Dup15q Alliance Resource Navigator provides resources for non-profit assistance, community support, funding resources, and information that may be beneficial to caregivers and family members affected by Dup15q Syndrome. The inclusion of links to other sites and organizations does not imply endorsement or support and is included for informational purposes only.
Search by Category or use a keyword in the Resources search tool.Â
Category
Resources
Website
Equipment Financial Assistance
HERO: Healthcare Equipment Recycling Organization. We provide access to affordable medical equipment and supplies for all.
Equipment Financial Assistance
The My Gym Foundation is a registered 501(c)(3) nonprofit dedicated to helping children with disabilities and those struggling financially by awarding critically-needed gifts of equipment and services. Requests, limited to gifts of $500 or less, may include but are not limited to rehabilitative therapy, My Gym classes, assistive devices, medical equipment, and sensory items.
Equipment Financial Assistance
The M.O.R.G.A.N Project: We exist to provide families with specialized programs for children with special health care needs, disabilities, sensory issues and concerns, thus improving quality of life for the entire family. Located in East Central Florida, we serve families locally and nationwide through a host of quality-of-life programs.
Medical Financial Assistance
Mike's Kids: The purpose of this foundation is to provide assistance via services, equipment, education, special care and respite support to children with special needs and their families. Special need children include those who are physically and/or mentally challenged including those with learning disabilities. Additionally, educational materials/seminars will be sponsored for parents of special needs children relative to maximizing available resources and for medical providers in ways to prevent or minimize perinatal morbidity.
Equipment Financial Assistance
Mike's Kids: The purpose of this foundation is to provide assistance via services, equipment, education, special care and respite support to children with special needs and their families. Special need children include those who are physically and/or mentally challenged including those with learning disabilities. Additionally, educational materials/seminars will be sponsored for parents of special needs children relative to maximizing available resources and for medical providers in ways to prevent or minimize perinatal morbidity.
Equipment Financial Assistance
McLindon Family Foundation (MFF) mission is to provide adaptive bikes to children with special needs so that they can build critical core strength, boost confidence and nurture
friendships, all of which help these children maximize their potential and participation in society.
Medical Financial Assistance
Lindsay Foundation: Assists families with resources necessary to provide medical treatment, therapies and rehabilitative equipment in order to improve the quality of life for their special needs children.
Equipment Financial Assistance
Lindsay Foundation: Assists families with resources necessary to provide medical treatment, therapies and rehabilitative equipment in order to improve the quality of life for their special needs children.
Medical Financial Assistance
Angel's Hands Foundation:
Our mission is to improve the quality of life for individuals living with rare and undiagnosed medical conditions.
The primary purpose of Angel's Hands Foundation is to assist with medically related expenses, either not covered or partially covered, by insurance. AHF also assists with non-medically necessary equipment that has shown to improve the quality of life for individuals.
Equipment Financial Assistance
Angel's Hands Foundation:
Our mission is to improve the quality of life for individuals living with rare and undiagnosed medical conditions.
The primary purpose of Angel's Hands Foundation is to assist with medically related expenses, either not covered or partially covered, by insurance. AHF also assists with non-medically necessary equipment that has shown to improve the quality of life for individuals.
Equipment Financial Assistance
Friends of Man:
Works through Referring Professionals (caseworkers, case managers, healthcare workers, social workers, school counselors, teachers, clergy) who apply on behalf of their patients and clients needing mobility equipment, prosthetics, glasses, dentures, hearing aids, and much more!
General Financial Assistance
Friends of Man:
Works through Referring Professionals (caseworkers, case managers, healthcare workers, social workers, school counselors, teachers, clergy) who apply on behalf of their patients and clients needing mobility equipment, prosthetics, glasses, dentures, hearing aids, and much more!
Medical Financial Assistance
Astra Zeneca: provides financial assistance to eligible commercially insured patients that help reduce monthly cost of your medication. Commercial insurance is sometimes referred to as "private insurance" and is typically provided by the company you work for.
Perscription Financial Assistance
Astra Zeneca: Helps eligible uninsured and Medicare patients gain access to AstraZeneca medications.
AstraZeneca medicines provided at no cost. Click here to review the list of medicines available through this program.
Seizure Support Resources
The Epilepsy Learning Portal is your one-stop shop to access the Epilepsy Foundation's online and on-demand training classes about epilepsy and seizures. Here are some of their most popular classes. Feel free to browse their full class catalog.
Care Coordination
National Resource Center for Patient/Family-Centered Medical Home: a national technical assistance center focused on improving the health and well-being of, and strengthening the system of services for, children and youth with special health care needs and their families by enhancing the patient/family-centered medical home. A medical home is an approach to providing comprehensive primary care that facilitates partnerships between patients, clinicians, medical staff, and families. A medical home extends beyond the four walls of a clinical practice. It includes specialty care, educational services, family support and more.
Resource Directory
211 Information:
211 Information is a confidential service provided by United Way Worldwide. The service provides people with local information about human services for everyday needs such as food, housing, and health. This service also provides resources in times of crisis.
Wish Fulfillment
A Special Wish Foundation grants wishes for children and young adults between the ages of 3 and 21 who have been diagnosed with an advanced illness and live near Spokane, Washington. Wishes fall into three categories, including a special gift, a visit to a special place, or the opportunity to meet a special hero.
Financial Planning
ABLE Accounts:
Living with aq disability is often associated with significant amounts of extra costs. That's why individuals and families can now contribute to ABLE accounts - tax advantaged savings accounst that can fund disability expenses.
Future Planning
ABLE Accounts:
Living with aq disability is often associated with significant amounts of extra costs. That's why individuals and families can now contribute to ABLE accounts - tax advantaged savings accounst that can fund disability expenses.
Medical Travel Assistance
Accessia Health Financial Assistance:
Medical expenses shouldn't control your life. If you're living with a chronic medical condition, our patient assistance programs are designed to support you.
Our programs provide financial assistance with copays, health insurance premiums, travel costs, and other medical expenses � all at no cost to you.
Medical Financial Assistance
Accessia Health Financial Assistance:
Medical expenses shouldn't control your life. If you're living with a chronic medical condition, our patient assistance programs are designed to support you.
Our programs provide financial assistance with copays, health insurance premiums, travel costs, and other medical expenses � all at no cost to you.
Legal Assistance
Accessia Health Legal Assistance:
Advocating for Chronic Conditions, Entitlements and Social Services (ACCESS) is a free disability legal aid program, offered by Accessia Health, for families facing specific chronic medical conditions.
We are here to provide legal aid and representation when it's needed most. Assisting patients nationwide with disability legal aid, Social Security Disability (SSDI) claims, and Supplemental Security Income (SSI) claims.
Health Insurance Resources
Accessia Health:
We assist with the cost of patients' health insurance premiums. Whether you have private or public insurance, we are dedicated to supporting your health journey.
Adaptive Clothing
Easy Access Clothing: Adaptive clothing is clothing designed specifically for those who may have mobility or other issues and may not be able to use features such as buttons or zippers. While adaptive clothing for wheelchair users is the most popular type of adaptive clothing, there are also pieces for those with sensory issues, such as autism or related disorders.
Adult Clothing
Easy Access Clothing: Adaptive clothing is clothing designed specifically for those who may have mobility or other issues and may not be able to use features such as buttons or zippers. While adaptive clothing for wheelchair users is the most popular type of adaptive clothing, there are also pieces for those with sensory issues, such as autism or related disorders.
Adult Clothing
Adaptive Clothing Showroom provides clothing and accessories for men, women and children in need of regular or adaptive clothing to help ease the task of independent or aided dressing.
Adult Clothing
Adaptations By Adrian: We have been customizing individually made adaptive clothing for special needs. We strive to ease dressing challenges, of those working within physical limits, to help make daily lives more convenient and easier.
Adaptive Clothing
Adaptations By Adrian: We have been customizing individually made adaptive clothing for special needs. We strive to ease dressing challenges, of those working within physical limits, to help make daily lives more convenient and easier.
Adaptive Clothing
Adaptive Clothing Showroom provides clothing and accessories for men, women and children in need of regular or adaptive clothing to help ease the task of independent or aided dressing.
Adaptive Clothing
Adaptive Clothing by JCPenny:
JCPenney said its new private brand Thereabouts, which is being released this week, is designed to be an "inclusive line of kids apparel that celebrates the diversity of shapes, sizes, styles, and abilities." Sizes 2T - 22
The collection includes a line of adaptive clothing that's aimed at kids with sensory, dexterity, or mobility needs. The apparel has features like easy-access openings, sensory-friendly seaming, hidden abdominal access, and no tags, the retailer said.
Adult Clothing
Adaptive Clothing by JCPenny:
JCPenney said its new private brand Thereabouts, which is being released this week, is designed to be an "inclusive line of kids apparel that celebrates the diversity of shapes, sizes, styles, and abilities." Sizes 2T - 22
The collection includes a line of adaptive clothing that's aimed at kids with sensory, dexterity, or mobility needs. The apparel has features like easy-access openings, sensory-friendly seaming, hidden abdominal access, and no tags, the retailer said.
Adaptive Clothing
Adaptive Clothing by Target:
Target has expanded its clothing options for people with disabilities beyond children with a new collection of jeans and tops in adult sizes. Sensory-friendly and adaptive clothing for adults and children as part of a new line called Universal Thread that's meant to fit individuals of all shapes and sizes. Youth to Adult
Adult Clothing
Adaptive Clothing by Target:
Target has expanded its clothing options for people with disabilities beyond children with a new collection of jeans and tops in adult sizes. Sensory-friendly and adaptive clothing for adults and children as part of a new line called Universal Thread that's meant to fit individuals of all shapes and sizes. Youth to Adult
Adaptive Gear and Items
Adaptive Mall:
Adaptivemall.com offers the best selection of adaptive equipment for children with special needs. Our products range from special needs strollers to special needs car seats to adaptive toys for children's special needs therapy. At Adaptivemall.com, you'll find a variety of special needs products for your child's adaptive equipment needs. Our on-staff therapists and first-class customer service team are available to ensure your satisfaction with all special needs therapy products and special needs equipment
Adaptive Gear and Items
Adaptive Tech Solutions:
Adaptive Tech Solutions is a therapist owned and operated company and we strive to provide adapted equipment for individuals with disabilities at affordable prices. Adaptive Tech Solutions offers a complete line of affordable assistive technology devices and special needs products to help children and adults with disabilities.
Medical Air Travel Assistance
Air Care Alliance:
Free air transportation to medical treatment for people with a financial need is provided by many volunteer pilot organizations. You can easily find a public benefit flying group near you!
Medical Air Travel Assistance
Air Charity Network:
Air Charity Network is a charitable organization that provides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis.
Genetic Testing
Ambit Care:
AmbitCare offers free genetic counseling and testing for patients with seizures and/or developmental delays.
Medical Travel Assistance
Angel Flight East:
The Mission of Angel Flight East: To provide free air transportation to qualified patients and their families by arranging flights to distant medical facilities, delivering supplies to disaster areas, and reuniting families during desperate times. Angel Flight East facilitates transportation in the Northeastern region of the United States for distances up to 1,000 miles. The minimum distance AFE travels is 100 miles. (See our Service Area Map) For flights longer than 1,000 miles or flights originating in other states, please visit the Air Care Alliance.
Medical Air Travel Assistance
Angel Flight:
Free air transportation for any charitable, medically related need.
Adaptive Swim
Aqua Jogger Belt:
AquaJogger Jr.'s learn to swim floatation belt does not inhibit arm strokes. It's designed to provide total freedom of movement so children can focus on the many skills involved in swimming. Supports up to 95 lbs.
Perscription Financial Assistance
Assistance Fund: The Assistance Fund provides various services, including education and financial aid, to help patients with chronic or serious illnesses cover the cost of FDA-approved medications. You can contact them directly at 855-845-3663.
General Financial Assistance
Aubrey Rose Foundation:
Helping families with financial need because of their children's medical expenses and more. We strive to lift families from life's complexities during this difficult time by providing emotional and financial support.
Adult Long-Term Supports
Autism Housing Network: Our vision is to become the largest database of user-generated resources and residential opportunities while fostering a supportive and encouraging online community. Your contributions, both financial and by AHN engagement, keep this community alive.
Future Planning
Autism Housing Network: Our vision is to become the largest database of user-generated resources and residential opportunities while fostering a supportive and encouraging online community. Your contributions, both financial and by AHN engagement, keep this community alive.
Housing Assistance
Autism Housing Network: Our vision is to become the largest database of user-generated resources and residential opportunities while fostering a supportive and encouraging online community. Your contributions, both financial and by AHN engagement, keep this community alive.
Genetic Testing
Behind the Seizure Program:
Sponsored, no-charge genetic testing for pediatric epilepsy
Medical Air Travel Assistance
Believe in Tomorrow Children's Foundation:
Free accommodations when you are traveling from afar to Baltimore, Maryland � Johns Hopkins Children's Center.
Wandering Safety
Big Red Safety Toolkit: The National Autism Association's Big Read Safety Toolkit for caregivers seeks to prevent wandering and elopement. The tools and resources included in the kit provide direct aid and support to those at risk and their caregivers.
Adaptive Clothing
Billy Footwear:
Smashing fashion with function, BILLY Footwear incorporates zippers that go along the side of the shoes and around the toe, allowing the upper of each shoe to open and fold over completely. Thus the wearer can place his or her foot onto the shoe footbed unobstructed. Then with a tug on the zipper-pull the shoe closes and secures overtop the user's foot. It's simple. It's easy.
Adaptive Shoes
Billy Footwear:
Smashing fashion with function, BILLY Footwear incorporates zippers that go along the side of the shoes and around the toe, allowing the upper of each shoe to open and fold over completely. Thus the wearer can place his or her foot onto the shoe footbed unobstructed. Then with a tug on the zipper-pull the shoe closes and secures overtop the user's foot. It's simple. It's easy.
Adaptive Clothing
Busy Body Kids:
Compression clothing started by a Dup15q Family in honor of their busy body, CJ. The compression clothing helps children who are hyposensitive and crave constant input; they love jumping, bumping and crashing activities, as well as deep pressure such as that provided by tight bear hugs and squeezes. Busy Body compression clothing is functional yet stylish. These one of a kind designs were created so children can wear them as under-wear or also as outer-wear and can double as swimwear. Available in sizes child to youth.
Adaptive Swim
Busy Body Kids:
Compression clothing was started by a Dup15q Family in honor of their busy body, CJ. The compression clothing helps children who are hyposensitive and crave constant input; they love jumping, bumping, and crashing activities, as well as deep pressure such as that provided by tight bear hugs and squeezes. Busy Body compression clothing is functional yet stylish. These one-of-a-kind designs were created so children can wear them as underwear or also as outerwear�and can double as swimwear.� Available in sizes child to youth
Seizure Response Dogs
Canine Assistants:
Canine Assistants teaches and provide seizure response dogs for recipients who have seizures. Following general education, seizure response dogs are taught to remain next to the person during the course of a seizure, summon help in a controlled environment, or retrieve a phone prior to the seizure when indicated by the recipient. Certain dogs may even develop the ability to predict and react in advance to an oncoming seizure once they are placed with their recipient.
Service Dog Financial Assistance
Canine Assistants:
Canine Assistants teaches and provide seizure response dogs for recipients who have seizures. Following general education, seizure response dogs are taught to remain next to the person during the course of a seizure, summon help in a controlled environment, or retrieve a phone prior to the seizure when indicated by the recipient. Certain dogs may even develop the ability to predict and react in advance to an oncoming seizure once they are placed with their recipient.
Travel Resources
Car Seats and Air Travel:
Did you know Every U.S. airline allows you to check a car seat free of charge when traveling with a child. You can check your car seat at the airport baggage counter or wait and check it at your gate.
Can I bring my car seat on board the plane? If you have a seat booked for your child and a car seat that is approved for use in aircraft by the FAA, then you can bring and use a car seat on board for your child.
Consider traveling with a more compact car seat models. Check out this list of the best car seats for air travel.
Car seats are obviously not allowed in exit rows (nor are any kids under age 15). But car seats are also not allowed in any seats where they would block the exit paths of others in the row. In a single-aisle plane with a 3-3 configuration, for example, this means that car seats are for the most part allowed only in the window seats. * Booster seats are not approved for use in planes by the FAA.
Medical Travel Assistance
CARES Child Aviation Restraint System:
CARES Child Aviation Restraint System is designed specifically for aviation use for children age 1 and older who weigh between 22 and 44 pounds. These youngsters are old enough to be in their own seats, but are too small for the seat belt alone to protect them and provide the safety they require during airplane travel. Their bodies cannot withstand the jolts that are common in routine air travel, much less emergency situations, and they flail forward or slide beneath the seat belt if they are not held securely in place
Travel Resources
CARES Child Aviation Restraint System:
CARES Child Aviation Restraint System is designed specifically for aviation use for children age 1 and older who weigh between 22 and 44 pounds. These youngsters are old enough to be in their own seats, but are too small for the seat belt alone to protect them and provide the safety they require during airplane travel. Their bodies cannot withstand the jolts that are common in routine air travel, much less emergency situations, and they flail forward or slide beneath the seat belt if they are not held securely in place
General Family Support
Caring for Yourself and Your Children
This toolkit is designed as a guide for parents who live with a rare disease. In addition to recognizing the emotional impact of being both a caregiver and a patient, this toolkit provides guidance to parents on the practical elements of living with a rare disease, such as employment, insurance, applying for social benefits, and everyday health management. Within this resource, you'll read tips and advice from other rare parents who spoke of their experiences and approaches in a "Parenting while RARE" session at the 2022 Global Genes Patient Advocacy Summit.
International Financial Assistance
Cerner Charitable Foundation:
Sometimes, financial constraints make it impossible for parents and caregivers to cover their child's medical expenses. Cerner Charitable Foundation accepts individual medical grant applications for medical needs from the United States and through select international providers. Expenses Covered: Treatment: Clinical procedures, medicine, therapy, prosthesis, etc., Equipment: Wheelchairs, assistive technology equipment, care devices, hearing aids, etc., Displacement: Lodging (only if charitable housing is unavailable), gas ($0.33 per mile), parking and transportation related to a child's care, Vehicle modifications: Lifts, ramps and transfer boards. Request Funding | Cerner Charitable Foundation
Medical Financial Assistance
Cerner Charitable Foundation:
Sometimes, financial constraints make it impossible for parents and caregivers to cover their child's medical expenses. Cerner Charitable Foundation accepts individual medical grant applications for medical needs from the United States and through select international providers. Expenses Covered: Treatment: Clinical procedures, medicine, therapy, prosthesis, etc., Equipment: Wheelchairs, assistive technology equipment, care devices, hearing aids, etc., Displacement: Lodging (only if charitable housing is unavailable), gas ($0.33 per mile), parking and transportation related to a child's care, Vehicle modifications: Lifts, ramps and transfer boards. Request Funding | Cerner Charitable Foundation
Equipment Financial Assistance
Chariots of Hope: world wide distribution of used wheelchairs, at no cost to recipients
International Financial Assistance
Chariots of Hope: world wide distribution of used wheelchairs, at no cost to recipients
Seizure Devices Financial Assistance
Chelsea Hutchison Foundation:
This Foundation provide grants for seizure-response dogs and epilepsy monitors for those in need, educate the public about SUDEP (Sudden Unexpected Death in Epilepsy), and provide support to those who have been affected by SUDEP.
Seizure Support Resources
Chelsea Hutchison Foundation:
This Foundation provide grants for seizure-response dogs and epilepsy monitors for those in need, educate the public about SUDEP (Sudden Unexpected Death in Epilepsy), and provide support to those who have been affected by SUDEP.
Service Dog Financial Assistance
Chelsea Hutchison Foundation:
This Foundation provide grants for seizure-response dogs and epilepsy monitors for those in need, educate the public about SUDEP (Sudden Unexpected Death in Epilepsy), and provide support to those who have been affected by SUDEP.
Seizure Support Resources
Child Neurologist New Visit Toolkit:
You can use the forms in this toolkit prior to your first visit with a neurologist or when visiting a new neurologist. We recommend you print this form out and bring it to the visit with you as well as keep an electronic or paper copy for yourself. It will be a valuable resource to track your child's journey and ensure the best quality of care. You can find the toolkit here.
Seizure Support Resources
Child Neurology Foundation Epilepsy Education Hub:
Healthy epilepsy management video series where each topic in this multi-part video series about healthy epilepsy management focuses on what we heard from partners and families in our community as a top priority. Some of the questions posed to our experts come directly from caregivers and parents who were given the chance to submit their questions prior to recording these videos.
Medical Air Travel Assistance
Children's Flight of Hope:
Providing air transportation for young patients and their families grants access to specialized medical care that might otherwise be out of reach, which in turn encourages faster and safer recoveries.
International Organizations
Children's Wish Foundation International grants wishes to children with advanced illness who are under the age of 18. Children under the age of three can participate in the organization's Young Minds program, which provides children younger than 4 or those with a cognitive age younger than 4, a gift from a variety of choices.
Wish Fulfillment
Children's Wish Foundation International grants wishes to children with advanced illness who are under the age of 18. Children under the age of three can participate in the organization's Young Minds program, which provides children younger than 4 or those with a cognitive age younger than 4, a gift from a variety of choices.
General Family Support
Chimes: Chimes is a not-for-profit organization that assists people with intellectual and behavioral challenges to achieve their fullest potential.
Our vast array of services � educational, employment, vocational, residential, habilitative and behavioral health � are delivered through a network of national and international affiliates. This allows us to take a comprehensive, holistic approach to improving the lives of every person we serve � those who receive and those who reap the benefits of our innovative, responsive solutions.
International Organizations
Chimes: Chimes is a not-for-profit organization that assists people with intellectual and behavioral challenges to achieve their fullest potential.
Our vast array of services � educational, employment, vocational, residential, habilitative and behavioral health � are delivered through a network of national and international affiliates. This allows us to take a comprehensive, holistic approach to improving the lives of every person we serve � those who receive and those who reap the benefits of our innovative, responsive solutions.
International Organizations
Chinese Organization for Rare Disorders:
Provides similar services as GARD only they will know more about the resources and medical specialists available in China. You may call 010-67500717 or visit their website for assistance.
Car Modification Financial Assistance
Chive Charities:
Chive Charities is committed to championing the underdogs. Targeting three specific causes: rare medical diagnoses, first responders and veterans, we spread awareness through sharing the personal stories of grit, courage, and perseverance. What sort of help does Chive Charities provide to recipients? Therapy equipment & sessions not covered by insurance, Handicap accessible home & car modifications, Mobility items, Purchasing of developmental & learning devices, other medical needs as recommended by a medical professional.
Apply for a Chive Charities Grant � Chive Charities
Home Modifications Financial Assistance
Chive Charities:
Chive Charities is committed to championing the underdogs. Targeting three specific causes: rare medical diagnoses, first responders and veterans, we spread awareness through sharing the personal stories of grit, courage, and perseverance. What sort of help does Chive Charities provide to recipients? Therapy equipment & sessions not covered by insurance, Handicap accessible home & car modifications, Mobility items, Purchasing of developmental & learning devices, other medical needs as recommended by a medical professional.
Apply for a Chive Charities Grant � Chive Charities
Medical Financial Assistance
Chive Charities:
Chive Charities is committed to championing the underdogs. Targeting three specific causes: rare medical diagnoses, first responders and veterans, we spread awareness through sharing the personal stories of grit, courage, and perseverance. What sort of help does Chive Charities provide to recipients? Therapy equipment & sessions not covered by insurance, Handicap accessible home & car modifications, Mobility items, Purchasing of developmental & learning devices, other medical needs as recommended by a medical professional.
Apply for a Chive Charities Grant � Chive Charities
Equipment Financial Assistance
Chive Charities:
Chive Charities is committed to championing the underdogs. Targeting three specific causes: rare medical diagnoses, first responders and veterans, we spread awareness through sharing the personal stories of grit, courage, and perseverance. What sort of help does Chive Charities provide to recipients? Therapy equipment & sessions not covered by insurance, Handicap accessible home & car modifications, Mobility items, Purchasing of developmental & learning devices, other medical needs as recommended by a medical professional.
Apply for a Chive Charities Grant � Chive Charities
Medical Financial Assistance
Chive Charities:
Chive Charities is committed to championing the underdogs. Targeting three specific causes: rare medical diagnoses, first responders and veterans, we spread awareness through sharing the personal stories of grit, courage, and perseverance. What sort of help does Chive Charities provide to recipients? Therapy equipment & sessions not covered by insurance, Handicap accessible home & car modifications, Mobility items, Purchasing of developmental & learning devices, other medical needs as recommended by a medical professional.
Apply for a Chive Charities Grant � Chive Charities
Care Coordination
CNF Care Coordination: care coordination means that everyone involved in caring for your child can effectively communicate and share updates, goals, and concerns so that your child's care can be maintained efficiently and effectively. Education and Resources
Crisis Support
Crisis Text Line:
Offers support for any crisis via text, 24 hours a day/7 days a week. You can text HOME to 741741 from anywhere in the United States, anytime. A live, trained Crisis Counselor receives the text and responds, all from a secure online platform.
Adaptive Beds
Cyr Designs, LLC:
The Courtney Bed is an alternative to a standard hospital bed and is hand-crafted from solid hardwood, there is no metal, PVC or any other material used in fabrication.
Seizure Support Resources
Danny Did Foundation DEVICES & TECHNOLOGY : While no device has been proven to prevent epilepsy-related mortality (including SUDEP), the Danny Did Foundation has developed a list of seizure detection and seizure prediction devices � as well as other technologies � that are designed to enable intervention by a caregiver. Intervention is believed to reduce the risks that accompany epilepsy. We present these products for further review and investigation by anyone connected to seizure disorders.
