Infantile Spasms Awareness Week is December 1-7
Infantile Spasms (IS) are a rare but serious seizure type that can cause catastrophic, permanent damage to a child’s developing brain. It is estimated that worldwide, a baby is diagnosed with IS every 12 minutes. Thirty to fifty percent of those who have LGS had Infantile Spasms when they were babies.
Infantile Spasms Awareness Week (ISAW) 2020 is December 1-7. Join us as we educate parents, providers, and caregivers on how to recognize the subtle signs of IS and build momentum for critical research.
This campaign was established by the Infantile Spasms Action Network (ISAN), a collaborative advocacy group of 30 international organizations that have come together to inform families, physicians and caregivers about the signs of IS.
To help people remember what’s most important when recognizing the subtle symptoms of infantile spasms, ISAN developed the ‘STOP’ mnemonic in both English and Spanish.
Help us spread the word about the seriousness of Infantile Spasms by sharing awareness posts on your social media pages between December 1-7.