Programs & Support

Resources

Newly Diagnosed Support

Parents can feel overwhelmed with the Dup15q diagnosis. The Dup15q Alliance offers new family support calls and resources.

Past Dup15q Webinars

Webinars hosted by the Dup15q Alliance and our partners.

Families in Crises

The Dup15q Counseling Program
Wrapped in Love Support Program

Navigated School/IEP

The Dup15q Alliance IEP Handbook
*IEP Help Ticket available
Other School Resources

Sibling Matters

Sibshops – support for siblings of individuals with Dup15q.
VIP Sibling Kits.
*Sibling Spotlight coming soon

Navigating Financial Planning

Navigating SSI and SSDI and Special Needs Trusts
ABLE Account
*Financial help ticket available
Autism Speaks – Financial Planning

Navigating Teen Life

Teen life resources, adaptive items, high school and information for IEP transition into highschool.

Adult Life Connections

Adult life connection calls for parents of kids with Dup15q transitioning into adulthood.
Adult Life Resources.

Community Connections and Support Program

Parent-to-parent closed Facebook page.
Community connections chat
Regional Gatherings
*Peer-to-peer support coming soon
Super-Duper Birthday Club

Junior Believe Ambassador

A sibling, family member, or friend of someone with Dup15q Syndrome who wants to raise awareness and educate others.

Bereavement Connections

Bereavement Connections Call
*Memorial Wall coming soon
AustismBrain.net info

Ask the Expert Series

Monthly educational webinar

Printables

Dup15q Alliance School Printables
Seizure Recognition and Response
School & Day Care Materials
Respite Care Notebook

Support for International Dup15q Families

Worldwide unity and common purpose for organizations serving individuals with Dup15q Syndrome including other variances within this region.

Support for Other 15q Disorders

Resources to help families begin their search for information relevant to their particular diagnosis.

Safety, Adaptive Gear, and Equipment

Resources for swim gear, adaptive gear, clothing, and equipment.

Respite Resources

Respite resources and caregiver posting.

Resources by State

Our resource map provides lists of government agencies, community support, funding resources, and information.

Other Resources & Programs for Families with Disabilities

More helpful resources and information.

Safety Resources

Tips on preventing individuals with a disability who may elope and become lost.

Mirror Newsletter Archive

Check out our newsletter archive of the Mirror. This was a monthly newsletter sent to families.