Seizure Devices Financial Assistance
Danny Did Grant Program:
While no device has been proven to prevent epilepsy-related mortality (including SUDEP), the Danny Did Foundation (DDF) is devoted to seeking out seizure detection and seizure prediction devices � as well as other technologies � that are designed to enable intervention by a caregiver. Intervention is believed to reduce the risks that accompany epilepsy. If you are seeking funds to help with the cost of a device, review and research the products at Danny Did and then complete the application
Seizure Support Resources
Danny Did Resources:
The Danny Did Foundation is dedicated to its mission to prevent deaths caused by seizures.
Special Eduction Recreation Activity
Darby's Dancers:
Darby's Dancers is a 501(c)(3) organization dedicated to providing dance classes to children with special needs at no cost to their parents. With locations across the US, Darby's Dancers learn all types of dance in a fun, encouraging atmosphere. Dancers in the program gain confidence, coordination, strength and lifelong friends, all while feeling like a star. DD also provides volunteer opportunities for teens. Our youth volunteers learn important lessons in responsibility and friendship by providing one-on-one assistance to each of Darby's dancers.
Wish Fulfillment
Deliver the Dream:
Deliver the Dream provides families living with an advanced illness, whether the illness involves a child or a parent, the chance to enjoy a 3-day retreat.
Wish Fulfillment
Deliver the Dream:
Deliver the Dream provides families living with an advanced illness, whether the illness involves a child or a parent, the chance to enjoy a 3-day retreat.
Wish Fulfillment
Deliver the Dream:
Deliver the Dream provides families living with an advanced illness, whether the illness involves a child or a parent, the chance to enjoy a 3-day retreat."
Equipment Financial Assistance
Different Needz Foundation:
The Different Needz Foundation helps individuals with developmental disabilities obtain the necessary equipment and medical services they need to have the best quality of life. Grant applications are made available in January of each year with grant decisions announced to award recipients in May. The Foundation considers future needs and provides payment for medical services or equipment directly to the provider.
Medical Financial Assistance
Different Needz Foundation:
The Different Needz Foundation helps individuals with developmental disabilities obtain the necessary equipment and medical services they need to have the best quality of life. Grant applications are made available in January of each year with grant decisions announced to award recipients in May. The Foundation considers future needs and provides payment for medical services or equipment directly to the provider.
Equipment Financial Assistance
Digital Access Program: Bridging The Divide By Getting Families Online
Child Neurology Foundation is re-launching a program to give at least 50 families, with at least one child living with a neurologic condition, a refurbished Chromebook, and if applicable, a hotspot with 23GB of data a month for one year from acceptance.
Disability Advocacy
Disability Rights Legal Center (DRLC) is a 501C-3 non-profit, public interest advocacy organization that champions the civil rights of people with disabilities as well as those affected by cancer.
Legal Assistance
Disability Rights Legal Center (DRLC) is a 501C-3 non-profit, public interest advocacy organization that champions the civil rights of people with disabilities as well as those affected by cancer.
Resource Directory
Disabilty Resources
Governmental Advocacy/Internalional
Disabled Peoples' International is a network of national organizations or assemblies of disabled people, established to promote human rights of disabled people through full participation and the equalization of opportunity and development.
Seizure Support Resources
Drop Supports:
Drop Support harness is a unique, upper body harness that wraps around the user's waist, chest and torso, with an attached central handle running the length of the torso. The support handle is a point of contact between the user of the harness and the person assisting the user ("assistant").
Financial Planning
Dup15q Alliance Financial Planning: All parents worry about their children's futures. But for parents of children with dup15q syndrome, the worry can be even bigger. Mapping out your child's financial future can seem daunting but having a plan can help ease your fears. A special needs trust is a legal arrangement that allows a disabled or chronically ill person to have access to funds without reducing their eligibility for the public assistance disability benefits such as Supplemental Security Income, Medicare, or Medicaid. Dup15q Alliance is proud to announce we are partnering with Tyler and Maderer Law Firm to offer a specialized Help Ticket program for Special Needs Trusts
Future Planning
Dup15q Alliance Financial Planning: All parents worry about their children's futures. But for parents of children with dup15q syndrome, the worry can be even bigger. Mapping out your child's financial future can seem daunting but having a plan can help ease your fears. A special needs trust is a legal arrangement that allows a disabled or chronically ill person to have access to funds without reducing their eligibility for the public assistance disability benefits such as Supplemental Security Income, Medicare, or Medicaid. Dup15q Alliance is proud to announce we are partnering with Tyler and Maderer Law Firm to offer a specialized Help Ticket program for Special Needs Trusts
Financial Planning
Dup15q Alliance Financial Planning: All parents worry about their children's futures. But for parents of children with dup15q syndrome, the worry can be even bigger. Mapping out your child's financial future can seem daunting but having a plan can help ease your fears. Dup15q Alliance is proud to announce we are partnering with Tyler and Maderer Law Firm to offer a specialized Help Ticket program for Social Security
General Family Support
Easter Seals
Provides services and support for adults and children with special needs as well as help to their families.
Resource Directory
eParent Special Needs Resource Directory:
eParent Special Needs Resource Directory provides a comprehensive guide for parents and families of children with chronic health issues, disabilities and special needs, as well as to physicians, allied health care professionals and educational professionals who are involved in their care and development. This directory is designed to assist in your search for helpful information and resources for every situation.
Seizure Support Resources
Epilepsy & Seizures 24/7 Helpline
The Epilepsy Foundation offers a 24/7 Epilepsy & Seizures Helpline with trained information specialists available to answer your questions, provide support, and direct you to local or national resources. There are several convenient ways for you to reach the Helpline when you have a question. You can call 1-800-332-1000 to speak with someone in English, or you can call 1-866-748-8008 to speak to someone in Spanish. We answer calls 24 hours a day, 7 days a week
Seizure Support Resources
Epilepsy Centers
For many people living with epilepsy, regular visits to their neurologist are enough for treatment of their seizures. However, if your loved one has trouble controlling their seizures, an epilepsy center can provide special care that other doctors may not be able to provide. Epilepsy centers have experts in the diagnosis, evaluation, and treatment of epilepsy.
Sibling Support
Epilepsy Foundation Kids Crew:
At the Kids Crew, we want you to use your imagination and think creatively. We know kids have unique gifts that can be used to give back to others under the three areas on which we focus. We want you to take it upon yourself to come up with ideas that can impact your community based on what you have experienced. Doing so allows for teamwork, helps you learn more about epilepsy, and gives you confidence. Our belief is that you can use your talents to give back to others and to make a real difference. The program is free to join and is for kids ages 14 and under of all abilities. If you don't have epilepsy, we still want you to join. Often, siblings, friends, and relatives of those with epilepsy are the best advocates. We are looking for those who want to learn, spread awareness, and make a difference. And have fun, too!!
Seizure Support Resources
Epilepsy in the African American Community
Seizure Support Resources
Epilepsy Toolkits:
Resources created by The Epilepsy Learning Healthcare System (ELHS) on medication cost, taking medication, and side effects of medications.
Imagine building a learning health system in which all people � family and community members, clinicians, researchers and health system leaders � work together. They design, implement, and share the results of collaborative research and quality improvement efforts. And this work leads to better health outcomes and increased quality, experience, and value in care. A learning health system approach can dramatically accelerate the ability to generate new knowledge and put it into practice.
Travel Resources
eSpecial Needs Car Seats & Seatbelt Guards:
Finding the right car seat for a special needs child can be a challenge with certain medical conditions or behavior problems that lead a child to repeatedly unbuckle a car seat's harness straps. All of our car seats comply with Federal Motor Vehicle Safety Standards that require all special needs car seats to meet FMVSS 213 for Child Restraint Systems.
Adaptive Gear and Items
eSpecial Needs Car Seats & Seatbelt Guards:
Finding the right car seat for a special needs child can be a challenge with certain medical conditions or behavior problems that lead a child to repeatedly unbuckle a car seat's harness straps. All of our car seats comply with Federal Motor Vehicle Safety Standards that require all special needs car seats to meet FMVSS 213 for Child Restraint Systems.
Adaptive Swim
eSpecial Needs:
There are a variety of special needs swimming products for children and adults with sensory processing disorders or developmental delays. You can find buoyancy belts, stabilizer bars, floating comfort mats, swim diapers, and more for different age groups. These items are specifically designed for special needs swimming classes and adaptive swim lessons. All are safe, durable, and designed to assist individuals with special needs.
International Organizations
Eurordis Rare disease help line:
Rare disease help lines offer social, psychological and information solutions to all of these needs. Contact the help line in your country to find out more information about therapeutic recreation, respite care and adapted housing.
Feeding Tube Assistance
Feeding Tube Awareness Foundation:
Provide free feeding g-tubes belts and pads to any child that requires one.
Adaptive Gear and Items
FireFly Friends:
Firefly Friends acts as a leading light in the research, design, and development of postural care solutions for children with special needs. The Firefly range of products is inspired by �special needs family participation. Explore our range of products for kids with special needs aged 1-16 years. Products range from adaptive seats, bath seats, pushchairs, mobility devices, playpaks and more.
Medical Air Travel Assistance
Footprints In The Sky:
FOOTPRINTS IN THE SKY is a Denver-based 501(c)(3) non-profit corporation dedicated to providing FREE FLIGHTS for patients to medical facilities throughout the United States using mainly donated charter and corporate jets. Those who seek our help are typically in need of routine, critical or life-saving care and cannot use commercial airline service or other means of transportation because of financial constraints and medical issues.
Diapers Financial Assistance
FREE Diapers and Pull-Ups Through Medicaid for Children with Special Needs
While some children may be potty trained by the time they are three years old, others may struggle with urinary incontinence, or lack of bladder control, until they are older. Children covered by Medicaid may be able to receive diapers, pull-ups, and other incontinence supplies at no cost through their Medicaid benefits. CHECK YOUR CHILD'S ELIGIBILITY >
Diapers Financial Assistance
FREE Diapers and Pull-Ups Through Medicaid for Children with Special Needs:
While some children may be potty trained by the time they are three years old, others may struggle with urinary incontinence, or lack of bladder control, until they are older. Children covered by Medicaid may be able to receive diapers, pull-ups, and other incontinence supplies at no cost through their Medicaid benefits.
International Organizations
Genetic Alliance UK, Rare Disease UK, & SWAN:
Provides similar services as GARD only this alliance of three organization will know more about the resources and medical specialists available in the United Kingdom. SWAN is focused on supporting those who are undiagnosed. You may call 0300 124 0441or visit their website for assistance.
International Organizations
Genetic and Rare Disease Information Specialists: Patients, family members, and caregivers may contact GARD by phone or our contact form. Our Information Specialists provide personalized responses that are easy to understand, free of charge, and confidential.
GARD Information Specialists can help find information about: Rare diseases, Finding specialists, Patient organizations, Organizations that may provide financial, disability, or travel support, Clinical studies, International rare disease organizations, Support for caregivers, Resources for people who suspect they have an undiagnosed rare disease
International Organizations
German Alliance for Rare Diseases (Allianz Chronischer Seltener Erkrankungen):
Provides similar services as GARD only they will know more about the resources and medical specialists available in Germany. You may call +49-30-3300708-0 or visit their website for assistance.
Wish Fulfillment
Give Kids the World: Give Kids the World is a nonprofit resort in Central Florida that provides weeklong, cost-free vacations to children with life-threatening illnesses and their families. A child must be sponsored by one of more than 250 wish-granting organizations in the country or a children's hospital affiliated with Give Kids the World.
Equipment Financial Assistance
Giving Angels Foundation:
Enhance the daily functioning of a child with special needs from a low income family by awarding grants for essential therapies*, life-changing equipment, essential family bills and specialized camps.
General Financial Assistance
Giving Angels Foundation:
Enhance the daily functioning of a child with special needs from a low income family by awarding grants for essential therapies*, life-changing equipment, essential family bills and specialized camps.
Medical Financial Assistance
Giving Angels Foundation:
Enhance the daily functioning of a child with special needs from a low income family by awarding grants for essential therapies*, life-changing equipment, essential family bills and specialized camps.
Financial Assistance
Giving Angels Foundation:
Our mission is to enhance the daily functioning of a child with a physical disability from a lower income family by awarding grants for life-changing equipment, medical supplies, essential family bills, specialized camps, and therapeutic toys. We classify special needs as those children under the age of 21 with any type of physical disability. $500 maximum one-time grant allowance per recipient family. $50,000 maximum annual income threshold. For more information, click here.
General Family Support
Global Genes: RARE Concierge � Patient Services.
Patient Services Guides know that living with a rare disease is challenging, frustrating, and exhausting. We are here to assist on your rare disease journey! We can help connect you to trusted information and resources about: Identifying clinical trials/research studies, Offering disability, financial, and mental health resources, Finding a doctor, specialist, or center of excellence, Locating genetic counseling services,
Genetic Counseling
Global Genes: RARE Concierge � Patient Services.
Patient Services Guides know that living with a rare disease is challenging, frustrating, and exhausting. We are here to assist on your rare disease journey! We can help connect you to trusted information and resources about: Identifying clinical trials/research studies, Offering disability, financial, and mental health resources, Finding a doctor, specialist, or center of excellence, Locating genetic counseling services,
Resource Directory
Global Genes: RARE Concierge � Patient Services.
Patient Services Guides know that living with a rare disease is challenging, frustrating, and exhausting. We are here to assist on your rare disease journey! We can help connect you to trusted information and resources about: Identifying clinical trials/research studies, Offering disability, financial, and mental health resources, Finding a doctor, specialist, or center of excellence, Locating genetic counseling services,
Medical Financial Assistance
Good Days Foundation: Good Days is dedicated to supporting those with life-altering conditions, from chronic to terminal. We do so in part by helping patients pay for what insurance won't�costly, but disease-specific drugs and treatments, the very drugs and treatments that can extend life and alleviate suffering.
Perscription Financial Assistance
Good Days Foundation: Good Days is dedicated to supporting those with life-altering conditions, from chronic to terminal. We do so in part by helping patients pay for what insurance won't�costly, but disease-specific drugs and treatments, the very drugs and treatments that can extend life and alleviate suffering.
Medical Financial Assistance
Good Rx:
Prescription drug prices are not regulated. The cost of a prescription may differ by more than $100 between pharmacies across the street from each other! Insurance isn't helping like it used to. In the past 10 years, insurance companies have passed 25-80% more of the cost of drugs onto patients. GoodRx gathers current prices and discounts to help you find the lowest-cost pharmacy for your prescriptions. The average GoodRx customer saves $276 a year on their prescriptions. GoodRx is 100% free. No personal information is required.
Perscription Financial Assistance
Good Rx:
Prescription drug prices are not regulated. The cost of a prescription may differ by more than $100 between pharmacies across the street from each other! Insurance isn't helping like it used to. In the past 10 years, insurance companies have passed 25-80% more of the cost of drugs onto patients. GoodRx gathers current prices and discounts to help you find the lowest-cost pharmacy for your prescriptions. The average GoodRx customer saves $276 a year on their prescriptions. GoodRx is 100% free. No personal information is required.
General Financial Assistance
Hannah and Friends:
(Regional � Indiana, the Michiana area, New York, Rhode Island, and Florida.) Provide quality of life grants for families with individuals with developmental disabilities.
Medical Financial Assistance
HealthWell Foundation:
Helping the underinsured afford critical medical treatments � because no one should go without essential care.
When health insurance is not enough, we're here to help � with copays, premiums, deductibles and out-of-pocket expenses for supplies, supplements, surgeries and more. We offer financial assistance through a number of Disease Funds, with new funds opening every year, so you can get the care you need.
Perscription Financial Assistance
Heathwell Foundation:
The HealthWell Foundation is a leading non-profit dedicated to improving access to care for America's underinsured. When health insurance is not enough, we fill the gap by assisting with copays, premiums, deductibles and out-of-pocket expenses. Provide financial assistance to help with: Prescription copays, Health insurance premiums, deductibles and coinsurance, Pediatric treatment costs, and travel costs.
Medical Financial Assistance
Heathwell Foundation:
The HealthWell Foundation is a leading non-profit dedicated to improving access to care for America's underinsured. When health insurance is not enough, we fill the gap by assisting with copays, premiums, deductibles and out-of-pocket expenses. Provide financial assistance to help with: Prescription copays, Health insurance premiums, deductibles and coinsurance, Pediatric treatment costs, and travel costs.
Medical Travel Financial Assistance
Heathwell Foundation:
The HealthWell Foundation is a leading non-profit dedicated to improving access to care for America's underinsured. When health insurance is not enough, we fill the gap by assisting with copays, premiums, deductibles and out-of-pocket expenses. Provide financial assistance to help with: Prescription copays, Health insurance premiums, deductibles and coinsurance, Pediatric treatment costs, and travel costs.
General Family Support
Hope Kids
We focus on five research-driven impact areas to ease the journey for families who are walking through the hardest time in their lives: hope and anticipation, family focus, community and support, safety and acceptance, economic support.
Wish Fulfillment
Hope Kids:
Hope Kids hosts regular events and activities that help restore hope for the future. Hope Kids also provides a support community for children with advanced illnesses and their families.
Health Insurance Resources
How to Make Your Health Insurance Work for You:
Now that you are all signed up for your insurance plan, learn how to navigate it! NORD hosted a webinar to aid rare disease patients and caregivers in learning how to make their health insurance work for them. The webinar recording here covers how insurance works, an overview on the approval process and tips on how to successfully reverse a denial. To learn more, click here.
Special Needs Dental Care
Humanitarian Foundation: The Grottoes of North America Humanitarian Foundation is a 501 (c) (3) nonprofit organization that brings "Special Smiles" to children with special needs by providing them much-needed dental care.
Genetic Testing
iHope: The iHope Program is a philanthropic initiative launched by Illumina to make clinical whole-genome sequencing (cWGS) accessible to underserved children facing rare and undiagnosed genetic diseases (RUGD). It operates through the Illumina Clinical Services Laboratory (ICSL) in San Diego, California.
International Organizations
Indian Organization for Rare Diseases:
Provides similar services as GARD only they will know more about the resources and medical specialists available in India. You may call +91-9666438880 or visit their website for assistance.
Medical Waivers
Insurance Guide: A State-by-State Resource for Insurance and Waiver Support
Our friends at Angelman Syndrome Foundation have put together a comprehensive guide to help families navigate the insurance process in their state. Each state has various options of Medicaid and Waivers, which can seem overwhelming and difficult. Our hope is that you find this guide useful and helpful as you try to advocate for your individual with Angelman syndrome. Please note that Waiver wait times, websites, personal and funding can change regularly depending on the state and the agency that oversees Medicaid and various programs.
Medical Financial Assistance
Insurance Guide: A State-by-State Resource for Insurance and Waiver Support
Our friends at Angelman Syndrome Foundation have put together a comprehensive guide to help families navigate the insurance process in their state. Each state has various options of Medicaid and Waivers, which can seem overwhelming and difficult. Our hope is that you find this guide useful and helpful as you try to advocate for your individual with Angelman syndrome. Please note that Waiver wait times, websites, personal and funding can change regularly depending on the state and the agency that oversees Medicaid and various programs.
Health Insurance Resources
Insurance Guide: A State-by-State Resource for Insurance and Waiver Support
Our friends at Angelman Syndrome Foundation have put together a comprehensive guide to help families navigate the insurance process in their state. Each state has various options of Medicaid and Waivers, which can seem overwhelming and difficult. Our hope is that you find this guide useful and helpful as you try to advocate for your individual with Angelman syndrome. Please note that Waiver wait times, websites, personal and funding can change regularly depending on the state and the agency that oversees Medicaid and various programs.
Medical Waivers
Insurance Guide: A State-by-State Resource for Insurance and Waiver Support
Our friends at Angelman Syndrome Foundation have put together a comprehensive guide to help families navigate the insurance process in their state. Each state has various options of Medicaid and Waivers, which can seem overwhelming and difficult. Our hope is that you find this guide useful and helpful as you try to advocate for your individual with Angelman syndrome. Please note that Waiver wait times, websites, personal and funding can change regularly depending on the state and the agency that oversees Medicaid and various programs.
International Organizations
Italian Federation for Rare Diseases (Federazione Italiana Malattie Rare):
Provides similar services as GARD only they will know more about the resources and medical specialists available in Italy. You may call 06 4404773 or visit their website for assistance.
Wish Fulfillment
Jason's Dream:
Jason's Dream for Kids grants wishes to children diagnosed with advanced disease living in New Jersey. The organization relies on medical professionals and parents for referrals and determines medical eligibility by speaking with the health care team.
Medical Financial Assistance
Josh Provides Epilepsy Assistance Foundation
Program provides financial assistance to individuals affected by epilepsy or other seizure disorders. Financial assistance for medical services, seizure alert and detection devices, seizure response dogs, and transportation and travel.
Seizure Devices Financial Assistance
Josh Provides Epilepsy Assistance Foundation
Program provides financial assistance to individuals affected by epilepsy or other seizure disorders. Financial assistance for medical services, seizure alert and detection devices, seizure response dogs, and transportation and travel.
Service Dog Financial Assistance
Josh Provides Epilepsy Assistance Foundation
Program provides financial assistance to individuals affected by epilepsy or other seizure disorders. Financial assistance for medical services, seizure alert and detection devices, seizure response dogs, and transportation and travel.
Adaptive Clothing
Jumpin Jammerz:
Youth to Adult Adult size footed pajamas.
Adult Clothing
Jumpin Jammerz:
Youth to Adult Adult size footed pajamas.
Seizure Response Dogs
K94Life:
Service Dogs provide greater independence, joy, fulfillment, confidence, security, and love. Our service dogs are trained to help individuals who have a wide range of disabilities. CPL trains service dogs to assist individuals who have mobility impairments, balance disorders, difficulty using their hands/arms, health-related fatigue issues, people with seizure/cardiac syncope and diabetes/ blood pressure disorders.
Service Dogs
K94Life:
Service Dogs provide greater independence, joy, fulfillment, confidence, security, and love. Our service dogs are trained to help individuals who have a wide range of disabilities. CPL trains service dogs to assist individuals who have mobility impairments, balance disorders, difficulty using their hands/arms, health-related fatigue issues, people with seizure/cardiac syncope and diabetes/ blood pressure disorders.
General Financial Assistance
Keep Swimming Foundation:
Keep Swimming Foundation is a nonprofit organization that provides financial relief to families of critically ill patients who require extended inpatient medical care at an accredited USA hospital. While health insurance provides support for medical costs, families faced with extended inpatient care typically shoulder the burden of the external costs associated with visiting and caring for their loved one. Because of this need, Keep Swimming Foundation was born. Expenses Covered: Hotel Rooms, Bedside Meals, Parking, Public Transportation, Gasoline, Rent and Mortgage Payments.
General Financial Assistance
Keep Swimming Foundation:
Assistance paying for expenses related to medical hardship � mortgage assistance, hotel for families with loved ones who are in a hospital, and more.
General Financial Assistance
Kelly Anne Dolan Memorial Fund
Children being referred for assistance must reside or be treated in Pennsylvania, New Jersey, or Delaware. Families may not apply to the Fund directly. Referrals must be made by a healthcare professional (for example, a social worker, case manager, nurse, doctor, or therapist). Kelly Anne Dolan Memorial Fund provides assistance with expenses not covered by insurance, such as:
Utility and phone bills
Mortgage/Rent
Car payments
Transportation costs
Disability needs
Air conditioners for children with severe pulmonary, cardiac, skin, liver, and kidney diseases
Medically necessary dietary supplements, special foods, and formulas
Co-pays
Child care
Funeral expenses
Medical Financial Assistance
Kelly Anne Dolan Memorial Fund
Children being referred for assistance must reside or be treated in Pennsylvania, New Jersey, or Delaware. Families may not apply to the Fund directly. Referrals must be made by a healthcare professional (for example, a social worker, case manager, nurse, doctor, or therapist). Kelly Anne Dolan Memorial Fund provides assistance with expenses not covered by insurance, such as:
Utility and phone bills
Mortgage/Rent
Car payments
Transportation costs
Disability needs
Air conditioners for children with severe pulmonary, cardiac, skin, liver, and kidney diseases
Medically necessary dietary supplements, special foods, and formulas
Co-pays
Child care
Funeral expenses
Medical Travel Financial Assistance
Kelly Anne Dolan Memorial Fund
Children being referred for assistance must reside or be treated in Pennsylvania, New Jersey, or Delaware. Families may not apply to the Fund directly. Referrals must be made by a healthcare professional (for example, a social worker, case manager, nurse, doctor, or therapist). Kelly Anne Dolan Memorial Fund provides assistance with expenses not covered by insurance, such as:
Utility and phone bills
Mortgage/Rent
Car payments
Transportation costs
Disability needs
Air conditioners for children with severe pulmonary, cardiac, skin, liver, and kidney diseases
Medically necessary dietary supplements, special foods, and formulas
Co-pays
Child care
Funeral expenses
Medical Financial Assistance
Kiddos Clubhouse Foundation:
Kiddos Clubhouse Foundations mission is to better shape lives for children with special needs. Kiddos' Clubhouse Foundation provides therapy scholarships to help families pay for critical therapies. Through partnerships and generous support from corporate and private donors, grants, and charitable events, we are able to relieve financial burdens and help families regain hope for their children.
Medical Financial Assistance
Kiddos' Clubhouse Foundation
Kiddos' Clubhouse Foundation works to make sure children with emotional and developmental challenges get access to therapies that they need. Funds are raised through charitable events, donations, and grants and offered directly to recipients.
Medical Financial Assistance
Kiddos' Clubhouse Foundation:
Kiddos' Clubhouse Foundation provides therapy scholarships to help families pay for critical therapies. Through partnerships and generous support from corporate and private donors, grants, and charitable events, we are able to relieve financial burdens and help families regain hope for their children.
Equipment Financial Assistance
Kids Mobility Network:
Kids Mobility Network is a 501(c)3 non-profit organization providing children with disabilities with complex rehab technology and durable medical equipment such as wheelchairs, walkers and other medical equipment. We operate our organization with caring and integrity.
