Celebrating 30 years of supporting families affected by Dup15q syndrome.
Our families are the heart of Dup15q Alliance. In fact, the Dup15q Alliance was built throughout the years by driven parents with a goal of providing support and investing in research to create a better tomorrow for all families affected by Dup15q syndrome.
We are parents, grandparents, professionals, and advocates providing support for patients, families, and caregivers. We are passionate about personal connections, family support, community awareness, and scientific research.
Our Pledge
The treatment landscape for Dup15q syndrome is on the cusp of significant transformations, driven by the emergence of new therapies, heightened awareness and the resolute voices of the families in the Dup15q Alliance.
We pledge to move our mission forward with the voice of our community, meeting families where they are with support and guidance with the basic principles that the Alliance was founded on. While focusing on advancing breakthrough research and life-changing therapeutic treatments we work towards finding targeted treatments.
Together, we are shaping a brighter future for all those affected by Dup15q syndrome.
What's Your Pledge?
Organized rare disease patient groups led by parents and caregivers who work together in connecting families, participating in research and fundraising efforts are the driving force behind creating change.
Join our research initiative to help advance understanding and treatment for Dup15q syndrome. .Your content goes here. Edit or remove this text inline or in the module Content settings. You can also style every . aspect of this content in the module Design settings and even apply custom CSS to this ten modul
Get involved and make a difference in the lives of those affected by Dup15q syndrome. Your content goes here. Edit or remove this text inline or in the module Content settings. You can also style every aspect of this content in the module Design settings and even apply custom CSS to this text in the module Advanced settings.
Support our mission with a donation to fund vital research and family support programs. Your content goes here. Edit or remove this text inline or in the module Content settings. You can also style every aspect of this content in the module Design settings and even apply custom CSS to this text in the module Advanced settings.
Register for a Believe Walk near you and create a fundraising team for a chance to WIN one of 4 SAMi Alert Cameras!
Can’t make it to an in-person Walk? That’s ok! You can still support a walk and have a chance to win by creating a fundraising team! This is a fantastic opportunity to support our community, raise awareness, and have a chance to Win The Epilepsy Foundation Award Winning Camera & App, The SAMI Alert Sleep Activity Camera
To qualify:
1. Your Believe Walk Team must have a fundraising page.
AND
2. Your walk must be in the TOP 3 fundraising ($) Believe Walks (between 4/1/24, and 10/20/24)
The 4 winners will be randomly drawn from the top three fundraising sites the week of October 20, 2024*
*If the winner of the SAMi Activity Camera does not want or need the monitor, it is up to the winner to notify us WHOM they would like to gift the prize to.
A step-by-step guide on how to create a team can be found HERE