LADDER has some new family-friendly resources that you can view on the LADDER website!
In May, LADDER launched a social media campaign with the goal to increase the number of adults enrolled in LADDER and highlight experiences of caregivers, researchers, and clinicians of adults. We believe by including more adults in LADDER, researchers can better support affected individuals and their families.
LADDER also shares de-identified information (which means it cannot be traced back to you or your family) from the LADDER database with approved researchers. When research projects using LADDER data result in publications, we share summaries of the research that are written for families to understand. We currently have three reports available for families!
To read the report on the adult social media campaign or any of the currently available family-friendly reports, check out the “Family-friendly Reports and Campaigns” page on the LADDER website: https://laddertotreatment.org/for-families/family-friendly-reports-campaigns/
LADDER is a research network focused on Angelman and dup15q syndromes. LADDER links data from research studies, registries, and clinic visits. If you have any concerns or questions, please don’t hesitate to contact us at ladder@rti.org or toll free at 1-888-454-2588.
Sincerely,
The LADDER team
P.S. Follow us on social media! You can find us on both Facebook and Instagram. We regularly share stats from the LADDER Database, information about research opportunities, findings from research studies, and FAQs. We also offer opportunities for you to ask questions about LADDER and give us input about what you would like to see in future posts!
Family-friendly Reports and Campaigns
LADDER shares de-identified information (which means it cannot be traced back to you or your family) from the LADDER database with approved researchers. When research projects using LADDER data result in publications, we share summaries of the research that are written for families to understand. We also conduct campaigns to extend our outreach, highlight experiences of caregivers, researchers and clinicians, and find out more about the needs and priorities in the Angelman and dup15q communities.
Research Projects
Developmental Skills of Individuals with Angelman Syndrome
Anjali Sadhwani, PhD, Boston Children’s Hospital
Behavioral Characterization of Dup15q Syndrome
Charlotte DiStefano, PhD, Center for Autism Research and Treatment, UCLA
Maladaptive Behaviors in Individuals with Angelman Syndrome
Anjali Sadhwani, PhD, Boston Children’s Hospital
Campaigns and Outreach
The following reports are summaries of our social media campaigns.