Equipment Financial Assistance
Kids Mobility Network:
Kids Mobility Network is a 501(c)3 non-profit organization providing children with disabilities with durable medical equipment such as wheelchairs, walkers and other medical equipment.
Medical Waivers
Kids Waivers:
Kids' Waivers is a compilation of information about Medicaid waivers, Katie Beckett or TEFRA programs, and other programs for children with disabilities or medical needs. This website is the product of years of ongoing research on these programs. To learn more about specific programs, you can compare states and obtain basic information using our sortable full list of programs. We also have more detailed pages for each state, which can be accessed by clickable map or text links. Please note that Kids' Waivers does not operate any of these waiver programs, and we cannot place your child in a program, verify your child's application, or verify any details about your child's current program. We can only point you toward the programs that are available in your state.
Medical Financial Assistance
Kids Waivers:
Kids' Waivers is a compilation of information about Medicaid waivers, Katie Beckett or TEFRA programs, and other programs for children with disabilities or medical needs. This website is the product of years of ongoing research on these programs. To learn more about specific programs, you can compare states and obtain basic information using our sortable full list of programs. We also have more detailed pages for each state, which can be accessed by clickable map or text links. Please note that Kids' Waivers does not operate any of these waiver programs, and we cannot place your child in a program, verify your child's application, or verify any details about your child's current program. We can only point you toward the programs that are available in your state.
Medical Waivers
Kids Waivers:
Kids' Waivers is a compilation of information about Medicaid waivers, Katie Beckett or TEFRA programs, and other programs for children with disabilities or medical needs. This website is the product of years of ongoing research on these programs. To learn more about specific programs, you can compare states and obtain basic information using our sortable full list of programs. We also have more detailed pages for each state, which can be accessed by clickable map or text links. Please note that Kids' Waivers does not operate any of these waiver programs, and we cannot place your child in a program, verify your child's application, or verify any details about your child's current program. We can only point you toward the programs that are available in your state.
Wish Fulfillment
Kids Wish Network:
Kids Wish Network grants wishes for children who are between the ages of 3 and 18 and have a life-threatening medical condition. Anyone can refer a child, including a family member, friend, nurse, doctor, or social worker.
General Financial Assistance
KNOW Autism:
The Tuition & Therapy Assistance Program offers scholarships ranging from $1,000 to $5,000 to help ease the financial burden of therapeutic treatments and intervention for autism. To be eligible, the child must be between the ages of 12 months and 18 years of age and must have already received a clinical diagnosis of Autism Spectrum Disorder. These awards may be used for behavioral intervention programs, occupational therapy, speech therapy, social skills groups, special needs schools, and/or special education programs.
Wish Fulfillment
KultureCity:
Making the nevers possible. We are the nation's leading nonprofit on sensory accessibility and acceptance for those with invisible disabilities.
Equipment Financial Assistance
Kya's Krusade: Provides funding for adaptive equipment or therapy not covered by insurance for families with children with special needs.
Medical Financial Assistance
Kya's Krusade: Provides funding for adaptive equipment or therapy not covered by insurance for families with children with special needs.
Life Services helps families plan for the time when they will no longer be here to care for their loved-one and provides direct services to disabled people whose families have left assets for their care.
Medical Air Travel Assistance
LifeLine Pilots:
LifeLine Pilots facilitates FREE transportation for such medical needs as on-going medical treatments, diagnosis and follow-up care.
Adaptive Clothing
Little Keeper Sleepers:
A sleeper that is easy for caregivers to get on and off, but not one the children can get out of. Children stay warm at night and ensure no mess to clean in their beds in the middle of the night or come morning. Size 18 months to size 20
Adult Clothing
Little Keeper Sleepers:
A sleeper that is easy for caregivers to get on and off, but not one the children can get out of. Children stay warm at night and ensure no mess to clean in their beds in the middle of the night or come morning. Size 18 months to size 20
General Financial Assistance
Maggie Welby Foundation:
The Maggie Welby Foundation offers grants for children and families that have a financial need for a particular purpose. Grants may extend to children and families in need of help with bills, athletic opportunities, medical needs, or an opportunity that a child would not otherwise have.
Medical Financial Assistance
Maggie Welby Foundation:
The Maggie Welby Foundation offers grants for children and families that have a financial need for a particular purpose. Grants may extend to children and families in need of help with bills, athletic opportunities, medical needs, or an opportunity that a child would not otherwise have.
Equipment Financial Assistance
Magic Wheelchair: Magic Wheelchair is a nonprofit organization that builds epic costumes for kiddos in wheelchairs � at no cost to families.
Wish Fulfillment
Make A Wish Foundation: Make-A-Wish has granted hundreds of thousands of life-changing wishes to children battling critical illnesses.
Wish Fulfillment
Make-a-Wish Foundation:
Make-a-Wish Foundation grants wishes to children between 2 � and 18 years old with life-threatening medical conditions. The organization accepts referrals from health care professionals and parents, and children can even nominate themselves.
Equipment Financial Assistance
McLindon Family Foundation: Provides adaptive bikes to families of children with special needs.
Perscription Financial Assistance
Medicine Assistance Tool:
PhRMA's Medicine Assistance Tool (MAT is a search engine designed to help patients, caregivers and health care providers learn more about the resources available through the various biopharmaceutical industry programs. MAT is not its own patient assistance program, but rather a search engine for many of the patient assistance resources that the biopharmaceutical industry offers.)
Medical Travel Assistance
Mercy Medical Angels:
Mercy Medical Angels provides FREE transportation nationwide to and from medical care on the ground with gas cards, bus and train tickets and in the air through commercial airlines and volunteer pilots.
Medical Air Travel Assistance
Miracle Flights:
Miracle Flights provides children and their families free flights to distant, specialized care and valuable second opinions.
General Financial Assistance
Modest Needs:
Grants and financial assistance for families managing health crisis.
Respite Resources
Mother's Rest Respite Retreat
At A Mother's Rest, we believe that frequent, affordable respite is a key factor in keeping special needs parents and caregivers healthy. Ensuring the best care of disabled children and adults means ensuring the best care for their parents.
Equipment Financial Assistance
My Gym Challenged America: (MGCA) accepts applications from or on behalf of children with physical, cognitive or developmental disabilities and those coping with chronic illness. Requests, limited to gifts of $500 or less, may include but are not limited to: rehabilitative therapy, assistive devices, medical equipment and sensory items.
International Organizations
Nadir Hastaliklar AGI:
As the people who have rare diseases and their relatives, we united for the purpose of drawing attention to these unknown lifes in Turkey and the world. Furthermore, to generate practical, rational and, permanent solutions to this issur and apply them into real life.
Each disease has its own speciality. As a result, special care, therapeutiv approaches, medications, consumables, speciak nutriens and medical equipment are required. Due to this reason, our aim is to create a base for legal legislation, increase treatment opportunities and provide benefit for newly diagnosed individuals by proposing our suggested solutions via cooperating with health authorities.
Disability Employment Resources
National Organization on Disability:
The National Organization on Disability (NOD) increases employment opportunities for Americans with disabilities. Our programs and services enable companies to realize the competitive advantages of hiring people with disabilities.
Financial Assistance
Navigators:
Your hospital or provider might be able to provide access to financial navigators who are trained to provide guidance and direction toward resources to reduce the costs of care and medications. Ask your provider if they can put you in contact with a financial navigator.
Medical Travel Financial Assistance
Needy Meds:
Needy Meds is a nonprofit organization that lists programs that help people who cannot afford medications and healthcare costs. NeedyMeds has information about government programs, low-cost or free medical and dental clinics, and prescription assistance. NeedyMeds also has disease-specific financial aid programs. You can contact them directly at 800-503-6897.
Perscription Financial Assistance
Needy Meds:
Needy Meds is a nonprofit organization that lists programs that help people who cannot afford medications and healthcare costs. NeedyMeds has information about government programs, low-cost or free medical and dental clinics, and prescription assistance. NeedyMeds also has disease-specific financial aid programs. You can contact them directly at 800-503-6897.
Medical Financial Assistance
Needy Meds:
Needy Meds is a nonprofit organization that lists programs that help people who cannot afford medications and healthcare costs. NeedyMeds has information about government programs, low-cost or free medical and dental clinics, and prescription assistance. NeedyMeds also has disease-specific financial aid programs. You can contact them directly at 800-503-6897.
Medical Financial Assistance
Needy Meds: Needy Meds is a nonprofit organization that lists programs that help people who cannot afford medications and healthcare costs. NeedyMeds has information about government programs, low-cost or free medical and dental clinics, and prescription assistance. NeedyMeds also has disease-specific financial aid programs.
Perscription Financial Assistance
Needy Meds: Needy Meds is a nonprofit organization that lists programs that help people who cannot afford medications and healthcare costs. NeedyMeds has information about government programs, low-cost or free medical and dental clinics, and prescription assistance. NeedyMeds also has disease-specific financial aid programs.
Seizure Support Resources
Neurotech EEG - In-Home EEG
Information on in-home EEG services.
Disability Advocacy
New Horizons Un-Limited provides access to informational and technological tools to ensure that people with disabilities may have access to all that life has to offer. New Horizons Un-Limited is a non-profit disability advocacy organization that provides our disabled community members the information, tools and experiences that encourage lifelong learning and service so that we may all work together to create a more inclusive, accepting society.
Medical Financial Assistance
NiceRX: NiceRx assists eligible individuals access over 1,500 FDA-approved prescription medications, via manufacturer approved patient assistance programs (PAP), for a set price of $49.00 per month for each medication we are able to assist with. There are no upfront costs or hidden fees.
Perscription Financial Assistance
NiceRX: NiceRx assists eligible individuals access over 1,500 FDA-approved prescription medications, via manufacturer approved patient assistance programs (PAP), for a set price of $49.00 per month for each medication we are able to assist with. There are no upfront costs or hidden fees.
Health Insurance Resources
NORD � Protecting Rare Disease Patients: Principles for Health Care Reform
Before the Affordable Care Act (ACA) was enacted in 2010, rare disease patients could not access health care coverage due to various discriminatory insurance practices, limited Medicaid eligibility, and debilitating cost-sharing. While imperfect, the Affordable Care Act successfully reformed these practices by forbidding insurers from discriminating against rare disease patients, outlawing annual and lifetime caps, expanding Medicaid, closing the Medicare Part D donut hole, and more.
Respite Resources
NORD Offers Program Aimed at Providing Caregivers with Relief
The Respite Program provides financial assistance to enable the caregiver a break to attend a conference, event or simply have an afternoon or evening away from caregiving. Financial assistance will be granted up to $800 annually for those who qualify.
Medical Financial Assistance
NORD Rare Care Assistance Program:
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultations with disease specialists.
Medical Travel Assistance
NORD Rare Care Assistance Program:
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultations with disease specialists.
Perscription Financial Assistance
NORD Rare Care Assistance Program:
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultations with disease specialists.
Car Modification Financial Assistance
NOVA
Provides grants for accessible vans, wheelchair lifts, scooter or truck lifts, or car top carriers. The foundation will help with 25% of the cost with a cap of $5,000. aid is given based on financial need.
Equipment Financial Assistance
Open Wheelchair Foundation:
The Open Wheelchair Foundation is a collaborative group of people, working together to make a low cost, light weight, easy to build, and easy to operate, motorized pediatric wheelchair for small children who are in need.
Medical Travel Assistance
Operation Liftoff provides children with advanced illness three types of trips: dream trips for children with advanced illness, trips for medical treatment in other regions, and group trips to help teenagers with advanced illnesses leave the hospital and bond with peers. Parents and caregivers complete a form to request a trip. If a child does not qualify for treatment trip services, Operation Liftoff will provide alternative service information to families in need.
Wish Fulfillment
Operation Liftoff provides children with advanced illness three types of trips: dream trips for children with advanced illness, trips for medical treatment in other regions, and group trips to help teenagers with advanced illnesses leave the hospital and bond with peers. Parents and caregivers complete a form to request a trip. If a child does not qualify for treatment trip services, Operation Liftoff will provide alternative service information to families in need.
International Organizations
Organization for Rare Diseases India:
Provides similar services as GARD only they will know more about the resources and medical specialists available in India. You may call +91 8892-555-000 or visit their website for assistance.
International Organizations
Orphanet International Rare Disease Helplines:
Lists rare disease centers in different countries around the world that offer similar services to GARD. These rare disease centers will know the resources in their own countries better than GARD does. Orphanet is a consortium of 40 countries, within Europe and across the globe. Its mission is to gather and improve knowledge on rare diseases so as to improve the diagnosis, care, and treatment of patients with rare diseases.
Adaptive Clothing
Pajama City:
Youth to Adult size footed pajamas.
Adult Clothing
Pajama City:
Youth to Adult size footed pajamas.
General Family Support
Parent to Parent USA will support a network of viable, sustainable, fully-functioning and effective Parent to Parent programs in all 50�states through hands-on support, training and technical assistance, and high quality tools and resources. Our network's parent leadership and engaged membership will serve as strong advocates, provide robust mentoring opportunities, and develop the working partnerships with funders, service providers, and others needed to sustain and grow the program nationwide.
General Financial Assistance
Parker's Purpose Foundation:
Monetary assistance given to any family who has a minor (18 and under) with a life altering illness or disability that is in an immediate financial crisis due to unforeseen medical expenses. Families who live in Ohio will be first priority in providing assistance but will extend outside the state if deemed necessary.
Medical Air Travel Assistance
Patient Airlift Services:
Patient AirLift Services (PALS) arranges free air transportation for individuals requiring medical diagnosis, treatment or follow-up, for compassionate assistance.
Seizure Response Dogs
Paws with a Cause:
PAWS Seizure Response Dogs are custom-trained to assist people who have epilepsy with tasks such as activating a life-alert system, finding someone to help, retrieving a phone or stimulating a person during a seizure. As a person recovers from a seizure, a PAWS Dog can retrieve medications or food, act as a brace to help them up and provide comfort. PAWS Seizure Response Dogs are NOT trained to protect or predict seizure activity. However, after several years with a client, some may develop the ability to alert their owner of an oncoming seizure. This behavior is not guaranteed to develop, nor to be consistent if it does develop.
Service Dog Financial Assistance
Paws with a Cause:
PAWS Seizure Response Dogs are custom-trained to assist people who have epilepsy with tasks such as activating a life-alert system, finding someone to help, retrieving a phone or stimulating a person during a seizure. As a person recovers from a seizure, a PAWS Dog can retrieve medications or food, act as a brace to help them up and provide comfort. PAWS Seizure Response Dogs are NOT trained to protect or predict seizure activity. However, after several years with a client, some may develop the ability to alert their owner of an oncoming seizure. This behavior is not guaranteed to develop, nor to be consistent if it does develop.
Service Dogs
Paws with a Cause:
PAWS Seizure Response Dogs are custom-trained to assist people who have epilepsy with tasks such as activating a life-alert system, finding someone to help, retrieving a phone or stimulating a person during a seizure. As a person recovers from a seizure, a PAWS Dog can retrieve medications or food, act as a brace to help them up and provide comfort. PAWS Seizure Response Dogs are NOT trained to protect or predict seizure activity. However, after several years with a client, some may develop the ability to alert their owner of an oncoming seizure. This behavior is not guaranteed to develop, nor to be consistent if it does develop.
General Financial Assistance
Philadelphia Area, Fred's Footsteps
Provides direct financial assistance for non-medical expenses, such as household bills, to make up for gaps in income as well as one-time extraordinary expenses, like medical equipment or home modifications.
Adaptive Clothing
Pool Pal:
Special Needs & Aquatic Therapy including reusable diapers, swimwear and flotation devices. The Special Needs products where added as a result of parents and adults calling in requesting a suit that would fit their handicapped child or themselves. The line has been a great success with children and adults with special needs.
Adaptive Swim
Pool Pal:
Special Needs & Aquatic Therapy including reusable diapers, swimwear and flotation devices. The Special Needs products where added as a result of parents and adults calling in requesting a suit that would fit their handicapped child or themselves. The line has been a great success with children and adults with special needs.
Adult Clothing
Pool Pal:
Special Needs & Aquatic Therapy including reusable diapers, swimwear and flotation devices. The Special Needs products where added as a result of parents and adults calling in requesting a suit that would fit their handicapped child or themselves. The line has been a great success with children and adults with special needs.
Diapers
Pool Pal:
Special Needs & Aquatic Therapy including reusable diapers, swimwear and flotation devices. The Special Needs products where added as a result of parents and adults calling in requesting a suit that would fit their handicapped child or themselves. The line has been a great success with children and adults with special needs.
Adaptive Beds
Privacy Pop:
THE BED TENT FOR BETTER SLEEP The seclusion solution for naptime, bedtime, playtime and alone time
Genetic Testing
Probably Genetic:
Free testing program applies to all people in the US (except New York) with symptoms suggestive of pediatric seizure disorders. People affected by these conditions may present with seizures, developmental delays, and abnormal muscle movements. Patients who submit to the program are reviewed on a case by case basis to determine their eligibility for a free genetic test.
Wandering Safety
Project Lifesaver:
Project Lifesaver is the premier search and rescue program operated internationally by public safety agencies, and is strategically designed for "at risk" individuals who are prone to the life threatening behavior of wandering. The primary mission of Project Lifesaver is to provide timely response to save lives and reduce potential injury for adults and children with the propensity to wander due to a cognitive condition.
Adaptive Swim
Puddle Jumper:
Unique, comfortable, and protective, The Original Puddle Jumper stands out from traditional life jackets while still providing Coast Guard-approved safety. Our high-quality products undertake thorough testing to instill parents with the confidence that their child is well protected.
Home Modifications Financial Assistance
Ramps.org: Provides the necessary help for kids that need a ramp to move from a home to the outside.
International Organizations
Rare Diseases Foundation of Iran:
Provides similar services as GARD only they will know more about the resources and medical specialists available in Iran. Their services are provided in Farsi and English. You may call +98 (21) 66572937 or visit their website for assistance.
International Organizations
Rare Diseases South Africa:
Provides similar services as GARD only they will know more about the resources and medical specialists available in South Africa. You may call 072 476 7552 or visit their website for assistance.
International Organizations
Rare Disorders NZ:
Provides similar services as GARD only they will know more about the resources and medical specialists available in New Zealand. You may call +64 4 385 1119 or visit their website for assistance.
International Organizations
Rare Voices Australia:
Provides similar services as GARD only they will know more about the resources and medical specialists available in Australia. You may call +61 (0) 497 003 104 or visit their website for assistance.
Understanding Research
Receive your free Rare Research Roadmap
The road to rare disease treatment and research is not often a straight path.
This roadmap is designed to put you in the driver's seat and in control of how to move your research forward. Whether you are an individual, advocate, or organization, this roadmap was created to help you better understand some of the potential routes to treatment and some of the key concepts that are part of these processes.
Financial Planning
Receive your free toolkit: Family Planning and Financial Considerations
Choosing to start or expand a family is one of the most significant decisions couples will make in their lives. A decision that involves emotional, physical, psychological, lifestyle, and financial factors. This is especially true for people living with a rare disease and those who are carriers.
Adult Long-Term Supports
Receive your free toolkit: Understanding Career Opportunities and Employment Benefits
This toolkit is designed to help those living with a rare disease to understand and evaluate the work-related options and employment benefits that will best suit your abilities, healthcare needs, and financial resources
Future Planning
Receive your free toolkit: Understanding Career Opportunities and Employment Benefits
This toolkit is designed to help those living with a rare disease to understand and evaluate the work-related options and employment benefits that will best suit your abilities, healthcare needs, and financial resources
International Organizations
Regroupement qu�b�cois des maladies orphelines (Canada):
Provides similar services as GARD only they will know more about the resources and medical specialists available in Canada. Their service is available in French and English. You may call 1-888-822-2854 or visit their website for assistance.
Seizure Support Resources
Rescue Medications Video Demonstrations:
Rescue medications can be an essential part of a Seizure Action Plan and are given to the person having the seizure.
Click on this link to explore seizure rescue medication demonstration videos
Respite Resources
Respite Care Notebook
Developed with families, CNF created the Respite Care Notebook for families who now use respite care services or are thinking about it. The forms in this Notebook are fully-customizable� allowing you to bring information about your child and his/her needs into one place. Respite caregivers will use that information to provide the best care for your child.Respite Care Notebook
Adaptive Clothing
Reusable Swim Diaper:
Boys' Trunks with Built-in Reusable Swim Diaper:
Sizes 6 months to 4t
Adaptive Swim
Reusable Swim Diaper:
Boys' Trunks with Built-in Reusable Swim Diaper:
Sizes 6 months to 4t
Adaptive Clothing
Reusable Swim Diaper:
Girls' One-Piece Swimsuit with Built in Reusable Swim Diaper:
Sizes 6 months to 4t
Adaptive Swim
Reusable Swim Diaper:
Girls' One-Piece Swimsuit with Built in Reusable Swim Diaper:
Sizes 6 months to 4t
Seizure Support Resources
RSC Redefining Seizure Care - In-Home EEG
Information on in-home EEG services.
Safety Tips
Safe Kids Worldwide:
All children are special and require different levels of attention based on their unique needs. To help keep children with physical, developmental or cognitive disabilities safe in the home, we created a series of safety videos highlighting how you can take precautions to help prevent injuries to your child with special needs.
Adaptive Beds
Safe Place Bedding:
Portable, inflatable beds provide a safe sleeping solution for special needs loved ones at home or away. Portable, inflatable beds provide a safe sleeping solution for special needs loved ones at home or away.
Travel Resources
Safe Place Bedding:
Portable, inflatable beds provide a safe sleeping solution for special needs loved ones at home or away. Portable, inflatable beds provide a safe sleeping solution for special needs loved ones at home or away.
Wish Fulfillment
Second Wind Dreams works to enhance the life of those living in elder care communities in the United States and Canada and grants wishes to those living in nursing, assisted living, and hospice facilities.
Seizure Support Resources
Seizure Detection and Prediction Devices:
While no device has been proven to prevent epilepsy-related mortality (including SUDEP), the Danny Did Foundation has developed a list of seizure detection and seizure prediction devices � as well as other technologies � that are designed to enable intervention by a caregiver. Intervention is believed to reduce the risks that accompany epilepsy. We present these products for further review and investigation by anyone connected to seizure disorders.
Seizure Support Resources
Seizure Tracker is dedicated to providing patients, doctors and researchers with free comprehensive tools to help understand relationships between seizure activity and anti-epileptic therapies. The reports generated by Seizure Tracker become a valuable communication aid when meeting with doctors because all the necessary information is in one brief report. With a simple keystroke, you can customize a report to outline talking points you'd like to discuss with your doctor.
Equipment Financial Assistance
Small Steps in Speech:
Provides grants on behalf of children with speech and language disorders for therapies, treatments, communicative devices, and other services aimed at improving their communication skills. Small Steps in Speech will accept applications on behalf of children between 3 and 22 years of age at the time of the application deadline and families with a combined household income under $100,000.
Future Planning
Social Security (SSI):
Prepare and apply
General Financial Assistance
Social Security (SSI):
Prepare and apply
Social Security
Social Security (SSI):
Prepare and apply
Future Planning
Social Security Disability Resource Center:
Learn how to apply, how medical conditions are considered, how the decision proess works, how many times you may be denied, how to file appeals, how tot get your case status and much more.
General Financial Assistance
Social Security Disability Resource Center:
Learn how to apply, how medical conditions are considered, how the decision proess works, how many times you may be denied, how to file appeals, how tot get your case status and much more.
Social Security
Social Security Disability Resource Center:
Learn how to apply, how medical conditions are considered, how the decision proess works, how many times you may be denied, how to file appeals, how tot get your case status and much more.
Adult Clothing
SOSecure Containment Swim Brief
Made by by Discovery Trekking Outfitters. An effective and discreet unisex swimming undergarment for adults and teens.
Adaptive Clothing
SOSecure Containment Swim Brief:
Made by by Discovery Trekking Outfitters. An effective and discreet unisex swimming undergarment for adults and teens.
Adaptive Swim
SOSecure Containment Swim Brief:
Made by by Discovery Trekking Outfitters. An effective and discreet unisex swimming undergarment for adults and teens.
Car Modification Financial Assistance
Special Kids Fund: Our Wheelchair Van Assistance Program helps needy families nationwide access handicap vans for their disabled family member. Help us give the joy of mobility to all children!
Learn More
Adaptive Recreation Organizations
Special Needs Resource Project
By State
Special Needs Resource Project (SNRP) provides a basic guide for parents of children with chronic health issues, disabilities and special needs. This site is designed to help you get a jump-start in your search for helpful information and resources. Every situation is unique. Our aim is to help you learn the basic skills you'll need to obtain the specific resource information, equipment, and services your child and family needs. Though focused on children ages 0-22, most of the information we offer is applicable to adults as well.
Resource Directory
Special Needs Resource Project
By State
Special Needs Resource Project (SNRP) provides a basic guide for parents of children with chronic health issues, disabilities and special needs. This site is designed to help you get a jump-start in your search for helpful information and resources. Every situation is unique. Our aim is to help you learn the basic skills you'll need to obtain the specific resource information, equipment, and services your child and family needs. Though focused on children ages 0-22, most of the information we offer is applicable to adults as well.
Adaptive Clothing
Special Needs Swim Diaper � Reusable Swim Diapers:
Swim-sters special needs swim diapers are perfect for anyone who requires a diaper while swimming. They are designed to be worn discreetly under a swimsuit while helping prevent harmful bacteria from entering the water, so they are perfect for individuals with bowel incontinence. Testing results show that Swimsters effectively contain solids and help prevent harmful bacteria from entering the water. Sizing: XS-Size 6/8-Waist:17-24"; Weight: 40-58 pds. S-Size 8/10-Waist:18-27"; Weight: 59-74 pds. M-Size 10/12-Waist: 20-29"; Weight: 75-89 pds. L-Size 14/16-Waist: 21-32"; Weight: 90-118 pds. XL-Size 18/20-Waist: 22-34"; Weight: 119-141 pds.
