The Dup15q Alliance seeks to support public policy that improves the lives of people living with Dup15q and their caregivers. Our federal advocacy work focuses on educating Congressional members in a nonpartisan manner to achieve the Alliance’s mission: to promote awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome. The Alliance further seeks to work with state senators and representatives to further our goals, especially in the area of state budget priorities.
If you would like to help with advocating for our Dup15q community, we urge you to first review how to GET INFORMED to get you up to speed on issues that are important to the rare disease community. We then suggest that you review the Alliance’s LEGISLATIVE PRIORITIES to see the areas that we believe are most critical to our families. If you would like to help us to take action in areas that are especially time sensitive, please click on the TAKE ACTION button. There are many ways, big and small, that you can help to further our legislative goals!
Learn more about Governmental Advocacy and how it applies to you!