February 28, 2026 is the designated “Rare Disease Awareness Day” across the world.
Dup15q Syndrome is 1 of 7,000 Rare Diseases.
1 in 20 people will be diagnosed with a rare disease at some point in their life. Despite this, there is no cure for the majority and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision-makers to address the needs of those living with rare diseases.
300 million people living with a rare disease worldwide 72% of rare diseases are genetic
Together, we aim to raise awareness through education for our community, researchers, clinicians, and policymakers to bring equitable access to diagnosis, treatment, health, and social care as we work towards a more inclusive society. Equity in practice means meeting peoples’ specific needs and eliminating barriers preventing their full participation in society, social opportunities, equitable access to health and social care, diagnosis, and treatments.
Do you want to do more to make a social impact in 2026?
Here are some ways to get involved!
SUPPORT
Join the Challenge
Join the challenge to help us reach our goal of $75,000! You will have chances to win prizes while helping to raise funds and bring awareness.
Create a Facebook Fundraiser
Consider creating a Rare Disease Day fundraiser for Dup15q Alliance on Facebook! It’s an easy way to raise awareness and share it with supporters and encourage them to help you raise money on Facebook.
Wear Blue for Dup15q!
Purchase Rare Disease Day apparel by January 31, 2026, and wear blue on February 28th to raise awareness everywhere you go. Dup15q Alliance receives a $5 donation for each item purchased.
Compassion Experience
The Compassion Experience was created to develop a sense of understanding and compassion among grade school-age peers.
Dup15q Alliance will provide: Chromosome Kids Like Me” book, Printable Compassion Experience Activity, Printable Socks for each child to color
Tell your story on Capitol Hill
Rare Disease Week on Capitol Hill brings together rare disease community members from across the country to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. Our friends at Everylife Foundation give you all the tools you need for each step of the way!
Donate
Donate to help us raise $75,000 to have a large impact on those with Dup15q syndrome.