Adaptive Swim
Special Needs Swim Diaper � Reusable Swim Diapers:
Swim-sters special needs swim diapers are perfect for anyone who requires a diaper while swimming. They are designed to be worn discreetly under a swimsuit while helping prevent harmful bacteria from entering the water, so they are perfect for individuals with bowel incontinence. Testing results show that Swimsters effectively contain solids and help prevent harmful bacteria from entering the water. Sizing: XS-Size 6/8-Waist:17-24"; Weight: 40-58 pds. S-Size 8/10-Waist:18-27"; Weight: 59-74 pds. M-Size 10/12-Waist: 20-29"; Weight: 75-89 pds. L-Size 14/16-Waist: 21-32"; Weight: 90-118 pds. XL-Size 18/20-Waist: 22-34"; Weight: 119-141 pds.
Diapers
Special Needs Swim Diaper � Reusable Swim Diapers:
Swim-sters special needs swim diapers are perfect for anyone who requires a diaper while swimming. They are designed to be worn discreetly under a swimsuit while helping prevent harmful bacteria from entering the water, so they are perfect for individuals with bowel incontinence. Testing results show that Swimsters effectively contain solids and help prevent harmful bacteria from entering the water. Sizing: XS-Size 6/8-Waist:17-24"; Weight: 40-58 pds. S-Size 8/10-Waist:18-27"; Weight: 59-74 pds. M-Size 10/12-Waist: 20-29"; Weight: 75-89 pds. L-Size 14/16-Waist: 21-32"; Weight: 90-118 pds. XL-Size 18/20-Waist: 22-34"; Weight: 119-141 pds.
Adaptive Clothing
Splash About Swim Shorts:
Adult Sizes XS to XL. No matter the reason for fecal incontinence the benefits of swimming are still the same and with Splash About's Splash jammers you can swim without the worry of fecal leaks or the embarrassment of wearing incontinence shorts or nappy. The enhanced technical design ensures the Splash jammers mold to your body ensuring a snug fit that moves as you move, whatever the activity. Manufactured from high-quality, soft neoprene for comfort and secured by specialist ribs at the waist, with the addition of medical grade silicone at the thigh, Splash jammers are the most secure incontinence short in the world, giving you peace of mind every time you swim. Created in sporty unisex colors, these Jammers can be worn alone or under a board short for a leak-free swim
Adaptive Swim
Splash About Swim Shorts:
Adult Sizes XS to XL. No matter the reason for fecal incontinence the benefits of swimming are still the same and with Splash About's Splash jammers you can swim without the worry of fecal leaks or the embarrassment of wearing incontinence shorts or nappy. The enhanced technical design ensures the Splash jammers mold to your body ensuring a snug fit that moves as you move, whatever the activity. Manufactured from high-quality, soft neoprene for comfort and secured by specialist ribs at the waist, with the addition of medical grade silicone at the thigh, Splash jammers are the most secure incontinence short in the world, giving you peace of mind every time you swim. Created in sporty unisex colors, these Jammers can be worn alone or under a board short for a leak-free swim
Adult Clothing
Splash About Swim Shorts:
Adult Sizes XS to XL. No matter the reason for fecal incontinence the benefits of swimming are still the same and with Splash About's Splash jammers you can swim without the worry of fecal leaks or the embarrassment of wearing incontinence shorts or nappy. The enhanced technical design ensures the Splash jammers mold to your body ensuring a snug fit that moves as you move, whatever the activity. Manufactured from high-quality, soft neoprene for comfort and secured by specialist ribs at the waist, with the addition of medical grade silicone at the thigh, Splash jammers are the most secure incontinence short in the world, giving you peace of mind every time you swim. Created in sporty unisex colors, these Jammers can be worn alone or under a board short for a leak-free swim
Respite Resources
State Lifespan Respite Programs:
Funded by the Administration for Community Living, US Department of Health and Human Services, State Lifespan Respite Programs or Projects are run by a designated state government lead agency, which works in collaboration with a state respite coalition and an Aging and Disability Resource Center Program/No Wrong Door System. Their purpose is to implement statewide systems of coordinated, community-based respite for family caregivers caring for individuals with special needs of all ages. Since 2009. thirty-seven states and the District of Columbia have received Lifespan Respite grants from ACL. Those states that currently have federal grants or have sustained Lifespan Respite grant activities initiated with earlier grants or are supported by state funding are identified below with state agency contact information. A list of all states granted awards since 2009 are listed in the right-hand menu. You may also want to contact the State Respite Coalition for additional information and respite resources.
Medical Financial Assistance
State Medicaid and CHIP program Every state's Medicaid and CHIP program is changing and improving � most states are expanding coverage for low-income adults; all states are modernizing their Medicaid/CHIP eligibility, enrollment and renewal processes and systems, and taking advantage of many of the new flexibilities provided by the Affordable Care Act. Finally, states are coordinating the application and enrollment process with the messaging and policies for the Health Insurance Marketplace operating in their state to ensure that there is no wrong door to coverage.
Medical Waivers
State Medicaid and CHIP program Every state's Medicaid and CHIP program is changing and improving � most states are expanding coverage for low-income adults; all states are modernizing their Medicaid/CHIP eligibility, enrollment and renewal processes and systems, and taking advantage of many of the new flexibilities provided by the Affordable Care Act. Finally, states are coordinating the application and enrollment process with the messaging and policies for the Health Insurance Marketplace operating in their state to ensure that there is no wrong door to coverage. For more information, click here.
Medical Financial Assistance
State Medicaid and CHIP program Every state's Medicaid and CHIP program is changing and improving � most states are expanding coverage for low-income adults; all states are modernizing their Medicaid/CHIP eligibility, enrollment and renewal processes and systems, and taking advantage of many of the new flexibilities provided by the Affordable Care Act. Finally, states are coordinating the application and enrollment process with the messaging and policies for the Health Insurance Marketplace operating in their state to ensure that there is no wrong door to coverage. For more information, click here.
Wish Fulfillment
Sunshine Foundation helps fulfill the dreams of children 3 to 18 years old who have advanced cancer, special needs, or who have faced abuse.
Wish Fulfillment
Sunshine Foundation: Sunshine Foundation's sole purpose is to answer the dreams of chronically ill, seriously ill, physically challenged and abused children ages three to eighteen, whose families cannot fulfill their requests due to financial strain that the child's illness may cause.
Seizure Support Resources
Surgery for Difficult-to-Treat Epilepsy: A Step-By-Step Guide for Patients and Families
Adaptive Swim
Swimmates Disposable Adult Swim Diapers:
Swimmates Disposable Swimwear for aqua therapy or any day in the pool. Swimmates are worn under a bathing suit to provide containment for bowel incontinence. The blue moisture-proof barrier provides light urinary incontinence protection prior to entering the water. Inner leg cuffs help contain bowel incontinence, keeping the pool and bathing suit clean. This product is designed to have minimal swelling and does not break apart. Tear-away side seams are used for easy removal and disposal.
Adult Clothing
Swimmates Disposable Adult Swim Diapers:
Swimmates Disposable Swimwear for aqua therapy or any day in the pool. Swimmates are worn under a bathing suit to provide containment for bowel incontinence. The blue moisture-proof barrier provides light urinary incontinence protection prior to entering the water. Inner leg cuffs help contain bowel incontinence, keeping the pool and bathing suit clean. This product is designed to have minimal swelling and does not break apart. Tear-away side seams are used for easy removal and disposal.
Diapers
Swimmates Disposable Adult Swim Diapers:
Swimmates Disposable Swimwear for aqua therapy or any day in the pool. Swimmates are worn under a bathing suit to provide containment for bowel incontinence. The blue moisture-proof barrier provides light urinary incontinence protection prior to entering the water. Inner leg cuffs help contain bowel incontinence, keeping the pool and bathing suit clean. This product is designed to have minimal swelling and does not break apart. Tear-away side seams are used for easy removal and disposal.
Adaptive Beds
Tadpole Adaptive Equipment:
Tadpole Adaptive Equipment provides online shopping and crowdfunding for equipment for adults & children with special needs. Featuring strollers, bikes, standers, bath and toilet, seating, and beds
Adaptive Gear and Items
Tadpole Adaptive Equipment:
Tadpole Adaptive Equipment provides online shopping and crowdfunding for equipment for adults & children with special needs. Featuring strollers, bikes, standers, bath and toilet, seating, and beds
Wandering Safety
Take Me Home: Take Me Home is a database developed by the Pensacola Police Department for people who may need special assistance if they are alone or in times of emergency. This kind of assistance may be required if the person is unable to speak or properly identify themselves, or if they become disoriented or act in a manner that could be misinterpreted by first responders. The system includes a current digital picture, demographic information and caregiver contacts. If a police officer encounters a person in the Take Me Home system, the officer can query the Take Me Home system, searching by name or by the person's physical description. Once the individual's Take Me Home record has been located, the officer has the information at hand to appropriately assist the person.
Seizure Support Resources
Take on Epilepsy
Resources & advice to help you take on epilepsy. Here you'll find helpful resources compiled from around the Web, stories, videos, and articles written by medical professionals, caregivers, and epilepsy experts like yourself.
Disability Advocacy
TASH is an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm.
General Family Support
Teach Non-Disabled Kids about their Disabled Peers � From A Day in Our Shoes
We know that 15-20% of our school children have IEPs. Why are we not educating communities about this? We owe it to our kids, both the non-disabled and disabled ones. They have to learn how to interact, how to live and work together. This is their future and it's ours.
Medical Travel Assistance
The Air Care Alliance is a 501(c)(3) nonprofit public service organization representing a nationwide network of volunteer pilot groups that deliver impactful and inspiring service through aviation. ACA encourages volunteerism among pilots, helps patients access the free air transportation they need, and ensures that charitable aviation remains a viable resource to those who need it most.
Future Planning
The Arc - Future Planning
Build Your Plan�
Planning for the future is important for all families. You can't do it just once. It's an ongoing process.The Build Your Plan � tool helps people with intellectual and developmental disabilities (I/DD) think about and plan for their future. The interests, preferences, and skills of the person with I/DD are the main focus. The tool guides you through important topics, including:
Future Planning
The Arc: Creating special needs trusts and setting up guardianship
Equipment Financial Assistance
The Arya Foundation:
The Arya Foundation serves to provide financial aid for the purchase of medical supplies and equipment for children St. Louis with the medical condition.
Medical Financial Assistance
The Brooks Coleman White Foundation:
Provides financial assistance with purchasing medical equipment, clinical services or related needs
Equipment Financial Assistance
The Brooks Coleman White Foundation:
Provides financial assistance with purchasing medical equipment, clinical services or related needs
Resource Directory
The Connected Parent:
We connect you with online and local businesses reviewed by parents and caregivers just like you. Our comprehensive database and easy-to-use filters help you connect with the local & online businesses you need, reviewed by families like yours.
Wish Fulfillment
The Dream Factory: The Dream Factory grants wishes to critically and chronically ill children between 3 and 18 years old. Parents, guardians, physicians, other caregivers, and children with advanced diseases can make referrals to begin the wish-granting process.
Disability Employment Resources
The Job Accommodation Network: provides guidance on workplace accommodations and disability employment issues, helps people with disabilities enhance their employability, and show employers how to capitalize on the value that people with disabilities add to the workplace.
Adult Long-Term Supports
The Job Accommodation Network: provides guidance on workplace accommodations and disability employment issues, helps people with disabilities enhance their employability, and show employers how to capitalize on the value that people with disabilities add to the workplace.
Future Planning
The LifeCourse Nexus
The Charting the LifeCourse framework was developed by families to help individuals with disabilities and families at any age or stage of life develop a vision for a good life, think about what they need to know and do, identify how to find or develop supports, and discover what it takes to live the lives they want to live.
Wish Fulfillment
The Marty Lyons Foundation grants wishes for children with advanced illnesses between the ages of 3 and 17.
Car Modification Financial Assistance
The Mobility Resource
Comprehensive list of all grants/assistance to help buy handicap vans and adaptive equipment in all 50 states. These grants and other programs could help you finance a wheelchair van, scooter, wheelchair lift, adaptive driving equipment, or other mobility product.
Equipment Financial Assistance
The Mobility Resource
Comprehensive list of all grants/assistance to help buy handicap vans and adaptive equipment in all 50 states. These grants and other programs could help you finance a wheelchair van, scooter, wheelchair lift, adaptive driving equipment, or other mobility product.
Legal Assistance
The National Disability Rights Network works in Washington, DC on behalf of the Protection and Advocacy Systems (P&As) and Client Assistance Programs (CAPs), the nation's largest providers of legal advocacy services for people with disabilities.
NDRN promotes the network's capacity, ensures that P&As/CAPs remain strong and effective by providing training and technical assistance, and advocates for laws protecting the civil and human rights of all people with disabilities.
Disability Advocacy
The National Disability Rights Network works in Washington, DC on behalf of the Protection and Advocacy Systems (P&As) and Client Assistance Programs (CAPs), the nation's largest providers of legal advocacy services for people with disabilities.
NDRN promotes the network's capacity, ensures that P&As/CAPs remain strong and effective by providing training and technical assistance, and advocates for laws protecting the civil and human rights of all people with disabilities.
Special Needs Dental Care
The National Foundation of Dentistry for the Handicapped (NFDH); a charitable affiliate of the American Dental Association; arranges comprehensive dental treatment and long-term preventive services to needy disabled, elderly or medically compromised individuals.
Resource Directory
The National Rehabilitation Information Center (NARIC), offers resources for disability and rehabilitation-oriented information. NARIC is dedicated to providing direct, personal, and high-quality information services to anyone throughout the country.
Equipment Financial Assistance
The Oley Foundation:
The Equipment/Supply Exchange Program connects individuals seeking products to individuals donating products.
Equipment Financial Assistance
The Orange Effect Foundation
The Orange Effect Foundation empowers children and young adults with speech disorders to effectively communicate through technology and speech therapy. While there are many wonderful organizations that focus on autism and research into speech disorders, there are very few that focus on providing grants to children who desperately need consistent speech therapy or equipment.
Equipment Financial Assistance
The Parker Lee Project:
The Parker Lee Project works to cover the costs of equipment and medical treatment that your insurance may not. It also serves as a great educational resource and support system for parents with disabled children.
Medical Financial Assistance
The Parker Lee Project:
The Parker Lee Project works to cover the costs of equipment and medical treatment that your insurance may not. It also serves as a great educational resource and support system for parents with disabled children.
Health Insurance appeals
The Patient Advocate Foundation:
(PAF) provides case management assistance for the uninsured or underinsured with life-threatening or debilitating illnesses. Services include help with the following: access to care; co-pay assistance; social security disability applications; and insurance appeals. PAF also has a National Financial Resource Directory that allows patients to find resources within a given state. You can contact PAF directly at 800-532-5274.
Medical Financial Assistance
The Patient Advocate Foundation:
(PAF) provides case management assistance for the uninsured or underinsured with life-threatening or debilitating illnesses. Services include help with the following: access to care; co-pay assistance; social security disability applications; and insurance appeals. PAF also has a National Financial Resource Directory that allows patients to find resources within a given state. You can contact PAF directly at 800-532-5274.
Wish Fulfillment
The Rainbow Connection helps grant wishes to children between 2 � and 18 years old with a life threatening medical condition who live in Michigan. Medical professionals, parents or guardians, and children may submit wish requests.
Medical Financial Assistance
The Ray Tye Medical Aid Foundation's charter and mission is dedicated to funding in-hospital life saving medical treatment and surgeries for those who do not have medical insurance, and for which no other financial resources are available.
Adult Long-Term Supports
The Rehabilitation Research and Training Center on Aging with Developmental Disabilities seeks to enhance the health, function, and full community participation of adults with intellectual and developmental disabilities and bolster family care giving capacity.
Adaptive Beds
The Safety Sleeper:
The tent-like structure is durable, portable and lightweight (under 25 lb.) with additional safety features such as zipper locking mechanisms, enclosed mattress to protect against entrapment, fire retardant material, stabilizing straps to prevent tipping, and frame pads.
Travel Resources
The Safety Sleeper:
The tent-like structure is durable, portable and lightweight (under 25 lb.) with additional safety features such as zipper locking mechanisms, enclosed mattress to protect against entrapment, fire retardant material, stabilizing straps to prevent tipping, and frame pads.
General Financial Assistance
The Special Interest Fund was established to help children with autism access adaptive and inclusive programs and services that do not fall under the umbrella of traditional autism treatments or interventions. Awards range from $500 to $1,000 per child. Eligible programs include specialized camps, music therapy, art therapy, yoga therapy, therapeutic horseback riding, adaptive swim lessons, and similar programming. This fund may also be used to cover fees for the services of autism/disability advocates (up to $1,000).
Wish Fulfillment
The Wish Granted Foundation: The Wish Granted Foundation fulfills wishes for physically challenged children and young adults between the ages of 5 and 25. Wishes are limited to one per family and for those who have not received a wish by another organization.
Health Insurance Resources
Title V Programs for Children with Special Needs
Every state has services for children with special health care needs. The Maternal and Child Health Services Block Grant, or Title V of the Social Security Act, funds these services. The grant tasks each state with ensuring the health of our nation's women and children, including children with special health care needs and their families. Each state is permitted to tailor its services and programs to best meet its specific needs. This variation between states can be confusing because state Title V programs often have different titles and types of service.
Medical Financial Assistance
Title V Programs for Children with Special Needs
Every state has services for children with special health care needs. The Maternal and Child Health Services Block Grant, or Title V of the Social Security Act, funds these services. The grant tasks each state with ensuring the health of our nation's women and children, including children with special health care needs and their families. Each state is permitted to tailor its services and programs to best meet its specific needs. This variation between states can be confusing because state Title V programs often have different titles and types of service.
Medical Travel Assistance
Tyler's Clinic Travel Fund
Travel and Clinic Support fund is designed to support Dup15q Alliance Clinics and help families who have a need for their child seen at a Dup15q Clinic.
Housing Assistance
Understanding Accessible Housting: The Fair Housing Act
An accessible home is one that allows its occupant to do what he or she wants and needs to do, as independently as possible. If you or someone in your family is disabled, your home may need specific modifications to make it accessible for daily living. You are protected under the Fair Housing Act, which stipulates property owners to make, or allow residents to make, a home accessible for those with specific or special needs.
Health Insurance Resources
Understanding and Navigating Medicare Tool Kit: This toolkit is intended to be a "how-to" guide designed specifically for people living with rare diseases and rare disease advocates. It answers questions about Medicare and other options for financial assistance that are especially relevant to people with disabilities
Medical Financial Assistance
United Heathcare Children's Foundation:
UHCCF's mission is to help fill the gap between what medical services/items a child needs and what their commercial health benefit plan will pay for. UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan.
Wish Fulfillment
United Special Sportsman Alliance specializes in providing children with disabilities or advanced illness and disabled veterans an outdoor adventure of their dreams. Trips include hunting, fishing, water sports, and other activities.
Equipment Financial Assistance
UnitedHealthcare Children's Foundation
This non-profit charity improves the quality of life for a child 16-years-old or younger by reducing the financial burden that is left when health insurance doesn't cover the entirety of medical expenses. This grant could be used for surgeries, therapies, or equipment coverage.
Medical Financial Assistance
UnitedHealthcare Children's Foundation
This non-profit charity improves the quality of life for a child 16-years-old or younger by reducing the financial burden that is left when health insurance doesn't cover the entirety of medical expenses. This grant could be used for surgeries, therapies, or equipment coverage.
Medical Financial Assistance
UnitedHealthcare Children's Foundation
UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan.
Equipment Financial Assistance
Variety � The Children's Charity:
Variety's Care Program delivers critical life-saving medical equipment and services, healthcare and well-being to individual children and children's health organizations. Variety's Freedom Program delivers vital life-changing equipment and services for mobility, independence and social inclusion to individual children and children's organizations. Variety's Future Program delivers crucial life-enriching communication equipment and services, education and self-esteem to individual children and children's organizations.
Medical Financial Assistance
VNS Therapy Access Program
This program was established to provide access to VNS Therapy System for appropriate patients lacking both insurance coverage and the ability to pay for the VNS Therapy System. To establish eligibility, patients should contact their physicians.
Seizure Support Resources
VNS Therapy Access Program
This program was established to provide access to VNS Therapy System for appropriate patients lacking both insurance coverage and the ability to pay for the VNS Therapy System. To establish eligibility, patients should contact their physicians.
Equipment Financial Assistance
Wheelchairs 4 Kids:
Although our name may be Wheelchairs 4 Kids, our plan involves so much more than providing wheelchairs for America's disabled children. Our goal is to give every child with mobility challenges the best opportunity to live life at its' fullest. We provide wheelchairs, gait trainers, AFO's, hoyer lifts, adaptive strollers, adaptive bikes, bathing solutions, vehicle modifications (contingent on the type of vehicle) and some home modifications providing the family owns the home. The child must be under the age of 21 and have a member of their medical team verify their medical condition and mobility needs.
Equipment Financial Assistance
Wheelchairs for Kids
Wheelchairs for Kids is a volunteer-based not-for-profit organisation providing the transformative gift of mobility to children in impoverished and under resourced communities both in Australia and around the globe.
International Organizations
Wheelchairs for Kids
Wheelchairs for Kids is a volunteer-based not-for-profit organisation providing the transformative gift of mobility to children in impoverished and under resourced communities both in Australia and around the globe.
Wish Fulfillment
Wishing Star grants wishes to children with advanced illnesses who are between 3 and 21 years old and live in Eastern and Central Washington and Idaho. This organization focuses on providing positive and uplifting experiences for children with life-threatening or life-shortening illnesses.
Adaptive Gear and Items
Wonderfold Wagons:
Offers family members with special needs a 25% discount on any WonderFold wagon and accessories of your choosing
Adaptive Clothing
Zappos Adaptive Clothing
Zappos adaptive clothing Functional and Fashionable Products to Make Life Easier
Adaptive Shoes
Zappos Adaptive Clothing
Zappos adaptive clothing Functional and Fashionable Products to Make Life Easier
Adult Clothing
Zappos Adaptive Clothing
Zappos adaptive clothing Functional and Fashionable Products to Make Life Easier
Seizure Support Resources
Zeto - In-Home EEG
Information on in-home EEG services.
International Organizations
Dup15q Australia:
Dup15q Australia Ltd is an authorised charity governed by the Australian Charity & Not-for-Profits Commission (ACNC). Formed in 2016. There are Dup15q families located all over Australia and we encourage all newly diagnosed families to make contact with us on our Contact Us page. You can also find us at facebook.com/dup15qaustralia. Once you have connected with us we will add you to our Families Only page where you can connect directly with other families around Australia.
International Organizations
Dup15q Italy:
l contatto per famiglie italiane: "nonsolo15" associazione per la ricerca e il sostegno di familiari e amici di persone affette da sindrome invdup15 (idic15) onlus.
International Organizations
Dup15q France:
Dup15q France est une association de parents d'enfants ayant le syndrome dup15q (idic15, int dup15).
International Organizations
Dup15q Germany/Austria/Switzerland:
Deutschsprachige Familien k�nnen sich an den Dup15q e.V. wenden. Der Dup15q e.V. ist in Deutschland, �sterreich und der Schweiz bisher die einzige Anlaufstelle, um umfassende deutschsprachige Informationen �ber das Dup15q Syndrom zu erhalten.
International Organizations
Dup15q Norway/Scandinavia:
Families in Norway and Scandinavia can contact Ragnhild Eikeland at ragnhild.eikeland@lyse.net
International Organizations
Dup15q Netherlands:
Families in Nederland kunnen contact opnemen met Antal de Waij via antaldewaij@gmail.com
International Organizations
Dup15q Spain:
International Organizations
International Support:
UNIQUE provides support to families affected by chromosome 15q duplications and other rare chromosome disorders in the U.K. and around the world.
International Organizations
The United Kingdom Support:
UNIQUE provides support to families affected by chromosome 15q duplications and other rare chromosome disorders in the U.K. and around the world.
International Organizations
Dup15q Brazil:
S�ndrome gen�tica de duplica��es e microduplica��es do cromossomo 15 na regi�o 15q11.2-q13.1
Special Eduction Recreation Activity
Joni & Friends: A place where families living with disability find rest, hope, and community in the body of Christ.
Special Eduction Recreation Activity
Special Needs Camps and Programs: Summer Camp Directory
Special Eduction Recreation Activity
Very Special Camps: Summer Camps & Programs For Individuals With Special Needs Directory
General Family Support
Wonderbaby
WonderBaby.org is dedicated to helping parents of young children with visual impairments as well as children with multiple disabilities. Here you'll find a database of articles written by parents who want to share with others what they've learned about playing with and teaching a blind child, as well as links to meaningful resources and ways to connect with other families.
General Family Support
The Mighty:
The power of the patient voice. We make health about people by bringing together the stories and lived experiences of those who have been there. Penned by our community and curated by our editors, the collections below feature some of our best, most helpful articles on health topics that matter to you.
Seizure Support Resources
Sami Alert:
SAMi is the only wearable-free smart monitor capable of detecting and alerting to a wide range of seizure-like and other abnormal movement.
General Family Support
Dup15q Newly Diagnosed Support:
With the diagnosis of dup15q syndrome parents usually feel overwhelmed, and have many other emotions. It's likely that you've never heard the term isodicentric 15 or interstitial duplication 15. With the Dup15q Alliance, you are joining a community of people who understand what you are going through, whatever stage you are in, and are here to help.
General Family Support
Dup15q Sibling Support
Siblings may experience a wide range of emotions due to the unpredictability of day-to-day life caused by dup15q syndrome. That's why it's important to recognize the role these siblings play in their sibling's care, validate their emotions, and give them tools to cope and express their feelings. Dup15q Alliance developed our Sibling Matters Program.
