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The Dup15q Alliance seeks to pursue federal and state policies that will change the lives of individuals impacted by Dup15q Syndrome for the better. The following are issues that we believe merit action at this time. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information at advocacy@dup15q.org.





Ask Congress to Support the Safe Step Act!

Ask Congress to Support the Safe Step Act (H.R. 2163/S.464)

Step therapy, often called “fail first,” is a process that requires patients to take one or more alternative medications chosen by their insurer before permitting patients to access the medicine prescribed by their health care provider. H.R. 2163 and S. 464 would protect rare disease patients in federally regulated health insurance plans by establishing an exemption process, requiring certain exceptions to the step therapy protocols and requiring a time frame for plans to respond to exception or appeal requests. Contact your legislators today to ask them to cosponsor this important legislation!