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Dup15q Alliance Volunteer Opportunities

Dup15q Alliance would not exist without all of our community volunteers! Founded by a handful of concerned parents in 1994, today we have over 2200 registered families. With the help of these families and their supporters we’ve organized numerous conferences, facilitated the creation of dup15q clinics, advanced research into dup15q syndrome, made progress in governmental advocacy, and held dozens of fundraising and awareness events. Thank you to those who generously give both their time and financial support to help Dup15q Alliance grow.
 
For more information contact us at info@dup15q.org or apply below.
 
 
Committee Page
Pledge to Host a Believe Walk

You can bring awareness and advocacy for dup15q in your local community. You have the ability to unite fellow dup15q families, extended support, friends, and supporters to raise awareness and funds that will advance the Dup15q Alliance Mission. It’s a chance for families to connect with others, share stories, ask questions, and celebrate our families. In many states that already host a walk there are activities for families, games, and refreshments. It truly is a family fun day!

Not sure how to get started?  Find more information here: Believe Walk – Dup15Q Alliance

Pledge to host a Walk! 

Host a Dup15q Family Gathering

Give the gift of connections by hosting a Dup15q Family State/Regional Gathering.

These get-togethers offer families the opportunity to make new friends, renew old ties, and spend some relaxed time together with other families.  Past organizers have said it only takes a couple of hours to plan spread over a few weeks. 

It is a unique opportunity to spend time with families who completely understand the challenges and joys of raising a child with  Dup15q syndrome. 

Dup15q Alliance offers Family Gathering Grants at a flat rate of $250 to any gatherings of four or more Dup15q Alliance Families support the cost of food associated or with location rental.

Family Gathering Guide

For more information or to sign up to host a gathering, contact outreach@dup15q.org

Host a Family Gathering 

Sunshine Committee
Sunshine Committee1

The Sunshine Committee is made up of Parents, Extended Family Members, Friends, and Professionals.  The Dup15q Alliance is so thankful for all of our volunteers who bring a little sunshine to the lives of our dupers! Each committee members is responsible for sending out birthday cards member of the Alliance with dup15q syndrome. You will be asked to send cards several times a year.