General Family Support
Dup15q Community Connections:
We are parents, grandparents, professionals, and advocates providing support for patients, families, and caregivers. We are passionate about personal connections, family support, community awareness, and scientific research.
We know the importance of connections and creating a community where families can ask questions, learn about dup15q syndrome, get involved and advocate for those affected by the syndrome. We hope that in the Dup15q Alliance you will find friendship, support, answers, and hope.
Adaptive Gear and Items
Enabling Devices:
We specialize in switch-adapted and specially designed toys, AAC communication devices, adaptive switches for a range of mobility issues, and products to help develop Activities for Daily Living (ADL).
General Family Support
Parent to Parent USA:
Our mission is to support a national network of Parent to Parent programs to ensure access to quality emotional support for families of individuals with disabilities and/or special health care needs.
General Family Support
The Arc:
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
General Family Support
Family Voices:
is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN. We promote partnership with families at all levels of health care�individual and policy decision-making levels�in order to improve health care services and policies for children.
CHIP (health care for low-income uninsured children) Louisiana Children’s Health Insurance Program LaCHIP Processing Office 628 N. 4th Street P. O. Bo 629 Baton Rouge, LA 70821-0629 http://new.dhh.louisiana.gov/index.cfm/page/222
D D Council Louisiana Developmental Disabilities Council P.O. Box 3455 Baton Rouge, LA, 70821-3455 swinchel@dhh.la.gov http://www.laddc.org
Developmental Disabilities Office for Citizens with Developmental Disabilities P.O. Box 3117, Bin 21 Baton Rouge, LA, Baton Rouge http://www.dhh.louisiana.gov
Early Intervention Louisiana Part C Early Intervention Office for Citizens with Developmental Disabilities Louisiana Department of Health & Hospitals P.O. Box 3117, Bin 21, 682 N. 4th Street Baton Rouge, LA, 70802 http://www.earlysteps.dhh.louisiana.gov
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/cil-net/cil-center-and-association-directory
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 2013 H St. NW – 6th Floor Washington, DC, 20006 http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Louisiana 8336 Kelwood Drive Baton Rouge, LA, 70806 http://www.thearcla.org
Mental Health Office of Behavioral Health Louisiana Department of Health and Hospitals 628 N. 4th Street, 4th Floor P.O. Box 4049 Baton Rouge, LA, 70821-4049 http://new.dhh.louisiana.gov/index.cfm/subhome/10
NAMI Louisiana, National Alliance on Mental Illness P.O. Box 40517 Baton Rouge, LA, 70835 (866) 851-6264 http://www.namilouisiana.org
Louisiana Federation of Families for Children’s Mental Health 5627 Superior Drive, Suite #2 Baton Rouge, LA, 70816-6085 (225) 293-3508
Parent Organizations Community Parent Resource Center (Serving greater New Orleans area) Pyramid Community Parent Resource Center 3132 Napoleon Avenue New Orleans, LA, 70125 http://www.pyramidparentcenter.org
Families Helping Families of Louisiana (a statewide network of ten regional family resource centers) 100 Benman Rd. Lafayette, LA 70506 Lafayette, LA 70506 http://www.fhfla.org
Parent Teacher Association (PTA) Louisiana Parent-Teacher Association 9151 Interline Avenue, suite 1A Baton Rouge, LA, 70809 http://www.louisianapta.org/
Speech, Language, and Hearing Louisiana Speech-Language-Hearing Association 8550 United Plaza Boulevard, Suite 1001 Baton Rouge, LA, 70809 http://www.lsha.org
Special Health Care Needs Louisiana Department of Health and Hospitals Office of Public Health Children’s Special Health Services 1450 L & A Road Metairie, LA, 70802 http://new.dhh.louisiana.gov/index.cfm/page/740
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.louisiana.gov
UCEDD Louisiana UCEDDERS LSUHSC- Human Development Center School of Allied Health Professions 1900 Gravier Street 10th Floor Room 1036 New Orleans, LA, 70112 http://www.hdc.lsuhsc.edu
Assistive Technology Nebraska Assistive Technology Partnership 3901 N. 27th Street, Suite 5 Lincoln, NE, 68521 http://www.atp.ne.gov
D D Council Nebraska Planning Council on Developmental Disabilities Department of Health and Human Services 301 Centennial Mall South P.O. Box 95044 Lincoln, NE, 68509 http://dhhs.ne.gov/pages/DD-Planning-Council.aspx
Developmental Disabilities Division of Developmental Disabilities Nebraska Department of Health and Human Services 301 Centennial Mall South, Lincoln, Nebraska P.O. Box 98947 Lincoln, NE, 68509-8947 http://dhhs.ne.gov/Pages/Developmental-Disabilities.aspx
Early Intervention Nebraska Department of Education 301 Centennial Mall South P.O. Box 94987 Lincoln, NE, 68509-4987 http://edn.ne.gov/
Independent Living Nebraska Statewide Independent Living Council 215 Centennial Mall South, Suite 210 Lincoln, NE, 68508 http://www.nesilc.org
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Nebraska 1672 Van Dorn Street Lincoln, NE, 68502 http://www.arc-nebraska.org
Mental Health Division of Behavioral Health Services Nebraska Department of Health and Human Services P.O. Box 98925 Lincoln, NE, 68509-8925 http://dhhs.ne.gov/Pages/Behavioral-Health.aspx
Parent Organizations Parent Teacher Association (PTA) Nebraska Congress of Parents and Teachers 13304 W. Center Road, Suite 221 Omaha, NE, 68144 http://www.nebraskapta.org
Parent Training and Information Center (PTI) Nebraska 1941 S. 42nd St., Suite 205 Omaha, NE 68105 http://www.pti-nebraska.org
Special Education Office of Special Education Nebraska Department of Education 301 Centennial Mall South P.O. Box 94987 Lincoln, NE, 68509-4987 http://www.education.ne.gov/sped
Special Format Library Nebraska Library Commission Talking Book and Braille Service The Atrium 1200 N Street, Suite 120 Lincoln, NE, 68508-2023 http://www.nlc.state.ne.us/tbbs
Special Health Care Needs Nebraska Department of Health and Human Services 301 Centennial Mall South P.O. Box 95026 Lincoln, NE, 68509-5026 http://dhhs.ne.gov/Pages/default.aspx
Speech, Language, and Hearing Nebraska Speech-Language-Hearing Association 1633 Normandy Court, Suite A Lincoln, NE 68512 http://www.nslha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.nebraska.gov
Transition Services Special Populations Office Nebraska Department of Education 6949 S. 110th Street Omaha, NE, 68128 https://www.education.ne.gov
UCEDD Munroe-Meyer Institute for Genetics and Rehabilitation University of Nebraska Medical Center 985450 Nebraska Medical Center Omaha, NE, 68198-5450 http://www.unmc.edu/mmi
Vocational Education, Disabilities School Counseling Nebraska Department of Education 301 Centennial Mall South P.O. Box 94987 Lincoln, NE, 68509-4987 https://www.vr.nebraska.gov
ADA Center Northwest ADA Center Center for Continuing Education in Rehabilitation University of Washington 6912 220th St SW, #105 Mountlake Terrace, WA, 98043 (800) 949-4232 (V/TTY) (425) 248-2480 (V/TTY) dbtacnw@u.washington.edu http://www.nwadacenter.org
Autism Golden Heart (AK) Autism Society 607 Old Steese Hwy, Suite B #285 Fairbanks, AK, 99701 (907) 374-4421 (877) 374-4421 info@asagoldenheart.org http://www.asagoldenheart.org
Career & Technical Education Office of Career and Technical Education 801 West 10th Street, Suite 200 P.O. Box 110500 Juneau, AK, 99811-0500 (907) 465-2800 http://www.education.alaska.gov
D D Council Governor’s Council on Disabilities and Special Education 3601 C Street, Suite 740 Anchorage, AK, 99503 (888) 269-8990 (907) 269-8990 GCDSE@alaska.gov http://dhss.alaska.gov/
Developmental Disabilities Developmental Disabilities & Children with Complex Medical Conditions Senior and Disabilities Services 3601 C Street, Suite 310 Anchorage, AK, 99503 (800) 478-9996 (907) 269-3666 http://dhss.alaska.gov/dsds/Pages/default.aspx
Early Intervention Early Intervention/Infant Learning Program ILP Main Office 550 West 8th Avenue Anchorage, AK, 99501 (877) 477-3659 http://dhss.alaska.gov/
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 1333 Moursand Street Houston, TX, 77030 (713) 520-0232 (V) (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org
To find the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 2013 H. Street NW, 6th floor Washington, DC, 20006 (202) 207-0334 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Anchorage 2211 Arca Drive Anchorage, AK, 99508 (907) 277-6677 info@thearcofanchorage.org http://thearcofanchorage.org
Mental Health Division of Behavioral Health Department of Health and Social Services P.O. Box 110620 Juneau, AK, 99811-0620 (907) 465-3370 (907) 465-2225 (TTY) http://dhss.alaska.gov/dbh/Pages/default.aspx
NAMI Alaska, National Alliance on Mental Illness PO Box 201753 Anchorage, AK, 99520 (800) 478-4462 (907) 277-1300 alaskanami@gmail.com https://www.namialaska.org/
Parent Organizations Community Parent Resource Center LINKS Parent Resource Center 3161 E. Palmer-Wasilla Hwy, suite 2 Wasilla, AK, 99654 (907) 373-3632 linksinfo@linksprc.org http://linksprc.org/
Protection & Advocacy Disability Law Center of Alaska 3330 Arctic Boulevard, Suite 103 Anchorage, AK, 99503 (800) 478-1234 (907) 565-1002 (V/TTY) akpa@dlcak.org http://www.dlcak.org
Special Education Office of Special Education Alaska Department of Education 801 W. 10th Street, Suite 200 PO Box 110500 Juneau, AK, 99801-1894 (907) 465-8693 http://www.eed.state.ak.us/tls/sped/
Special Health Care Needs Family to Family Health Information Center Stone Soup Group 307 E. Northern Lights Blvd, Suite 100 Anchorage, AK, 99503 (907) 561-3701 (887) 786-7327 (toll free) info@stonesoupgroup.org http://www.stonesoupgroup.org
Special Format Library Alaska State Library Talking Book Center 344 W. Third Avenue, Suite 125 Anchorage, AK, 99501 (800) 776-6566 (907) 269-6575 http://talkingbooks.alaska.gov/
Speech, Language, & Hearing Alaska Speech-Language-Hearing Association PO Box 111993 Anchorage, AK, 99511 (907) 212-0211 aksha907@gmail.com http://www.aksha.org/
UCEDD Center for Human Development University of Alaska Anchorage 2702 Gambell Street, Suite 103 Anchorage, AK, 99503 (907) 272-8270 info@alaskachd.org http://www.alaskachd.org
Vocational Rehabilitation Division of Vocational Rehabilitation 801 W. 10th Street, Suite A Juneau, AK, 99801 (907) 465-2814 http://labor.state.ak.us/dvr/home.htm
ADA Center Northwest ADA Center Center for Continuing Education in Rehabilitation University of Washington 6912 220th St SW, #105 Mountlake Terrace, WA, 98043 http://www.nwadacenter.org
D D Council Oregon Council on Developmental Disabilities 540 24th Place N.E. Salem, OR, 97301-4517 http://www.ocdd.org
Early Intervention & Preschool, Disabilities Early Intervention/Early Childhood Special Education Department Office of Special Education Department of Education 255 Capitol Street N.E. Salem, OR, 97310-0203 http://www.ode.state.or.us
Epilepsy Epilepsy Foundation of Northwest 2311 N. 45th Street, #134 Seattle, WA, 98103 http://www.epilepsyoregon.org
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/OR
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Oregon 1745 State Street Salem, OR, 97301 http://www.arcoregon.org/
Learning Disabilities Learning Disabilities Association of Oregon 10175 S.W. Barbur Blvd., #214B Portland, OR 97219 http://www.ldaor.org
Mediation Office of Student Learning and Partnerships Department of Education 255 Capitol Street N.E. Salem, OR, 97310-0203 http://www.ode.state.or.us
Mental Health Mental Health Association of Oregon (MHAO) Regional Research Institute (RRI) Portland State University 1600 SW 4th Avenue, Suite 900 P.O. Box 751 Portland, OR, 97207-0751
Mental Health – Youth Child and Adolescent Mental Health Services Addictions and Mental Health Division (AMH) 500 Summer Street, N.E., E86 Salem, OR, 97309 http://www.dhs.state.or.us/mentalhealth
Parent Training and Information Center (PTI) (Serving Native family members nationwide who have children with disabilities) National Indian Parent Information Center (NIPIC) P.O. Box 2334 Grants Pass, OR, 97528 http://www.nipic.org/
Parent Training and Information Center (PTI) Family and Community Together (FACT) 13455 SE 97th Avenue Clackamas, OR, 97015 http://factoregon.org/
Special Education Office of Student Learning and Partnerships Department of Education 255 Capitol Street N.E. Salem, OR, 97310-0203 http://www.ode.state.or.us
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.oregon.gov/
Transition Services Office of Student Learning & Partnerships Special Education Unit Department of Education 255 Capitol Street N.E. Salem, OR, 97310 http://www.ode.state.or.us
UCEDD University of Oregon UCEDD College of Education 5252 University of Oregon Eugene, OR, 97403 http://ucedd.uoregon.edu
Oregon Health & Science University UCEDD Oregon Health & Science University Institute on Development & Disability 707 SW Gaines St. Portland, OR, 97239 http://www.ohsuidd.org
Vocational Rehabilitation Office of Vocational Rehabilitation Services Department of Human Services Children, Adults & Families Division 500 Summer Street N.E., E87 Salem, OR, 97301-1120 http://www.oregon.gov/dhs
ADA Center Northwest ADA Center Center for Continuing Education in Rehabilitation University of Washington 6912 220th St SW, #105 Mountlake Terrace, WA, 98043 http://www.nwadacenter.org
Assistive Technology Washington Assistive Technology Act Program University of Washington Center for Technology & Disability Studies UW Mailbox 357920 Seattle, WA, 98195-7920 http://wata.org
D D Council Washington Developmental Disabilities Council 2600 Martin Way E, Suite F Olympia, WA, 98504 http://www.ddc.wa.gov
Developmental Disabilities Division of Developmental Disabilities Department of Social and Health Services P.O. Box 45310 Olympia, WA, 98504-5310 http://www.dshs.wa.gov/ddd
Epilepsy Epilepsy Foundation Northwest 2311 N. 45th Street, #134 Seattle, WA, 98103 http://www.epilepsynw.org
Early Intervention Infant Toddler Early Intervention Program Division of Developmental Disabilities Department of Social and Health Services P.O. Box 45201 Olympia, WA, 98504-5201 http://del.wa.gov/development/esit/Default.aspx
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/WA
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC 20036 http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Washington State 2638 State Avenue N.E. Olympia, WA, 98506 http://www.arcwa.org
Learning Disabilities Learning Disabilities Association of Washington 16315 NE 87th Street, Suite 11 Redmond, WA, 98052 http://www.ldawa.org
Mediation Sound Options Group, LLC 197 Parfitt Way, S.W., Suite 220 P.O. Box 11457 Bainbridge Island, WA, 98110 http://www.soundoptionsgroup.com
Mental Health Mental Health Division Department of Social and Health Services P.O. Box 45320 Olympia, WA, 98504-5320 http://www.dshs.wa.gov/dbhr/index.shtml
Parent Organizations Community Parent Resource Center Open Doors for Multi Cultural Families 4327 S. 253rd Street Kent, WA, 98032 http://www.multiculturalfamilies.org
Parent Teacher Association (PTA) Owen Atkins, Interim Executive Director Washington State PTA 2003 65th Avenue West Tacoma, WA, 98466-6215 http://www.wastatepta.org
PAVE Washington State Parent Information and Training Center 6316 S. 12th Street Tacoma, WA, 98465-1900 http://www.wapave.org
Parent-To-Parent Washington State P2P Programs State Coordinating Office 2638 State Avenue N.E. Olympia, WA, 98506 http://www.arcwa.org
Preschool, Disabilities Early Childhood Services Special Education Learning Improvement Office of Superintendent of Public Instruction P.O. Box 47200 Olympia, WA, 98504-7200 http://www.k12.wa.us
Protection & Advocacy Disability Rights Washington 315 Fifth Avenue South, Suite 850 Seattle, WA, 98104 http://www.disabilityrightswa.org
Special Education Special Education Operations Office of Superintendent of Public Instruction P.O. Box 47200 Olympia, WA, 98504-7200 http://www.k12.wa.us/specialed
Special Format Library Washington Talking Book and Braille Library 2021 9th Avenue Seattle, WA, 98121-2783 http://www.wtbbl.org
Speech, Language, and Hearing Washington Speech-Language-Hearing Association 2150 N. 107th Street, Suite 205 Seattle, WA, 98133-9009 http://www.wslha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: www.access.wa.gov
Transition Services Center for Change in Transition Services College of Education, Seattle University P.O. Box 222000 Seattle, WA, 98122-4340 http://www.seattleu.edu/ccts
UCEDD Center on Human Development and Disabilities University of Washington Center on Human Development and Disability PO Box 357920 Seattle, WA, 98195-7920 http://www.depts.washington.edu/chdd
Washington State Fathers Network 16120 N.E. 8th Street Bellevue, WA, 98008 (425) 747-4004, ext. 4286 (800) 833-6388 greg.schell@kindering.org http://www.fathersnetwork.org
Arizona Resources
ADA Center Pacific ADA Center 555 12th Street, Suite 1030 Oakland, CA, 94607 (800) 949-4232 (V/TTY) (510) 285-5600 (V/TTY) adatech@adapacific.org http://www.adapacific.org
Assistive Technology Arizona Technology Access Program (AZTAP) 2400 N. Central Avenue, Suite 300 Phoenix, AZ, 85004 (800) 477-9921 (toll-free) (602) 728-9534 (602) 728-9536 (TTY) http://www.nau.edu/ihd/aztap/
Autism Southwest Autism Research & Resource Center Campus for Exceptional Children 300 N. 18th Street Phoenix, AZ, 85006 (602) 340-8717 sarrc@autismcenter.org http://www.autismcenter.org
Autism Society of Greater Phoenix PO Box 10543 Phoenix, AZ, 85064 (480) 940-1093 info@phxautism.org http://www.phxautism.org
D D Council Governor’s Council on Developmental Disabilities 3839 N. 3rd Street, Suite 306 Phoenix, AZ, 85012 (602) 277-4986 fkahn@azdes.gov https://www.azdes.gov/ADDPC/Home/
Developmental Disabilities Department of Economic Security Division of Developmental Disabilities P.O. Box 6123, Site Code (791A) Phoenix, AZ, 85005 (602) 542-6853 http://www.azdes.gov/ddd
Early Intervention Arizona Early Intervention Program (AzEIP) Department of Economic Security 3839 N. 3rd Street, Suite 304 Phoenix, AZ, 85012 (888) 439-5609 (in AZ) (602) 532-9960 http://www.azdes.gov/azeip
Intellectual & Developmental Disabilities The Arc of Arizona 3839 N. 3rd Street, Suite 105 Phoenix, AZ, 85012 (866) 501-2721 (602) 234-2721, ext. 103 thearcaz@gmail.com http://www.arcarizona.org
Independent Living To find the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V) (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org
To find the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Learning Disabilities Learning Disabilities Association of Arizona 18001 N. 79th Ave., E-71 Glendale, AZ, 85308 (623) 206-2896 rcrawford@life-development-inst.org https://ldaamerica.org/lda-chapters/arizona/
Mediation Arizona Department of Education Exceptional Student Services 1535 W. Jefferson Phoenix, AZ, 85007 (602) 364-4011 http://www.ade.az.gov
Mental Health Mental Health Association of Arizona 6411 E. Thomas Road Scottsdale, AZ, 85251 (480) 994-4407, ext. 11 aberger@mhaarizona.org http://www.mhaarizona.org
Arizona Alliance for the Mentally Ill NAMI Arizona 2210 N. 7th Street Phoenix, AZ, 85006-1604 (800) 626-5022 (602) 244-8166 namiaz@namiaz.org http://namiarizona.org
Mental Health – Youth Division of Behavioral Health Services Department of Health Services 150 N. 18th Avenue, Suite 200 Phoenix, AZ, 85007 (602) 364-4753 nelsonla@azdhs.gov http://azdhs.gov
Parent Organizations Parent Information Network Exceptional Student Services Arizona Department of Education 3300 N. Central Ave. Phoenix, AZ 85012 (800) 237-3007 (602) 542-4013 becky.raabe@azed.gov http://www.azed.gov/special-education/
Enhancing Arizona’s Parent Networks (EAPN) Exceptional Student Services Arizona Department of Education 2384 N. Steves Boulevard Flagstaff, AZ, 86004 (623) 329-3089 http://www.ade.az.gov/ess/eapn/
Arizona Congress of Parents and Teachers, Inc. 2721 N. 7th Avenue Phoenix, AZ, 85007 (602) 279-1811 azpta@andiamo-tel.com http://www.azpta.org
Raising Special Kids 5025 E. Washington St., Suite 204 Phoenix, AZ, 85034-2005 (800) 237-3007 (in AZ only) (602) 242-4366 info@raisingspecialkids.org http://www.raisingspecialkids.org
Parent-to-Parent P2P at Raising Special Kids See listing for the Parent Training and Information Center.
