It is a privilege and honor to serve as the new Executive Director of Dup15q Alliance. I have tremendous gratitude to Vanessa, the staff, and the board for positioning the Alliance to be poised for high-impact growth in the coming years. I am sure it will come as no surprise to you that the Dup15q team is relentless in its pursuit of meeting the needs of the Dup15q community. It is because of this passion and pursuance that I am incredibly honored to accept this role.
Over 18 years ago, the calling on my life was solidified when I found my passion and purpose in working with nonprofits. Little did I know that my work and home life would collide when my husband was diagnosed 2 years ago with a rare neurological disease. It was during this time that I felt led to pursue my nonprofit passion in the rare disease space which in turn led me to Dup15q Alliance.
I am looking forward to increasing our blueprint in the rare disease community and making an impact on the future of Dup15q. I want to collaborate with you, learn with you, and grow with you as we continue to pursue our mission and purpose.
Thank you in advance for your role in making an impact!