Get Involved

Dup15q Alliance would not exist without all of our community volunteers! Founded by a handful of concerned parents in 1994, today we have over 2200 registered families. With the help of these families and their supporters we’ve organized numerous conferences, facilitated the creation of dup15q clinics, advanced research into dup15q syndrome, made progress in governmental advocacy, and held dozens of fundraising and awareness events. Thank you to those who generously give both their time and financial support to help Dup15q Alliance grow. 

Host a Fundraiser

Typically hosted by friends and family of those affected by dup15q syndrome, they are the backbone of our awareness and fundraising campaigns. Events range from the simple to the elaborate, but all come from the heart. Limited only by imagination, we have had fundraisers including birthday celebrations,  walk/bike events, run for a reason, email fundraisers, facebook fundraisers,  formal dinner parties, restaurant fundraisers, golf tournaments and 3rd party vendors to name a few.

Fundraising can be as easy as sending an email to your friends and family asking them to honor your child with a donation to Dup15q Alliance.  Feeling adventurous? Plan an outing or event and invite your friends and family. Have other children? Invite their school and community groups to sponsor a fundraiser for Dup15q Alliance. The options are unlimited and we can help with each step of the way.

Dup15q Alliance can make an online giving page for your event. We can provide brochures and other materials to distribute at your event. We will help as much, or as little, as you’d like. Contact believe@dup15q.org to start planning your dup15q event today!

Together we can make a difference for all those affected by dup15q syndrome!