Partners in Policymaking Pilot Parents of Southern Arizona 2600 N. Wyatt Drive Tucson, AZ, 85712 (877) 365-7220 (520) 324-3150 ppsa@pilotparents.org http://www.pilotparents.org
Preschool, Disabilities Arizona Department of Education Early Childhood Education 1535 W. Jefferson Street, Bin 15 Phoenix, AZ, 85007-3280 (602) 542-2727 valerie.james@azed.gov http://www.ade.az.gov
Protection & Advocacy Arizona Center for Disability Law 100 N. Stone St, Suite 305 Tucson, AZ, 85701 (520) 327-9547 (V/TTY) (800) 927-2260 center@azdisabilitylaw.org''http://www.azdisabilitylaw.orgRelay Services (800) 842-4681 (V) (800) 367-8939 (TTY); 711 (TTY) (800) 842-6520 (Speech to Speech)
Special Education Exceptional Student Services Arizona Department of Education 1535 W. Jefferson Street, Bin 24 Phoenix, AZ, 85007 (602) 542-4013 colette.chapman@azed.gov http://www.ade.az.gov/ess/
Special Format Library Arizona State Library Archives and Public Records Braille and Talking Book Division 1030 N. 32nd Street Phoenix, AZ, 85008 (800) 255-5578 (602) 255-5578 btbl@lib.az.us http://azlibrary.gov/talkingbooks/contact
Speech, Language, and Hearing ArSHA (The Arizona Speech-Language-Hearing Association) P.O. Box 12334 Tempe, AZ, 85284 (602) 354-8062 office@arsha.org http://www.arsha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://az.gov/
Transition Services Rehabilitation Services Administration 1789W Jefferson 2nd Floor NW Site 930A Phoenix, AZ, 85007 (602) 542-0751 (602) 463-9002 (cell) bschoen@azdes.gov
UCEDD Institute for Human Development Northern Arizona University P.O. Box 5630 Flagstaff, AZ, 86011 (928) 523-4791 (928) 523-1695 (TTY) Thomas.Uno@nau.edu http://nau.edu/sbs/ihd/
2-1-1 Arizona 2200 N. Central Avenue, Suite 601 Phoenix, AZ, 85004 2-1-1 (in AZ) (877) 211-8661 (anywhere) firstcall@cir.org http://www.211arizona.org
VSA arts of Arizona 3321 N. Chapel Avenue Tucson, AZ, 85716 (520) 795-6502 vsaaz@vsaaz.org http://www.vsaaz.org
Utah Resources
ADA Center Rocky Mountain ADA Center 3630 Sinton Road, Suite 103 Colorado Springs, CO, 80907 http://www.adainformation.org
Assistive Technology Utah Assistive Technology Program Center for Persons with Disabilities Utah State University 6855 Old Main Hill Logan, UT, 84322-6855 http://www.uatpat.org
Utah Center for Assistive Technology 1595 West 500 South Salt Lake City, UT, 84104-5238 http://ucat.usor.utah.gov/
Autism Autism Information Resources at the Utah Parent Center 2290 East 4500 South, Suite 110 Salt Lake City, UT, 84117 http://www.utahparentcenter.org
D D Council Utah Developmental Disabilities Council 155 South 300 West, Suite 100 Salt Lake City, UT, 84101 http://www.utahddcouncil.org/
Developmental Disabilities Division of Services for People with Disabilities Department of Human Services 195 N 1950 West Salt Lake City, UT, 84116 https://dspd.utah.gov/
Early Intervention BabyWatch Early Intervention Program Utah Department of Health P.O. Box 144720 Salt Lake City, UT, 84114-4720 http://www.utahbabywatch.org
Epilepsy Epilepsy Association of Utah 1995 West 9000 South Level B West Jordan, UT, 84088 http://www.epilepsyut.org
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/UT
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Washington County 523 Sunland Dr., Suite A St. George, UT 84790 www.thearc.orgÂ
Mediation Utah State Office of Education 250 East 500 South P.O. Box 144200 Salt Lake City, UT, 84114 http://www.schools.utah.gov
Mental Health Allies with Families 450 East 1000 North, Suite 311 North Salt Lake, UT, 84054 allies@allieswithfamilies.org http://www.allieswithfamilies.org
Mental Health – Youth Children, Youth and Families Team Utah Division of Substance Abuse and Mental Health 195 N 1950 West Salt Lake City, UT, 84116 (801) 538-3939 dsamh@utah.gov https://dsamh.utah.gov
Parent Organizations Family to Family Network A Project of the Utah Parent Center 230 West 200 South, Suite 1101 Salt Lake City, UT, 84101 http://www.utahfamilytofamilynetwork.org/
Parent Teacher Association (PTA) Utah Congress of Parents and Teachers 5192 S. Greenpine Drive Salt Lake City, UT, 84123 http://www.utahpta.org
Parent Training and Information Center (PTI) Utah Parent Center 230 West 200 South, Suite 1101 Salt Lake City, UT, 84101 http://www.utahparentcenter.org/
Special Education Special Education Services State Office of Education 250 East 500 South P.O. Box 144200 Salt Lake City, UT, 84114-4200 http://www.schools.utah.gov
Special Format Library Utah State Library Division Program for the Blind and Disabled 250 North 1950 West, Suite A Salt Lake City, UT, 84116-7901 http://blindlibrary.utah.gov
Special Health Care Needs Utah Department of Health Community and Family Health Services Children with Special Health Care Needs 44 North Medical Drive P.O. Box 144610 Salt Lake City, UT, 84114-4610 http://health.utah.gov/cfhs
Utah Division of Substance Abuse and Mental Health 120 North 200 West, Room 209 Salt Lake City, UT, 84103 (801) 538-3939 dsamh@utah.gov https://dsamh.utah.gov/
Speech, Language, and Hearing Utah Speech-Language-Hearing Association 1379 31st Street Ogden, UT, 84403 http://www.ushaonline.net/
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.utah.gov/
Transition Services Utah State Office of Education SPECIAL EDUCATION 250 East 500 South P.O. Box 144200 Salt Lake City, UT, 84114-4200 http://www.schools.utah.gov
UCEDD Center for Persons with Disabilities Utah State University University Center for Excellence in Disabilities 6800 Old Main Hill Logan, UT, 84322-6800 http://www.cpdusu.org
Vocational Rehabilitation Utah State Office of Rehabilitation P.O. Box 144200 Salt Lake City, UT, 84114-4200 http://www.usor.utah.gov
Other Organizations Utah Birth Defect Network Department of Health P.O. Box 144697 Salt Lake City, UT, 84114-4697 http://health.utah.gov/birthdefect
Access Utah Network (Statewide Information and Referral for Disability Issues) Salt Lake City, UT, 84101 (801) 533-4646
Turn Community Services Check website for county locations Phil Shumway, Executive Director philshumway@turndreams.org http://turncommunityservices.org/
Art Access/VSA arts of Utah 230 South 500 West #125 Salt Lake City, UT, 84101 http://www.accessart.org
Work Ability Utah Utah Department of Health Division of Health Care Financing c/o Office of Rehabilitation 1595 West 500 South Salt Lake City, UT, 84104 https://211utah.org/
Idaho Resources
ADA Center Northwest ADA Center Center for Continuing Education in Rehabilitation University of Washington 6912 220th St SW, #105 Mountlake Terrace, WA, 98043 (425) 248-2480 (V/TTY) (800) 949-4232 (V/TTY) dbtacnw@u.washington.edu http://www.nwadacenter.org
Assistive Technology Idaho Center for Assistive Technology Center on Disability & Human Development University of Idaho 1187 Alturas Dr Moscow, ID 83843 idahoat@uidaho.edu http://idahoat.org
Autism Autism Society of America, Treasure Valley Chapter PO Box 44831 Boise, ID, 83711 (208) 336-5676 autism.asatvc@yahoo.com http://www.asatvc.org
CHIP (health care for low-income uninsured children) 2-1-1 Idaho CareLine Idaho Department of Health and Welfare P.O. Box 83720 Boise, ID, 83720-0026 (800) 926-2588; or dial 2-1-1 careline@dhw.idaho.gov http://www.idahocareline.org
D D Council Idaho Council on Developmental Disabilities 700 W. State St. Boise, ID, 83702 (208) 334-2178 info@icdd.idaho.gov http://www.icdd.idaho.gov
Developmental Disabilities Division of Family and Community Services Department of Health and Welfare P.O. Box 83720 Boise, ID, 83720-0036 (208) 334-5536 cardwellc@dhw.idaho.gov http://www.healthandwelfare.idaho.gov
Epilepsy Epilepsy Foundation of Idaho 310 W. Idaho Boise, ID, 83702 (208) 344-4340 (800) 237-6676 (In ID) efid@epilepsyidaho.org http://www.epilepsyidaho.org
Early Intervention Children’s Developmental Services Family and Community Services Department of Health and Welfare P.O. Box 83720 450 W. State Street, 5th Floor Boise, ID, 83720-0036 (208) 334-5514 (800) 926-2588 jonesm@dhw.idaho.gov http://www.infanttoddler.idaho.gov
Bureau of Special Population Services Idaho Department of Education 650 West State Street Boise, ID, 83720-0027 (208) 332-6800 rhenderson@sde.idaho.gov http://www.sde.idaho.gov/site/special_edu/
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V) (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (V) (202) 207-0340 (TTY ncil@ncil.org http://www.ncil.org
Learning Disabilities Idaho Department of Health and Welfare Ross Edmunds, Administrator, 208-334-6997 www.healthandwelfare.idaho.govÂ
Mental Health Adult and Children’s Mental Health Programs Division of Family and Community Services Department of Health and Welfare P.O. Box 83720-5th Floor Boise, ID, 83720-0036 (208) 334-0969 http://www2.state.id.us/dhw/mentalhealth/
Jannus (formerly Mountain States Group) Main Office 1607 W. Jefferson Boise, ID, 83702 (208) 336-5533 ktucker@jannus.org www.jannus.org
Mental Health – Youth Children’s Mental Health Division of Behavioral Health Department of Health and Welfare P.O. Box 83720-3rd Floor Boise, ID, 83720-0036 (208) 334-6559 halligan@dhw.idaho.gov http://www.healthandwelfare.idaho.gov
Parent Organizations Parent Teacher Association (PTA) Idaho PTA 1655 W Fairview #109 Boise, ID, 83702 (208) 344-0851 idahopta@idahopta.org http://www.idahopta.net
Parent Training and Information Center (PTI) Idaho Parents Unlimited, Inc. (IPUL) 500 S 8th St. Boise, ID, 83702 (208) 342-5884 (V/TTY) (800) 242-4785 (in ID only) parents@ipulidaho.org http://ipulidaho.org
Special Format Library (for individuals with visual and/or physical disabilities) Idaho Commission for Libraries 325 W. State Street Boise, ID, 83702 (208) 334-2150 sue.walker@libraries.idaho.gov http://libraries.idaho.gov/tbs
Special Health Care Needs Children’s Special Health Program Bureau of Clinical and Preventive Services Idaho Department of Health and Welfare P.O. Box 83720 Boise, ID, 83720-0036 (208) 334-5962 scogginm@dhw.idaho.gov http://www.cshp.dhw.idaho.gov
State Division of Professional Technical Education P.O. Box 83720 Boise, ID, 83720-0095 (208) 334-3216 astephens@pte.idaho.gov http://www.pte.idaho.gov
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.idaho.gov/
Transition Services Idaho Council on Developmental Disabilities 700 W. State St., Suite 119 Boise, ID, 83702-5868 (208) 334-2178/(800) 544-2433 info@icdd.idaho.gove http://www.sde.idaho.gov/site/special_edu/
UCEDD Idaho Center on Disabilities and Human Development University of Idaho College of Education 121 W Sweet Avenue Moscow, ID, 83843 (208) 885-6000 (800) 393-7290 (800) 432-8324 (TTY) idahocdhd@uidaho.edu http://www.idahocdhd.org
Assistive Technology New Mexico Technology Assistance Program 625 Silver Ave. SW Ste. 100 B Albuquerque, NM 87102 http://www.tap.gcd.state.nm.us
D D Council New Mexico Developmental Disabilities Planning Council 625 Silver Avenue SW, Suite 100, Albuquerque, New Mexico 87102 http://www.nmddpc.com
Developmental Disabilities Developmental Disabilities Supports Division New Mexico Department of Health Harold Runnels Building 1190 S. St. Francis Drive Santa Fe, NM 87505 https://nmhealth.org/about/ddsd
Early Intervention Family Infant Toddler Program New Mexico Department of Health Harold Runnels Building 1190 S. St. Francis Drive Santa Fe, NM 87505 http://nmhealth.org/about/ddsd/pgsv/fit/
Information Center for New Mexicans with Disabilities BabyNet (for information about medical and support services for pre-natal, infants, toddlers, and individuals with disabilities) 2300 Menaul, N.E. Albuquerque, NM, 87107 http://www.cdd.unm.edu/infonet/babynet.html
Parents Organizations Community Parent Resource Center (Serving the 22 Tribes of New Mexico) Education for Parents of Indian Children with Special Needs (EPICS) 1600 San Pedro Dr. NE Albuquerque, NM, 87110 http://www.epicsnm.org
Special Education Special Education Bureau Public Education Department 300 Don Gaspar Avenue Santa Fe, NM, 87501-2786 http://www.ped.state.nm.us
Special Format Library New Mexico Library for the Blind and Physically Handicapped 1209 Camino Carlos Rey Santa Fe, NM, 87507-5166 http://www.nmstatelibrary.org/lbph
Special Health Care Needs Children & Youth with Special Health Care Needs Program New Mexico Department of Health 2040 S. Pacheco, Room 226B Santa Fe, NM, 87505 https://nmhealth.org/publication/view/guide/4582/
Speech, Language, and Hearing New Mexico Speech-Language-Hearing Association P .O. Box 87125 Albuquerque, NM, 87125 http://www.nmsha.net
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.state.nm.us
UCEDD University of New Mexico Center for Development and Disability 2300 Menaul Blvd NE Albuquerque, NM, 87107 http://cdd.unm.edu
Vocational Education, Disabilities Public Education Department Career-Technical and Workforce Education Bureau 300 Don Gaspar Avenue Santa Fe, NM, 87501 http://www.ped.state.nm.us/ctweb/programs.html
Division of Vocational Rehabilitation 435 St. Michaels Drive, Building D Santa Fe, NM, 87505 (800) 224-7005 (505) 954-8500 (505) 954-8562 http://www.dvr.state.nm.us/
Other Organizations To learn about independent living centers in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Governor’s Commission on Disabilities 491 Old Santa Fe Trail Santa Fe, NM 87501-2753 http://www.gcd.state.nm.us
New Mexico Behavioral Health Collaborative 37 Plaza La Prensa Santa Fe, NM 87507 http://www.bhc.state.nm.us
VSA arts of New Mexico 4904 Fourth Street, N.W. Albuquerque, NM, 87107 http://www.vsartsnm.org
Wyoming Resources
ADA Center Rocky Mountain ADA Center 3630 Sinton Road, Suite 103 Colorado Springs, CO, 80907 http://www.adainformation.org
Assistive Technology Wyoming Assistive Technology Resources Wyoming Institute for Disabilities University of Wyoming, Department 4298 1000 E. University Avenue Laramie, WY, 82071 http://wind.uwyo.edu
Career & Technical Education Wyoming Department of Education CTE Consultant: Career Guidance, Perkins Information Tonya Gerharter (307) 777-6808 tony.gerharter@wyo.gov https://edu.wyoming.gov/in-the-classroom/career-tech-ed/
CHIP Program (health care for low-income uninsured children) Wyoming Department of Health Office of Healthcare Financing/State Children’s Health Insurance Programs 6101 Yellowstone Road, Suite 210 Cheyenne, WY, 82002 http://health.wyo.gov/chip
Developmental Disabilities Department of Health – Behavioral Health Division 401 Hathaway Bldg Cheyenne, WY, 82002 (866) 571-0944/(307) 777-7656 https://health.wyo.gov/behavioralhealth/dd/
D D Council Brenda Oswald, Executive Director Governor’s Planning Council on Developmental Disabilities 122 W. 25th Street Herschler Building, 1st West Cheyenne, WY, 82002 http://ddcouncil.state.wy.us
Early Intervention Early Intervention and Education Program Department of Health – Developmental Disabilities Division 6101 Yellowstone Road, Suite 186E Cheyenne, WY, 82002 http://health.wyo.gov/ddd/earlychildhood/index.html
Independent Living Wyoming Services for Independent Living/WSIL (provides community services for individuals with disabilities, serving Western Wyoming) 1156 S. 2nd Street Lander, WY, 82520 http://www.wysil.org/
Wyoming Independent Living Rehabilitation, Inc. 305 W. 1st Street Casper, Wyoming, 82601 http://www.wilr.org
Mental Health Department of Health – Behavioral Health Division 6101 Yellowstone Road, Suite 220 Cheyenne, WY, 82002-0480 http://www.health.wyo.gov/mhsa/index.html
Parent Organization Parent Training and Information Center (PTI) Parent Information Center 500 W. Lott St., Ste A Buffalo, WY, 82834 http://www.wpic.org
Protection & Advocacy Wyoming P&A System 7344 Stockman Street Cheyenne, WY, 82009 http://www.wypanda.com
Special Health Care Needs Children’s Special Health Program Wyoming Department of Health 401 Hathaway Bldg Cheyenne, WY, 82002 (866) 571-0944/(307) 777-7656 https://health.wyo.gov/publichealth/mch/index-4/
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.wyoming.gov/
Transition Services Wyoming Department of Work Services 320 W. Main Riverton, WY, 82501 Check website for local offices http://wyomingworkforce.org/workers/vr/
UCEDD Wyoming Institute for Disabilities University of Wyoming, Dept. 4298 1000 E. University Avenue Laramie, WY, 82071 http://wind.uwyo.edu/
Vocational Rehabilitation Division of Vocational Rehabilitation Department of Workforce Services 122 W. 25th Street 1100 Herschler Building, 1 East Cheyenne, WY, 82002 http://www.wyomingworkforce.org/
RENEW – Rehabilitation Enterprises of North Eastern Wyoming 1969 S. Sheridan Avenue Sheridan, WY, 82801 http://www.renew-wyo.com
Montana Resources
ADA Center Rocky Mountain ADA Center 3630 Sinton Road, Suite 103 Colorado Springs, CO, 80907 (719) 444-0268 (V/TTY) (800) 949-4232 (V/TTY) adainfo@adainformation.org http://www.adainformation.org
Assistive Technology MonTECH Program The University of Montana, Rural Institute 634 Eddy Avenue, CHC-009 Missoula, MT, 59812 (406) 243-5676 (800) 732-0323 (V/TTY) http://montech.ruralinstitute.umt.edu
Developmental Disabilities Disability Services Division Department of Public Health and Human Services 111 North Sanders PO Box 4210 Helena, MT 59604-4210 (406) 444-2995 http://www.dphhs.mt.gov/dsd/
Independent Living To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0034 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Montana 205 E Park Ave Anaconda, MT 59711 (800) 432-6145/(406) 563-8117 Â mcaferro@aware-inc.org www.thearc.org
To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V) (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org
Learning Disabilities Learning Disabilities Association of Montana (888) 300-6711 http://www.ldaofmt.org
Mediation Early Assistance Program Montana Office of Public Instruction P.O. Box 202501 Helena, MT, 59620-2501 (406) 444-5664 http://www.opi.mt.gov
Mental Health Family Support Network (FSN) 1211 Grand, Suite 6 Billings, MT, 59102 (406) 256-7783 fsntoo@aol.com http://www.mtfamilysupport.org
Montana Mental Health Association P.O. Box 88 Bozeman, MT, 59771 (406) 589-7774 (888) 927-6642 info@montanamentalhealth.org http://www.montanamentalhealth.org
Addictive and Mental Disorders Division Department of Public Health and Human Services P.O. Box 202905 Helena, MT, 59620-2905 (406) 444-3969 HHSAMDDMH@mt.gov http://www.dphhs.mt.gov/
Mental Health – Children Children’s Mental Health Bureau Health Resources Division Department of Public Health and Human Services 1400 Broadway – Cogswell Building – Room A116 P.O. Box 202951 Helena, MT, 59620-2951 (406) 444-4540 Check website for local offices http://www.dphhs.mt.gov/mentalhealth/children
Parent Organizations Parent Teacher Association (PTA) IDEA PTA (Individuals with Diverse and Exceptional Abilities) P.O. Box 7724 Missoula, MT, 59807 (406) 728-1124 lotus@bigsky.net
Parent Teacher Association (PTA) Montana Congress of Parents and Teachers, Inc. P.O. Box 6448 Great Falls, MT, 59406 (406) 268-7475 montana_pta@gfps.k12.mt.us http://www.montanapta.org
Parent Training and Information Center (PTI) Parents, Let’s Unite For Kids (PLUK) 516 N. 32nd Street Billings, MT, 59101-6003 (406) 255-0540 (800) 222-7585 (MT only) plukinfo@pluk.org http://www.mtpluk.org
Protection & Advocacy Disability Rights Montana 1022 Chestnut Street Helena, MT, 59601 (800) 245-4743 (V/TTY) (406) 449-2344 advocate@disabilityrightsmt.org http://www.disabilityrightsmt.org
Preschool, Disabilities Montana Office of Public Instruction P. O. Box 202501 Helena, MT, 59620-2501 (406) 444-3095 (888) 231-9393 opisupt@mt.gov http://www.opi.mt.gov
Special Health Care Needs Children’s Special Health Services Health Care Resources Bureau Department of Public Health and Human Services P. O. Box 202951 Helena, MT, 59620 -2951 (406) 444-3622 cscott@mt.gov http://cscott@mt.gov
Special Format Library Montana Talking Book Library 1515 E Sixth Avenue P.O. Box 201800 Helena, MT, 59620-1800 (406) 444-2064 (800) 332-3400 http://msl.mt.gov/tbl/tbl.asp
Speech, Language, and Hearing Montana Speech-Language-Hearing Association Box 215 Miles City, MT, 59301 (406) 234-8727 info@mshaonline.org http://www.mshaonline.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.mt.gov/
Transition Services Division of Special Education Office of Public Instruction P.O. Box 202501 Helena, MT, 59620 (888) 231-9393 (406) 444-3095 tharris@mt.gov http://www.opi.mt.gov/Programs/SpecialEd/
UCEDD The University of Montana Rural Institute Center for Excellence in Disability Education, Research, and Service 52 Corbin Hall Missoula, MT, 59812 (406) 243-5467 (800) 732-0322 (406) 243-5467 (TTY) rural@ruralinstitute.umt.edu http://ruralinstitute.umt.edu
Vocational Rehabilitation Vocational Rehabilitation Programs Department of Public Health and Human Services P. O. Box 4210 Helena, MT, 59604-4210 (877) 296-1197 (406) 444-2590 vrinfo@mt.gov http://www.dphhs.mt.gov/detd/vocrehab/index.shtml
Easter Seals-Goodwill Northern Rocky Mountains, Inc. 4400 Central Avenue Great Falls, MT, 59405 (406) 761-3680 (V/TTY); (800) 771-2153 michelleb@esgw.org http://www.esgw-nrm.easterseals.com
Support & Techniques for Empowering People (S.T.E.P.) Inc. 644 Grand Ave., Suite 1Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Billings, MT, 59101 http://www.msubillings.edu/mtcd
Montana Center on Disabilities Montana State University – Bozeman  (406) 994-6701 (V/TTY) http://www.montana.edu
VSA arts of Montana 200 N. Adams, MCT, Broadway Studio Missoula, MT, 59802 (406) 549-2984
Oklahoma Resources
ADA Center Oklahoma Southwest ADA Center 2323 S. Shepherd, #1000 Houston, TX, 77019 http://www.southwestada.org
Assistive Technology Oklahoma ABLE Tech Oklahoma State University, Seretean Wellness Center 1514 W. Hall of Fame Stillwater, OK, 74078-2026 (800) 257-1705 abletech@okstate.edu https://www.okabletech.org
Career & Technical Education Oklahoma Department of Career and Technology Education 1500 W. 7th Avenue Stillwater, OK, 74074-4364 http://okcareertech.org
D D Council Oklahoma Developmental Disabilities Council 2401 N.W. 23rd Street, Suite 74 Oklahoma City, OK, 73107 http://www.okddc.ok.gov
Developmental Disabilities Developmental Disabilities Services Department of Human Services Sequoyah Memorial Office Building 2400 N. Lincoln Blvd., Oklahoma City, OK 73105 PO Box 25352, Oklahoma City, OK 73125-0352 http://www.okdhs.org/services/dd/Pages/default.aspx
Early Intervention SoonerStart Special Education Services Oklahoma State Department of Education 2500 N. Lincoln Boulevard, Suite 510 Oklahoma City, OK, 73105-4599 http://sde.ok.gov/sde/soonerstart
Epilepsy Epilepsy Association of Oklahoma 11212 N. May Ave. Suite 108 Oklahoma City, OK. 73120 http://www.okepilepsy.org
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Intellectual & Developmental Disabilities TARC 2516 East 71st St., Suite A Tulsa, OK, 74136-5531 http://www.ddadvocacy.net
Mental Health Department of Mental Health and Substance Abuse Services 1200 NE 13th Street, Oklahoma City, OK 73117 P .O. Box 53277, Oklahoma City, OK, 73152-3277 http://www.odmhsas.org
NAMI Oklahoma 3037 NW 63rd, Suite 104W Oklahoma City, OKÂ 73116 (800) 583-1264 (in OK) http://www.namioklahoma.org
Parent Organizations Oklahoma Family Network 800 NE 15th Street, Suite 51 PO Box 21072 Oklahoma City, OK, 73156-1072 http://www.oklahomafamilynetwork.org
Sooner SUCCESS University of Oklahoma Health Sciences Center 940 N.E. 13th Street, Suite 4900 Oklahoma City, OK, 73104 http://soonersuccess.ouhsc.edu
Protection & Advocacy Oklahoma Disability Law Center, Inc. 2915 Classen Blvd., 300 Cameron Bldg Oklahoma City, OK, 73106 2828 E 51 St., Suite 302 Tulsa, OK 74105 (800) 226-5883 http://www.okdlc.org/
Special Education Special Education Services Department of Education 2500 N. Lincoln Boulevard, Suite 412 Oklahoma City, OK, 73105-4599 http://www.ok.gov/sde/
Special Format Library Oklahoma Library for the Blind and Physically Handicapped Department of Rehabilitation Services 300 N.E. 18th Street Oklahoma City, OK, 73105 http://www.library.state.ok.usÂ
Special Health Care Needs Adult and Family Services Department of Human Services 2400 N. Lincoln Blvd P .O. Box 25352 Oklahoma City, OK, 73125 http://www.okdhs.org/Pages/default.aspx
Family Voices of Oklahoma, at Oklahoma Family Network 800 NE 15TH Street, Suite 316, Oklahoma City, OK 73104 PO Box 21072 , Oklahoma City, OK, 73156-1072 http://www.oklahomafamilynetwork.org
