Buenos Aires, Argentina Buenos Aires, Argentina Neurology, Orthopedics, AAC and Assistive Technology, Development and Learning, Occupational Therapy, Sensory Integration More Info
Cincinnati Children’s Hospital

Cincinnati, OH

Genetics, Neurology,  Developmental pediatrics, Physical therapy, Diet and nutrition, Sleep, Speech therapy, Gastrointestinal, Psychology/Psychiatry, Family Support

More Info

 

Clinic Travel Fund

This fund is designed to help families who have a need for their child seen at a Dup15q Clinic, but do not have the means to do so. With special emphasis to those patients struggling with hard-to-control seizures or other major medical issues (despite local treatment) get to a Dup15q clinic. Funds are limited, but the hope is to help as many families in need as possible.

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