Speech, Language, and Hearing Oklahoma Speech-Language-Hearing Association 3126 S. Boulevard St. #180 Edmond, OK 73013 http://www.oslha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.ok.gov
UCEDD Center for Interdisciplinary Learning and Leadership University of Oklahoma Health Sciences Center College of Medicine 800 N.E. 15th Street, Oklahoma City, OK 73104-4614 P .O. Box 26901, ROB 342, Oklahoma City, OK, 73190-3042 http://www.ouhsc.edu/thecenter
Vocational Rehabilitation Department of Rehabilitation Services 3535 N.W. 58th, Suite 500 Oklahoma City, OK, 73112 http://www.okrehab.org/job-seekers/dvr
J.D. McCarty Center for Children with Developmental Disabilities 2002 E. Robinson Street Norman, OK, 73071 http://www.jdmc.org
Oklahoma Office of Disability Concerns 2401 N.W. 23rd, Suite 90 Oklahoma City, OK, 73107 http://www.ohc.state.ok.us/
Kansas Resources
ADA Center Great Plains ADA Center 100 Corporate Lake Drive Columbia, MO, 65203 adacenter@missouri.edu http://www.gpadacenter.org/
Assistive Technology Assistive Technology for Kansans Project (campuses in Lawrence, Kansas City, Overland Park, Wichita and Salina) 1450 Jayhawk Blvd. Lawrence, KS, 66045 http://atk.ku.edu/
D D Council Kansas Council on Developmental Disabilities Docking State Office Building, Room 141 915 S.W. Harrison Street Topeka, KS, 66612-1570 http://www.kcdd.org
Early Intervention Children’s Developmental Services Kansas Department of Health and Environment 1000 SW Jackson Street, Suite 220 Topeka, KS, 66612-1274 http://www.kdheks.gov/cds/index.html
Epilepsy Epilepsy Foundation of Kansas and Western Missouri St. Louis, MO (314) 781-4949/(800) 264-6970 Kansas City, MO (816) 444-2800/(844) 415-7152 epilepsy@efmk.org https://efmk.org/
Parent Organizations Parent Teacher Association (PTA) Kansas Congress of Parents and Teachers 715 SW 10th St. Topeka, KS, 66612-1686 http://www.kansas-pta.org/
Parent Training and Information Center (PTI) Families Together, Inc. 3033 W. Second, Suite 106 Wichita, KS, 67203 http://www.familiestogetherinc.org/
Partners in Policymaking Kansas Developmental Disabilities Council Docking State Office Building, Room 141 915 SW Harrison Street Topeka, KS, 66612-1570 http://www.kcdd.org/
Special Format Library Kansas State Library Talking Book Service 1 Kellogg Circle PO Box 4055 Emporia, KS 66801-5415 http://kslib.info/153/Talking-Books
Special Health Care Needs Services for Children with Special Health Care Needs Department of Health and Environment 1000 SW Jackson Street, Suite 220 Topeka, KS, 66612-1274 Find regional offices: http://www.kdheks.gov/shcn/
Speech, Language, and Hearing Kansas Speech-Language-Hearing Association 6001 Cherokee Drive Fairway, KS, 66205 http://www.ksha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.kansas.gov
UCEDD Kansas University Center on Developmental Disabilities University of Kansas 1052 Robert Dole Human Development Center Lawrence, KS, 66045 (785) 864-4295 https://kucdd.ku.edu
Special Olympics Kansas 5280 Foxridge Drive Mission, KS, 66202 (913) 236-9290 kso@ksso.org Check website for regional offices and contacts http://ksso.org/
Arkansas Resources
ADA Center Southwest ADA Center TIRR Memorial Hermann – ILRU 1333 Moursund Houston, TX 77030 (713) 797-7171/(800) 949-4232 swdbtac@ilru.org http://www.southwestada.org/
Assistive Technology ICAN Arkansas 900 W. 7th St. Little Rock, AR 72201 9501) 666-8868/(800) 828-2799 http://ar-ican.org/
Autism Arkansas Autism Resource & Outreach Center 322 Main St., Suite 501 Little Rock, AR 72201 (501) 454-8542/(800) 342-2923 ddvarady@uark.edu http://aaroc.org/
Developmental Disabilities Arkansas Department of Human Services Division of Developmental Disabilities Services PO Box 1437, Slot N505 Little Rock, AR 72203Â (503) 683-0870 http://humanservices.arkansas.gov/ddds/Pages/default.aspx
Mental Health – Youth Arkansas Department of Human Services Division of Behavioral health Services 305 S. Palm St. Little Rock, AR 72205 (501) 682-1001 https://humanservices.arkansas.gov/about-dhs/daabhs/behavioral-health-services
Parent Organizations Arkansas PTA PO Box 1015Â North Little Rock, AR 72115 (501) 753-5247 office@arkansasPTA.org http://www.arkansaspta.org/
Partners in Policymaking Arkansas Developmental Disabilities Council 5800 W 10th St., Suite 805 Little Rock, AR 72204 (501) 661-2519/(800) 462-0599 mary.edwards@arkansas.gov http://www.ddcouncil.org/
Preschool, Disabilities Arkansas department of Education Special Education Unit 1401 W Capital Ave. Victory Building, Suite 450 Little Rock, AR 72201 (501) 682-4221 https://arksped.k12.ar.us/index.html
Protection & Advocacy Disability Rights Center of Arkansas 400 W. Capitol, Suite 1200 Little Rock, AR 72201 (501) 296-1775/(800) 482-1174 http://disabilityrightsar.org/
Special Education Arkansas Department of Education Special Education Unit 1401 Capitol Ave. Victory Building, Suite 450 Little Rock, AR 72201 (501) 682-4221 https://arksped.k12.ar.us/index.html
Special Format Library Arkansas State Library 900 Capitol, Suite 100 Little Rock, AR 72201 (501) 682-2053 http://www.asl.lib.ar.us/#
Speech, Language, and Hearing Arkansas Speech-Language-Hearing Association PO Box 24103 Little Rock, AR 72221 (501) 244-0621 arksha@arksha.org http://www.arksha.org/
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.arkansas.gov/
Transition Services Arkansas Transition Services Check website for county office locations and contacts http://www.arkansastransition.com/
UCEDD Partners for Inclusive Communities University of Arkansas at Fayetteville 322 Main, Suite 501 Little Rock, AR 72201 (501) 301-1100/(800) 342-2923 partners@uark.edu https://uofapartners.uark.edu/
ADA Center Great Plains ADA Center 100 Corporate Lake Drive Columbia, MO, 65203 (800) 949-4232 http://www.gpadacenter.org/
Assistive Technology Iowa Program for Assistive Technology Center for Disabilities and Development 100 Hawkins Drive Iowa City, IA, 52242-1011 (319) 356-1434 IPAT@uiowa.edu http://www.iowaat.org/
To find out the contact information for centers for INDEPENDENT LIVINGÂ (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0340 (TTY) (202) 207-0334 (V) ncil@ncil.org http://www.thearcofiowa.org
Learning Disabilities Learning Disabilities Association of Iowa 5665 Greendale Rd, Suite D Johnston, IA, 50131 (515) 280-8558 http://ldaiowa.org/
Mental Health NAMIÂ Iowa 3839 Merle Hay Rd., Suite 229 Des Moines, IA 50310 (800) 950-6264 (515) 254-0417 lori@iffcmh.org http://www.namiiowa.org
Mental Health – Youth State Mental Health Agency/State DD Program Mental Health and Disabilities Services Department of Human Services Hoover State Office Building, 5th Floor 1305 E. Walnut Street Des Moines, IA, 50319-0114 (515) 242-6845 mmohrha@dhs.state.ia.us http://www.dhs.iowa.gov/mhds/mental-health
Protection & Advocacy Disability Rights Iowa 400 E. Court Ave, Suite 300 Des Moines, IA, 50309 (800) 779-2502 (515) 278-2502 info@DRIowa.org http://disabilityrightsiowa.org/
Special Health Care Needs Health Information Center of Iowa 321 E. 6th Street Des Moines, IA, 50309 (800) 450-8667 (515) 243-1713 (800) 735-2942 (Relay in IA) f2finfo@askresource.org http://www.uihealthcare.com/chsc
Special Format Library Iowa Department for the Blind Library Services 524 Fourth Street Des Moines, IA, 50309-2364 (800) 362-2587 (515) 281-1333 contact@blind.state.ia.us https://blind.iowa.gov/library
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.iowa.gov
Other Organizations Easter Seals Iowa 401 NE 66th Ave Des Moines, IA, 50313 (515) 289-1933 info@eastersealsia.org http://www.easterseals.com/ia/
Angelman Syndrome Foundation 75 Executive Drive, Suite 327 Aurora, IL 60504 Tel. 800-432-6435
Minnesota Resources
ADA Center Great Lakes ADA Center University of Illinois at Chicago Institute on Disability & Human Development (MC 728) 1640 West Roosevelt Road, Room 405 Chicago, IL, 60608 (312) 413-1407 (V/TTY) (800) 949-4232 (V/TTY) http://www.adagreatlakes.org
Assistive Technology STAR Program 358 Centennial Office Building 658 Cedar Street St. Paul, MN, 55155< (651) 201-2640 (888) 234-1267 (800) 627-2527 (TTY) TTY: MN Relay at 711 http://www.mn.gov/admin/star/
CHIP (health care for low-income uninsured children) MinnesotaCare P.O. Box 64838 St. Paul, MN, 55164-0838 (651) 431-2801 (800) 657-3672 (800) 627-3529 (TTY) http://www.benefits.gov/benefits/benefit-details/607
D D Council Minnesota Governor’s Council on Developmental Disabilities 370 Centennial Office Building 658 Cedar Street St. Paul, MN, 55155 (651) 296-4018 (877) 348-0505 (800) 627-3529 (MN Relay service) http://www.mncdd.org
Developmental Disabilities Disabilities Service Division Department of Human Services 540 Cedar Street P.O. Box 64967 St. Paul, MN, 55164-0967 (651) 431-4300 http://www.dhs.state.mn.us
Early Intervention Minnesota Department of Education Division of Early Learning Services 1500 Highway 36 West Roseville, MI, 55113-4266 (651) 582-8689 http://education.state.mn.us/MDE/index.html
Metropolitan Center for Independent Living 530 Robert Street North Saint Paul, MN, 55101 (651) 646-2006 http://www.mcil-mn.org
Intellectual & Developmental Disabilities The Arc of Minnesota 800 Transfer Road, Suite 7A St. Paul, MN, 55114 http://www.TheArcofMinnesota.org
Learning Disabilities Learning Disabilities Association of Minnesota 6100 Golden Valley Road Golden Valley, Minnesota 55422 (952) 922-8374 http://www.ldaminnesota.org
Mental Health Mental Health Association of Minnesota 475 Cleveland Avenue N – suite 222 Saint Paul, MN, 55104 (800) 862-1799 http://www.mentalhealthmn.org
NAMI-Minnesota (National Alliance on Mental Illness) 800 Transfer Road, Suite 31 St. Paul, MN, 55114 (651) 645-2948 (888) NAMI-HELPS http://www.namihelps.org
Minnesota Association for Children’s Mental Health 165 Western Avenue, Suite 2 St. Paul, MN, 55102 (651) 644-7333 (800) 528-4511 info@macmh.org http://www.macmh.org
Department of Human Services P.O. Box 64981 St. Paul, MN, 55164-0988 (651) 431-2225 http://mn.gov/dhs/
Children’s Mental Health Division P.O. Box 64985 St. Paul, MN, 55164-0985 (651) 431-2321 http://mn.gov/dhs/
Parent Organizations Parent Teacher Association (PTA) Minnesota Congress of Parents, Teachers and Students 1667 Snelling Avenue North, suite 111 St. Paul, MN, 55108 (651) 999-7320 (800) 672-0993 http://www.mnpta.org
Parent Training and Information Center (PTI) PACER Center, Inc. 8161 Normandale Boulevard Minneapolis, MN, 55437-1044 (952) 838-9000 (952) 838-0190 (TTY) (888) 248-0822(in MN) http://www.pacer.org
Partners in Policymaking Government Training Services 2233 University Avenue West, Suite 150 St. Paul, MN, 55114 (651) 222-7409, ext. 205 http://www.mngts.org
Special Education Minnesota Department of Education Special Education Programs 1500 Highway 36 West Roseville, MN, 55113-4266 (651)Â 582-8616 mde.special-ed@state.mn.us http://education.state.mn.us/MDE/fam/sped/index.htm
Speech, Language, and Hearing Minnesota Speech-Language-Hearing Association 1000 Westgate Drive, Suite 252 St. Paul, MN, 55114 (651) 290-6292 http://www.msha.net
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.state.mn.us
UCEDD Institute on Community Integration University of Minnesota College of Education and Human Development 102 Pattee Hall 150 Pillsbury Drive SE Minneapolis, MN, 55455 (612) 624-6300 http://ici.umn.edu/
Vocational Rehabilitation Rehabilitation Services Branch Department of Employment and Economic Development First National Bank Building 332 Minnesota Street, #E200 St. Paul, MN, 55101 (651) 296-7510 (800) 328-9095 http://mn.gov/deed/job-seekers/disabilities/
Other Organizations
Goodwill/Easter Seals 553 Fairview Avenue North St. Paul, MN, 55104 (651) 379-5800 (V/TTY) (800) 669-6719 http://www.goodwilleasterseals.org
Minnesota State Council on Disability 121 E. 7th Place, Suite 107 St. Paul, MN, 55101 (651) 361-7800 (V/TTY) (800) 945-8913 (V/TTY) http://www.disability.state.mn.us
VSA arts of Minnesota The Cowels Center 528 Hennepin Avenue, Suite 305 Minneapolis, MN, 55403 (612) 332-3888 (800) 801-3883 http://www.vsamn.org
Wisconsin Resources
ADA Center Great Lakes ADA Center University of Illinois at Chicago Institute on Disability & Human Development (MC 728) 1640 West Roosevelt Road, Room 405 Chicago, IL, 60608 http://www.adagreatlakes.org
D D Council Board for People with Developmental Disabilities 201 W. Washington Avenue, Suite 110 Madison, WI, 53703 http://www.wi-bpdd.org/
Developmental Disabilities Developmental Disabilities Services Section Division of Long Term Care Department of Health Services 1 W. Wilson Street, Room 418 Madison, WI, 53707-7851 https://www.dhs.wisconsin.gov/long-term-care-support.htm
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 2013 H St. NW Washington, DC, 20036 http://www.ncil.org
Intellectual & Developmental Disabilities The Arc Wisconsin PO Box 201 Stoughton, WI 53589 info@arcwi.org https://arcwi.org/
Learning Disabilities Learning Disabilities Association of Wisconsin P.O. Box 14690 Madison, WI, 53708-0690 http://www.LDAWisconsin.com
Mediation Wisconsin Special Education Mediation System Burns Mediation Services P.O. Box 107 Hartland, WI, 53029-0107 http://www.wsems.us
Mental Health Mental Health America of Wisconsin 600 W. Virginia St, Suite 502 Milwaukee, WI 53204 http://www.mhawisconsin.org
Parent Organizations Community Parent Resource Center Alianza Latina Aplicando Soluciones 1615 S. 22nd St., Ste 109 Milwaukee, WI, 53204 http://alianzalatinawi.org
Wisconsin Statewide Parent-Educator Initiative 25 S. Webster Street, Madison, WI 53703 P.O. Box 7841 Madison, WI 53707 http://dpi.wi.gov/sped/families
Wisconsin Parent Teacher Association (PTA) 4797 Hayes Road, Suite 102 Madison, WI, 53704-3256 http://www.wisconsinpta.org/
Parent Training and Information Center (PTI) Wisconsin FACETS 600 W. Virginia Street, Suite 501 Milwaukee, WI, 53204 http://www.wifacets.org
Parent to Parent of Wisconsin 1020 Kabel Avenue Rhinelander, WI, 54501 http://www.p2pwi.org
Special Education Department of Public Instruction 125 S. Webster Street P.O. Box 7841 Madison, WI, 53707-7841 http://dpi.wi.gov/sped/topics
Special Health Care Needs Family Voices of Wisconsin Family-to-Family Health Information Network P.O. Box 55029 Madison, WI, 53705 http://www.familyvoicesofwisconsin.com/
Special Format Library Wisconsin Talking Book and Braille Library (WTBBL) 813 W. Wells Street Milwaukee, WI, 53233-1436 http://dpi.wi.gov/talkingbooks
Speech, Language, and Hearing Wisconsin Speech-Language-Pathology and Audiology Professional Association 563 Carter Court, Suite B Kimberly, WI 54316 http://www.wisha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.wisconsin.gov
UCEDD Waisman Center University of Wisconsin – Madison 1500 Highland Avenue Madison, WI, 53705-2280 http://ucedd.waisman.wisc.edu
Vocational Education, Disabilities Career and Technical Education Department of Public Instruction P.O. Box 7841 Madison, WI, 53707-7841 http://dpi.wi.gov/cte?old=cte.dpi.wi.gov/
Vocational Rehabilitation Division of Vocational Rehabilitation Department of Workforce Development 201 East Washington Avenue PO Box 7946 Madison, WI, 53707 http://dwd.wisconsin.gov/dvr/
VSA arts of Wisconsin, Inc. 1709 Aberg Avenue, Suite 1 Madison, WI 53704 http://www.vsawis.org
Governor’s Committee for People with Disabilities 1 W. Wilson Street, Room 551 Madison, WI, 53703 (608) 266-9354 https://gcpd.wisconsin.gov
Kentucky Resources
ADA Center Southeast ADA Center 1419 Mayson Street NE Atlanta, GA, 30324 (800) 949-4232 (V/TTY) (404) 541-9001 (V/TTY) ADAsoutheast@law.syr.edu http://www.adasoutheast.org
Assistive Technology Kentucky Assistive Technology Service (KATS) Network Charles McDowell Center 200 Juneau Drive – Ste 200 Louisville KY, 40234 (800) 327-5287 (V/TTY, in KY) (502) 429-4484 (V/TTY); http://www.katsnet.org
Autism Autism Society of the Bluegrass 1405 E. Burnett Ave Louisville, KY 40217 (502) 852-4631 (800) 334-8635 http://www.asbg.org
Kentucky Autism Training Center College of Education and Human Development University of Louisville 1405 E. Burnett Ave Louisville, KY 40217 (502) 852-4631 (800) 334-8635 www.louisville.edu/education/kyautismtraining
CHIP (health care for low-income uninsured children) KCHIP Cabinet for Health and Family Services Office of the Secretary 275 E. Main Street Frankfort, KY, 40621 (877) 524-4718 (800) 662-5397 (Spanish) (877) 524-4719 (TTY) http://www.kidshealth.ky.gov/
D D Council Commonwealth Council on Developmental Disabilities 32 Fountain Place Frankfort, KY, 40601 (877) 367-5332 https://councilondd.org/
Developmental Disabilities The Council on Developmental Disabilities 1151 So. Fourth St Louisville, KY 40202 502-584-1239 info@councilondd.org www.councilondd.org
Early Intervention Kentucky Cabinet for Health and Human Services 312 Whittington Parkway Louisville, KY, 40222 (502) 429-1249 (800) 442-0087 http://chfs.ky.gov/
Epilepsy Epilepsy Foundation of Kentuckiana 982 Eastern Parkway Louisville, KY, 40217 (866) 275-1078 (502) 637-4440 http://www.efky.org
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V); (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (V); (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Kentucky 706 E. Main, Suite A Frankfort, KY, 40601 (800) 281-1272 (502) 875-5225 arcofky@aol.com http://arcofky.org
Learning Disabilities Learning Disabilities Association of Kentucky, Inc. 2210 Goldsmith Lane, Suite 118 Louisville, KY, 40218 (502) 473-1256 LDAofky@yahoo.com http://www.LDAofky.org
Mediation Office of Teaching and Learning Division of Learning Services 300 Sower Blvd., 5th floor Frankfort, KY, 40601 (502) 564-4970 http://www.education.ky.gov
Mental Health Department for Mental Health/Developmental Disabilities and Addiction Services Cabinet for Health and Family Services 100 Fair Oaks Lane, 4E-B Frankfort, KY, 40621-0001 (502) 564-4527 http://dbhdid.ky.gov/kdbhdid/default.aspx
Children’s Behavioral Health and Recovery Services 275 E. Main St. 4WG Frankfort, KY, 40621 (502) 564-4456 beth.jordan@ky.gov http://dbhdid.ky.gov/dbh/children.aspx
Mental Health America of Kentucky 120 Sears Avenue, Suite 213 Louisville, KY, 40207 (888) 705-0463 (502) 893-0460 mhaky@mhaky.org http://www.mhaky.org
Mental Health Association of Northern Kentucky 605 Madison Avenue Covington, KY, 41011 (859) 431-1077 mhanky@mhanky.org http://www.mhanky.org
NAMI Kentucky Main Office 2441 S Hwy. 27 Somerset, KY Â 42501 (606) 677-4066 (800) 257-5081 http://namiky.org
Kentucky Mental Health Coalition 120 Sears Avenue, Suite 212 Louisville, KY, 40207 (502) 894-0222 actionoffice@bellsouth.net http://www.advocacyaction.net
Kentucky Partnership for Families and Children 207 Holmes Street, First Floor Frankfort, KY, 40601 (800) 369-0533 (502) 875-1320 https://kypartnership.org/
Mental Health – Youth Kentucky Cabinet for Health and Family Services 275 E. Main St. Frankfort, KY, 40621 (502) 564-4456 beth.jordan@ky.gov http://dbhdid.ky.gov/dbh/children.aspx
Parent Training and Information Center (PTI) Kentucky Special Parent Involvement Network (KY-SPIN) 801 N. 29th St Paducah, KY 42001 270-444-9687 http://www.kyspin.com
Preschool, Disabilities Division of Early Childhood Development Department of Education 500 Mero Street, Capital Plaza Tower Frankfort, KY, 40601 (502) 564-8341 http://Â www.education.ky.gov
Protection & Advocacy Kentucky Protection and Advocacy 100 Fair Oaks Lane, Third Floor Frankfort, KY, 40601 (800) 372-2988 (V/TTY in KY) (502) 564-2967 http://kypa.net/
State Coordinator for the Americans with Disabilities Act 500 Mero Street Capital Plaza Tower, 2nd Floor Frankfort, KY, 40601 (502) 564-3850 norbj.ryan@ky.gov http://ada.ky.gov
Special Format Library Kentucky Library for the Blind and Physically Handicapped 300 Coffee Tree Road PO Box 537 Frankfort, KY, 40602-0818 (800) 372-2968 (502) 564-8300 KTBL.Mail@ky.gov www.kdla.ky.gov/librarians/talkingbook/pages/default.aspx
Special Health Care Needs Commission for Children with Special Health Care Needs 310 Whittington Parkway, Suite 200 Louisville, KY, 40222 (502) 429-4430 (800) 232-1160 CCSHCNWebPage@ky.gov www.chs.ky.gov/ccshcn
Speech, Language, and Hearing Kentucky Speech-Language-Hearing Association 838 East High Street, Suite 263 Lexington, KY, 40502 (800) 837-2446 kshaoffice@ksha.info http://ksha.info
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://kentucky.gov/
UCEDD University of Kentucky UCE Human Development Institute Office of the Vice President for Research University of Kentucky 126 Mineral Industries Building Lexington, KY, 40506-0051 (859) 257-1714 http://www.hdi.uky.edu
Vocational Rehabilitation Office of Vocational Rehabilitation Education and Workforce Development Cabinet Department of Workforce Investment 275 East Main St, Mail Stop 2E-K Frankfort, KY 40621 (502) 564-4440 WFD.VOCREHAB@ky.gov http://ovr.ky.gov
Office of Career and Technical Education 300 Sower Blvd., 5th floor Frankfort, KY, 40601 (502) 564-4286 http://www.education.ky.gov/CTE
Kentucky Disabilities Coalition 859 E. Main St. A Frankfort, KY, 40601 (502) 875-1871Â
United Way 2-1-1 100 Midland Ave, Ste 300 Lexington, KY 40508 (859) 233-4460 http://www.uwbg.org
Kentucky Education Rights Center, Inc. 256 Abbey Rd. Versailles, KY, 40383 (859) 983-9222
VSA arts of Kentucky 515 E. 10th Ave. Bowling Green, KY 42101 (207) 781-0872 director@vsartsky.org http://vsartsky.org
Mississippi Resources
ADA Center Southeast ADA Center 1419 Mayson Street NE Atlanta, GA, 30324 (404) 541-9001 (V/TTY) (800) 949-4232 (V/TTY) ADAsoutheast@law.syr.edu http://www.adasoutheast.org
CHIP (health care for low-income uninsured children) Mississippi Health Benefits Division of Medicaid 550 High Street, Suite 1000 Jackson, MS, 39201 (601) 359-6050 http://www.medicaid.ms.gov
D D Council Council on Developmental Disabilities 1101 Robert E. Lee Building 239 N. Lamar St. Jackson, MS, 39201 (601) 359-1270 http://www.mscdd.org
Developmental Disabilities Mississippi Department of Mental Health 1101 Robert E. Lee Building 239 N. Lamar Street Jackson, MS, 39201 (601) 359-1288 www.dmh.ms.gov/who-we-are/idd-programs
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Mississippi 704 North President St. Jackson, MS 39202 (601) 355-0220 http://www.arcms.org
Early Intervention First Steps Early Intervention System Mississippi Department of Health P.O. Box 1700 570 E. Woodrow Wilson Jackson, MS, 39215-1700 (601) 576-7427 (800) 451-3903 (in MS) web@HealthyMS.com www.msdh.ms.gov/msdhsite/_static/41,0,74.html
Mediation Mississippi Department of Education Office of Special Education P.O. Box 771 Jackson, MS, 39205 (601) 359-3491 jbounds@mde.k12.ms.us http://www.mde.k12.ms.us
Mental Health Department of Mental Health 1101 Robert E. Lee Building 239 N. Lamar Street Jackson, MS, 39201 (601) 359-1288 ed.legrand@dmh.state.ms.us http://www.dmh.state.ms.us
Mental Health Association of Mississippi 4803 Harrison Circle Gulfport, MS, 39507 (228) 864-6274 info@msmentalhealth.org www.msmentalhealth.org
NAMI Mississippi 2618 Southerland St Jackson, MS 39216 (800) 357-0388 stateoffice@namims.org http://namims.org/
Mississippi Families As Allies for Children’s Mental Health 840 E River Pl., Ste 500 Jackson, MS, 39202 (601) 355-0915 (800) 833-9671 http://www.faams.org/
Mental Health – Youth Division of Children and Youth Services Department of Mental Health 1101 Robert E. Lee Building 239 N. Lamar Street Jackson, MS, 39201 (601) 359-1288 http://www.dmh.state.ms.us
Parents for Public Schools of Jackson 125 S. Congress St, Ste 1218 Jackson, MS 39201 (800) 880-880-1222 www.parents4publicschools.org
Parents United Together P.O. Box 2121 Madison, MS, 39130 Mom424@aol.com
EMPOWER 741 Avignon Dr., Suite C Ridgeland, MS 39157 (601) 980-1897 http://empowerms.org/
Parent Teacher Association (PTA) Mississippi Congress of Parents and Teachers, Inc. P.O. Box 1937 Jackson, MS, 39215 (601) 352-7383 MissPTA@gmail.com http://www.misspta.org
Parent Training and Information Center (PTI) MS Parent Training and Information Center 2 Old River Place, Suite A Jackson, MS, 39202 (601) 969-0601 (800) 721-7255 http://www.mspti.org
Relay Services (800) 582-2233 (V/TTY); 711 (TTY) (800) 229-5746 (Speech to Speech-English) (866) 260-9470 (Speech to Speech-Spanish)
Special Education Mississippi Department of Education Office of Special Education PO Box 771 Jackson, MS 39205 (601) 359-3498 http://www.mdek12.org/OSE
Special Format Library Mississippi Library Commission Talking Book Services 3881 Eastwood Drive Jackson, MS, 39211-6473 (601) 432-4116 (800) 446-0892 http://mlc.lib.ms.us/tbs/
Special Health Care Needs Children’s Medical Program Mississippi State Department of Health P.O. Box 1700 Jackson, MS, 39215-1700 (601) 987-3965 (800) 844-0898 (National/WATS) lawrence.clark@msdh.state.ms.us http://www.msdh.state.ms.us
Speech, Language, and Hearing Mississippi Speech-Language-Hearing Association P.O. Box 22664 Jackson, MS, 39225-2664 (800) 664-6742 http://www.mshausa.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.ms.gov
Transition Services Office of Special Education 359 N West St., Suite 300 Jackson, MS, 39205 (601) 359-3498 http://www.mdek12.org/OSE/STS
UCEDD The Institute for Disability Studies University of Southern Mississippi 118 College Drive, #5163 Hattiesburg, MS, 39406-0001 (601) 266-5163 http://www.usm.edu/ids
Vocational Education and Rehabilitation Career & Technical Education Department of Education P.O. Box 771 Jackson, MS, 39205-0771 (601) 359-3088 http://careertech.org/mississippi
Institute for Disability Studies Toy Library and Technology Learning Center 730 E. Beach Blvd. Long Beach, MS, 95650 (228) 214-3223 sara.jackson@usm.edu https://www.usm.edu/ids/index.php
Alabama Resources
ADA Center Southeast ADA Center 1419 Mayson Street NE Atlanta, GA, 30324 (800) 949-4232 (V/TTY) (404) 541-9001 (V/TTY) http://www.adasoutheast.org
Assistive Technology STAR (Statewide Technology Access and Response for Alabamians with Disabilities) 602 S. Lawrence St. Montgomery, AL, 36104 (800) 782-7656 (In AL) (334) 613-3480 (334) 613-3519 (TTY) http://www.rehab.alabama.gov/star
Autism Autism Society of Alabama 4217 Dolly Ridge Road Birmingham, AL, 35243 (877) 4-AUTISM (205) 951-1364 http://www.autism-alabama.org
CHIP Program(health care for low-income uninsured children) ALL Kids Children’s Health Insurance Program Alabama Department of Public Health 201 Monroe Street, Suite 250 Montgomery, AL, 36104 (877) 774-9521 (334) 206-5568 http://www.adph.org/allkids/
D D Council Alabama Council for Developmental Disabilities RSA Union Building 100 N. Union Street, Suite 498 P.O. Box 301410 Montgomery, AL, 36130-1410 (800) 232-2158 (334) 242-3973 http://acdd.org
Developmental Disabilities Alabama Department of Mental Health 100 Union St. Montgomery, AL, 36130-1410 (334) 242-3107 or (334) 242-3701 (800) 367-0955 contact form on web site http://www.mh.alabama.gov/
Early Intervention Alabama’s Early Intervention System Department of Rehabilitation Services Division of Early Intervention 602 S. Lawrence St. Montgomery, AL, 36104 (800) 543-3098 (334) 293-7500 (800) 499-1816 (TTY) contact form on web site http://www.rehab.alabama.gov/ei
Epilepsy Epilepsy Foundation of Alabama 3100 Lorna Rd., Suite 300 Vestavia Hills, AL, 35216-5452 (800) 626-1582 (In AL) (251) 341-0170 mgarrett@efala.org http://www.epilepsy.com/alabama
Independent Living To find contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Shepherd, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V/TTY) ilru@ilru.org http://www.ilru.org
To find contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Alabama, Inc. 557 S Lawrence St. Montgomery, AL, 36104 http://www.thearcofal.org/
Mediation Alabama State Department of Education 50 North Ripley Street PO Box 302101 Montgomery, AL, 36104 (334) 242-9700 http://www.alsde.edu
Mental Health NAMI Alabama 4122 Wall Street Montgomery, AL, 36106 (800) 626-4199 (In AL) (334) 396-4797 terri@namialabama.org http://www.namialabama.org
Mental Health – Youth Office of Children’s Services Alabama Department of Mental Health P.O. Box 301410 Montgomery, AL, 36130-1410 (334) 353-7110 contact form on web site http://www.mh.alabama.gov
Parent Teacher Association (PTA) Alabama PTA 470 S. Union Street Montgomery, AL, 36104-4330 (800) 328-1897 (334) 834-2501 al_office@pta.org http://www.alabamapta.org
Parent Training and Information Center (PTI) Alabama Parent Education Center (APEC) 10520 US Highway 231 Wetumpka, AL, 36092 (866) 532-7660 (334) 567-2252 apec@alabamaparentcenter.com http://www.alabamaparentcenter.com
Protection & Advocacy Alabama Disabilities Advocacy Program (ADAP) The University of Alabama Tuscaloosa, AL, 35487 (205) 348-4928 http://adap.ua.edu/
Relay Services (800) 548-2547 (V) (800) 548-2546 (TTY); 711 (TTY) (888) 229-5746 (Speech to Speech-English) (866) 260-9470 (Speech to Speech-Spanish)
Special Education Special Education Services Alabama Department of Education P.O. Box 302101 Montgomery, AL, 36130-2101 (800) 392-8020 (in AL) (334) 242-8114 http://www.alsde.edu/
Special Format Library Alabama Regional Library for the Blind and Physically Handicapped 6030 Monticello Drive Montgomery, AL, 36130-6000 (800) 392-5671 (334) 213-3906, ext. 921 fara.zaleski@apls.alabama.gov http://statelibrary.alabama.gov/
Special Health Care Needs Alabama Department of Rehabilitation Services Children’s Rehabilitation Service 2129 East South Boulevard P.O. Box 11586 Montgomery, AL, 36111-0586 (800) 441-7607 (334) 281-8780 (800) 846-3697 (in AL) melinda.davis@rehab.alabama.gov http://www.rehab.alabama.gov/crs
Speech and Hearing Speech and Hearing Association of Alabama 3416 Primm Lane Birmingham, AL, 35216 (256) 823-6106 Info@AlabamaSHAA.org https://www.alabamashaa.com/
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.alabama.gov/
Transition Services Special Education Services Alabama State Department of Education P.O. Box 302101 Montgomery, AL, 36130 (334) 242-8114 droth@alsde.edu http://www.alsde.edu
UCEDD Civitan International Research Center University of Alabama at Birmingham 933 19th Street South, CH19 Room 307(Location) 1720 2nd Avenue South, CH19 Room 307 (Mailing) Birmingham, AL, 35294-0021 (800) 822-2472 (205) 934-0021 fbiasini@uab.edu http://www.circ.uab.edu
Vocational Rehabilitation Department of Rehabilitation Services 2129 East South Boulevard Montgomery, AL, 36116 (334) 281-8780 steve.shivers@rehab.alabama.gov http://www.rehab.alabama.gov/vrs
Other Organizations
Alabama Lifespan Respite Resource Network 1521 E. 9th Street Anniston, AL, 36207 (866) 737-8252 (256) 237-3683 alabamarespite@aol.com http://alabamarespite.org
Alabama APSE, The Network on Employment P.O. Box 11586 Montgomery, AL, 36116 (334) 613-3527 byron.white@rehab.alabama.gov http://www.al-apse.org
Easter Seals Alabama 5960 E. Shirley Lane Montgomery, AL, 36117-1935 (800) 388-7325 (334) 395-4489 info@al.easterseals.com http://www.alabama.easterseals.com
Governor’s Office on Disabilities 560 South Lawrence Street Montgomery, AL, 36104 (334) 293-7189 (888) 879-3582 graham.sisson@good.alabama.gov http://www.good.alabama.gov
Lakeshore Foundation 4000 Ridgeway Drive Birmingham, AL, 35209 (888) 868-2303 (In AL) (205) 313-7400 http://www.lakeshore.org
Florida Resources
ADA Center Southeast ADA Center 1419 Mayson Street NE Atlanta, GA, 30324 (800) 949-4232 (V/TTY) (404) 541-9001 (V/TTY) ADAsoutheast@law.syr.edu http://www.adasoutheast.org
Assistive Technology Florida Alliance for Assistive Service and Technology 3333 W Pensacola Street Building 100 Suite 140 Tallahassee, FL, 32304 (888) 788-9216 (850) 487-3278 (850) 922-5951 (TTY) faast@faast.org http://faast.org/
D D Council Florida Developmental Disabilities Council, Inc. 124 Marriott Drive, Suite 203 Tallahassee, Â FL, 32301-2981 (800) 580-7801 (in FL) (850) 488-4180 fddc@fddc.org http://www.fddc.org
Developmental Disabilities Agency for Persons with Disabilities 4030 Esplanade Way, Suite 380 Tallahassee, FL, 32399-0950 (850) 488-4257 Jim_DeBeaugrine@apd.state.fl.us http://Â www.apd.myflorida.com
Independent Living Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research ilru@ilru.org http://www.ilru.org
To find the contact information for Centers for Independent Living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0034 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Parent Organizations Community Parent Resource Center Parent to Parent of Miami, Inc. Community Parent Resource Center 7990 S.W. 117th Avenue, Suite 201 Miami, FL, 33183 (800) 527-9552 (305) 271-9797 info@ptopmiami.org http://www.ptopmiami.org
Parent Teacher Association (PTA) Florida Congress of Parents and Teachers, Inc. 1747 Orlando Central Parkway Orlando, FL, 32809 (407) 855-7604 janice@floridapta.org http://www.floridapta.org
Parent Training and Information Center (PTI, PSN, PEN, POPIN) 2196 Main St., Suite L Dunedin, FL 34698 (727) 523-1130 (800) 825-5736 http://fndusa.org
Preschool, Disabilities Bureau of Exceptional Education and Student Services Florida Department of Education 325 W. Gaines Street, Suite 601 Tallahassee, FL, 32399-0400 (850) 245-0478 marilyn.hibbard@fldoe.org http://www.fldoe.org
Protection & Advocacy Disability Rights Florida 2728 Centerview Drive Suite 102 Tallahassee, FLÂ , 32301 (800) 342-0823 (800) 350-4566 (Spanish and Creole Speaking Clients) (850) 488-9071 (800) 346-4127 (TTY) http://www.disabilityrightsflorida.org/
Special Education Bureau of Exceptional Education and Student Services Florida Department of Education 325 W. Gaines Street, Suite 614 Tallahassee, FL, 32399-0400 (850) 245-0475 http://www.fldoe.org/ese
Special Format Library Florida Bureau of Braille and Talking Book Library Services 421 Platt Street Daytona Beach, FL, 32114-2804 (800) 226-6075 (386)239-6000 (800) 955-8771 (TTY) http://dbs.myflorida.com/library
Special Health Care Needs Children’s Medical Services, Department of Health 4052 Bald Cypress Way, Bin A-06 Tallahassee        , FL, 32399-1707 (800) 654-4440 (850) 245-4218 phyllis_sloyer@doh.state.fl.us http://www.myflorida.com
Speech, Language, and Hearing Florida Association of Speech-Language Pathologists and Audiologists (FLASHA) 222 S. Westmonte Drive #101 Altamonte Springs, FL, 32714 (800) 243-3574 (407) 774-7880 flasha@flasha.org www.flasha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.flgov.com
Transition Services Project 10: Transition Education Network University of South Florida St. Petersburg 140 7th Avenue South, SVB 108 (mailing address) 529 First Street South (physical address) St. Petersburg, FL, 33701 (727) 873-4661 (727) 873-4660 (Fax) project10@stpete.usf.edu http://project10.info
School To Work Transition Services Division of Vocational Rehabilitation Department of Education 2002 Old Saint Augustine Road, Building A Tallahassee, FL, 32301 (850) 245-3360 Kirk.Hall@vr.fldoe.org http://www.rehabworks.org
UCEDD Mailman Center for Child Development University of Miami Miller School of Medicine 1601 NW 12th Avenue Miami, FL 33136 (305) 243-6631 http://mailmancenter.org
Florida Center for Inclusive Communities University of South Florida Department of Child and Family Studies College of Behavioral and Community Sciences 13301 Bruce B. Downs Blvd., MHC 2113A Tampa, FL, 33612-3807 (813) 974-4612 (866) 818-4797 flcic@fmhi.usf.edu http://www.flfcic.org
Vocational Rehabilitation Division of Vocational Rehabilitation Department of Education 4070 Esplanade Way Tallahassee, FL 32399 (800) 451-4327 (850) 245-3399 http://www.rehabworks.org
Florida Association of Rehabilitation Facilities, Inc. 2475 Apalachee Parkway, Suite 205 Tallahassee, FL, 32301-4946 (850) 877-4816 info@floridaarf.org http://www.floridaarf.org
VSA Florida University of South Florida College of ED/Sp. ED/VSA Florida 4202 E. Fowler Ave, EDU105 Tampa, FL, 33620 http://vsafl.org/
Hannah and Friends: (Regional – Indiana, the Michiana area, New York, Rhode Island, and Florida.) Provide quality of life grants for families with individuals with developmental disabilities.Â
Georgia Resources
ADA Center Southeast ADA Center 1419 Mayson Street NE Atlanta, GA, 30324 (800) 949-4232 (V/TTY) (404) 541-9001 (V/TTY) ADAsoutheast@law.syr.edu http://www.adasoutheast.org
Assistive Technology Tools for Life, Georgia Assistive Technology Act Program 512 Means St Suite 250 Atlanta, GA 30318 (404) 894-0541 info@gatfl.org http://www.gatfl.org
CHIP (health care for low-income uninsured children) PeachCare for Kids P.O. Box 2583 Atlanta, GA, 30301-2583 (877) 427-3224 peachcare@dch.ga.gov http://www.peachcare.org
D D Council Georgia Council on Developmental Disabilities 2 Peachtree St, N.W., 26th floor Atlanta, GA 30303 (888) 275-4233 (404) 657-2126 (404) 657-2133 (TDD) http://www.gcdd.org
Developmental Disabilities Office of Developmental Disabilities Division of Mental Health/Developmental Disabilities and Addictive Diseases Department of Human Resources 2 Peachtree Street, N.W., 24th floor Atlanta , GA, 30303-3142 404-657-2252 http://dph.georgia.gov
Early Intervention Babies Can’t Wait Program Department of Human Resources 2 Peachtree Street, 11.217 Atlanta, GA, 30303-3186 (888) 651-8224 (404) 657-2726 http://www.dph.georgia.gov/Babies-Cant-Wait
Bright from the Start Georgia Department of Early Care and Learning 2 Martin Luther King, Jr. Drive SE, 754 East Tower Atlanta, GA 30334 (404) 656-5957 http://decal.ga.gov/
Epilepsy Epilepsy Foundation of Georgia 6065 Roswell Road, NE, Suite 715 Atlanta, Â GA, 30328 (800) 527-7105 (In GA) (404) 527-7155 epilepsy@epilepsyga.org http://www.epilepsyga.org
Independent Living Statewide Independent Living Council of Georgia, Inc. 315 West Ponce de Leon Ave, Suite 600 Decatur, GA 30030 (888) 288-9780 (770) 270-6860 (770) 270-5671 http://www.silcga.org
National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (V); (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Learning Disabilities Learning Disabilities Association of Georgia 2566 Shallowford Road, Suite 104, PMB 353 Atlanta , GA, 30345 (404) 303-7774 ldaga@bellsouth.net http://www.ldag.org
Mental Health National Mental Health America of Georgia 100 Edgewood Ave., Suite 502 Atlanta, GA, 30303 (404) 527-7175 http://www.mhageorgia.org/
NAMI-Georgia, National Alliance on Mental Illness 3180 Presidential Drive, Suite A Atlanta , GA, 30340 (800) 726-1052 (770) 234-0855 namigeorgia@namiga.org http://www.namiga.org
Georgia Federation of Families for Children’s Mental Health 1381 Metropolitan Parkway Atlanta, GA, 30310 (800) 832-8645 (404) 758-4500 http://www.gpsn.org
Mediation Division for Exceptional Students Georgia Department of Education 205 Jesse Hill Jr. Drive SE Atlanta, GA 30334 (404) 657-9965 askdoe@gadoe.org http://www.gadoe.org
Mental Health Division of Mental Health/Developmental Disabilities and Addictive Diseases Department of Human Resources 2 Peachtree Street, N.W., 22.224 Atlanta , GA, 30303-3142 (404) 657-2260 gbskinner@dhr.state.ga.us http://www.mhddad.dhr.georgia.gov
Mental Health – Youth Department of Human Resources Division of Mental Health, Developmental Disabilities and Addictive Diseases 2 Peachtree Street, N.W., 23.420 Atlanta , GA, 30303-3171 (404) 657-5681 dmorgan@dhr.state.ga.us http://mhddad.dhr.georgia.gov/portal/site/DHR-MHDDAD/
Parent Organizations Parent Teacher Association (PTA) Georgia Congress of Parents and Teachers, Inc. 114 Baker Street, N.E. Atlanta , GA, 30308-3366 (404) 659-0214 http://www.georgiapta.org
Parent Training and Information Center (PTI) Parent to Parent of Georgia, Inc. 3070 Presidential Parkway, Suite 130 Atlanta, GA, 30340 (800) 229-2038 info@p2pga.org http://www.p2pga.org
Protection & Advocacy Georgia Advocacy Office One Decatur Town Center 150 E. Ponce de Leon Avenue, Suite 430 Decatur, GA, 30030 (800) 537-2329 (404) 885-1234 (V/TTY) info@thegao.org http://www.thegao.org
The ARC of Georgia PO Box 91051 Atlanta, GA 30364 (470) 222-6088 sramirez@thearc.org https://ga.thearc.org/
Relay Services (800) 255-0135 (V) (800) 255-0056 (TTY);, 711 (TTY) (800) 229-5746 (Speech to Speech-English) (866) 260-9470 (Speech to Speech-Spanish)
Special Education Division for Exceptional Students Georgia Department of Education 205 Jesse Hill Jr. Drive SE Atlanta, GA 30334 (404) 657-9965 askdoe@gadoe.org http://www.gadoe.org
Special Format Library Georgia Library for Accessible Services 1800 Century Place Suite 150 Atlanta, GA 30345 (800) 248-6701 glass@georgialibraries.org http://www.georgialibraries.org/glass
Speech, Language, and Hearing Georgia Speech-Language-Hearing Association 925B Peachtree St NE, Suite 620 Atlanta, GA 30309 (404) 496-5559 http://www.gsha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.georgia.gov
Vocational Education, Disabilities Vocational Rehabilitation Program Check website for local offices (404) 232-1998 https://gvs.georgia.gov/
Other Easter Seals North Georgia 53 Perimeter Center East Suite 550 Atlanta, GA 30346 (404) 9431070-2006 www.easterseals.com/northgeorgia
D D Council Virginia Board for People with Disabilities Ninth Street Office Building 202 N. Ninth Street, 9th Floor Richmond, VA, 23219 http://www.vaboard.org
Developmental Disabilities Virginia Department of Behavioral Health & Development Services 1220 Bank St. Richmond, VA, 23219 (804) 786-3921 http://www.dbhds.virginia.gov/
Early Intervention Infant & Toddler Connection of Virginia Virginia Department of Behavioral Health and Developmental Services P.O. Box 1797 Richmond, VA, 23219-1797 http://www.infantva.org/
Epilepsy Epilepsy Foundation of Virginia 560 Ray C Hunt Dr. Charlottesville, VA, 22903 (434) 924-8669 SRB3M@virginia.edu https://www.epilepsyva.com/
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/VA
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Learning Disabilities Learning Disabilities Association of Virginia 3914 Monument Avenue Richmond, VA, 23230-3902 http://www.ldavirginia.org
Mental Health Department of Mental Health 1220 Bank St. Richmond, VA, 23219 (804) 786-3921 http://www.dbhds.virginia.gov/
Mental Health America of Virginia 2008 Bremo Rd, Ste 101 Richmond, VA 23226 http://www.mhav.org
NAMI Virginia P.O. Box 8260 Richmond, VA, 23226-0260 (804) 285-8264/(800) 950-6264 https://namivirginia.org/
Mental Health – Youth Virginia Department of Behavioral Health & Development Services 1220 Bank St. Richmond, VA, 23219 (840) 786-3921 http://www.dbhds.virginia.gov/
Parent Organizations Community Parent Resource Center (Serving Arlington, Fairfax, Loudon, and Prince William Counties, and city of Alexandria) Formed Families Together 4031 University Drive, Suite 100 Fairfax, VA, 22030 http://www.formedfamiliesforward.org
The ARC of Virginia 2147 Staples Mill Rd. Richmond, VA, 23230 (804) 649-8481/(888) 604-2677 thearcofva@thearcofva.org http://www.thearcofva.org/
Virginia Parent Teacher Association (PTA) 1027 Wilmer Avenue Richmond, VA, 23227 http://www.vapta.org
Parent Training and Information Center (PTI) Parent Educational Advocacy Training Center (PEATC) 100 N. Washington Street, Suite 234 Falls Church, VA, 22046 http://www.peatc.org/
Virginia Federation of Families (a program of the Arc of VA) 2025 E. Main Street, Suite 107 Richmond, VA, 23223 http://www.medicalhomeplus.org
Preschool, Disabilities Special Education Instructional Services Virginia Department of Education P.O. Box 2120 Richmond, VA, 23218-2120 http://www.doe.virginia.gov
Protection & Advocacy Disability Law Center for Virginia 1910 Byrd Avenue, Suite 5 Richmond, VA, 23230 http://www.dlcv.org
Special Education Division of Special Education and Student Services Department of Education P.O. Box 2120 Richmond, VA, 23218-2120 http://www.doe.virginia.gov/special_ed/
Speech, Language, and Hearing Speech-Language-Hearing Association of Virginia, Inc. 3126 W. Cary Street, #436 Richmond, VA, 23221 http://www.shav.org
Special Format Library Virginia Library and Resource Center 395 Azalea Avenue Richmond, VA, 23227 http://www.vdbvi.org/
Special Health Care Needs Virginia Department of Health 109 Governor St. Richmond, VA, 23219 Division of Child and Adolescent Health http://www.vdh.virginia.gov/
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: https://www.virginia.gov/
UCEDD Partnership for People with Disabilities Virginia University Center for Excellence Virginia Commonwealth University PO Box 843020 700 E. Franklin Street Richmond, VA, 23284-3020 http://www.vcu.edu/partnership
Vocational Education and Rehabilitation Education Services Manager Virginia Department of Rehabilitative Services Richmond, VA, 23229 http://www.vadrs.org
Developmental Disabilities Council (DD Council) Maryland Developmental Disabilities Council 217 E. Redwood Street, Suite 1300 Baltimore, MD, 21202 http://www.md-council.org
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/cil-net/cil-center-and-association-directory
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Maryland, Inc. 121 Cathedral Street, 2B, Annapolis, MD 21401 http://www.thearcmd.org
Parent Organizations Maryland Coalition of Families for Children’s Mental Health 10632 Little Patuxent Parkway, Suite 119 Columbia, MD, 21044 http://www.mdcoalition.org
Parent Teacher Association (PTA) Maryland PTA 5 Central Avenue Glen Burnie, MD, 21061 http://www.mdpta.org
Parents’ Place of Maryland, Inc. 801 Cromwell Park Drive, Suite 103 Glen Burnie, MD, 21061 http://www.ppmd.org
Speech, Language, and Hearing Maryland Speech-Language-Hearing Association P.O. Box 31 Manchester, MD, 21102 (410) 239-7770 office@ mdslha.orgÂ
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.maryland.gov
UCEDD Maryland Center for Developmental Disabilities Kennedy Krieger Institute 716 N. Broadway, Office 103 Baltimore, MD 21205 http://mcdd.kennedykrieger.org/
Vocational Rehabilitation Maryland Department of Education Division of Rehabilitation Services 2301 Argonne Drive Baltimore, MD, 21218-1696 (410) 554-9442/(888) 554-0334 http://dors.maryland.gov/Pages/default.aspx
The Coordinating Center (for individuals with complex medical needs and disabilities) 8531 Veterans Highway, 3rd floor Millersville, MD, 21108 http://www.coordinatingcenter.org
ADA Center Mid-Atlantic ADA Center 401 North Washington Street, Suite 450 Rockville, MD, 20805 (800) 949-4232 (V/TTY) (301) 217-0124 (V/TTY) http://www.adainfo.org
CHIP Program (health care for low-income uninsured children) Delaware Healthy Children Program P.O. Box 950 New Castle, DE, 19720-9914 (800) 996-9969 http://www.state.de.us/dhss/dss/
D D Council Delaware Developmental Disabilities Council Margaret M. O’Neill Building, 2nd Floor 410 Federal Street, Suite 2 Dover, DE, 19904 (302) 739-3333 pat.maichle@state.de.us http://www.ddc.delaware.gov
Developmental Disabilities Division of Developmental Disabilities Services Delaware Health and Social Services 1056 S. Governors Avenue, Suite 101 Dover, DE, 19904 (302) 744-9600 dhssinfo@state.de.us http://www.state.de.us/dhss/ddds/index.html
Early Intervention Birth to Three Early Intervention System Department of Health and Social Services 1901 N. DuPont Highway New Castle, DE, 19720 (302) 255-9135 rosanne.griff-cabelli@state.de.us http://www.state.de.us/dhss/dms/epqc/birth3/directry.html
Epilepsy Epilepsy Foundation of Delaware Tower Office Park 240 N. James Street, Suite 104 Newport, DE, 19804 (877) 369-2266 (302) 999-9313 efd@efde.org http://epilepsy.com/delaware
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 1333 Moursond Houston, TX, 77030 (713) 520-0232 (V) (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 2013 H Street NW – 6th Floor Washington, DC, 20006 (202) 207-0334 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Delaware 2 S Augustine St., Suite B Wilmington, DE, 19804 (302) 996-9400/(844) 344-6524 http://www.thearcofdelaware.org/
Mediation Council for Exceptional Children 2900 Crystal Dr., Suite 100 Arlington, VA 22202 (888) 232-7733 (302) 735-4210 https://www.doe.k12.de.us
Mental Health Division of Substance Abuse and Mental Health Delaware Health and Social Services Main Administration Building 1901 N. DuPont Highway New Castle, DE, 19720 (302) 255-9399 https://dhss.delaware.gov/dsamh/
Mental Health Association in Delaware 100 W. 10th Street, Suite 600 Wilmington, DE, 19801 (800) 287-6423 (In DE) (302) 654-6833 information@mhainde.org http://www.mhainde.org
Mental Health – Children Division of Child Mental Health Services Department of Services for Children, Youth, and Their Families 1825 Faulkland Road, Building 1 Wilmington, DE, 19805-1195 (302) 633-2600 PBHS.DSCYF@state.de.us http://kids.delaware.gov/pbhs/pbhs.shtml
Organizations for Parents Parent Information Center of Delaware (PIC) 404 Larch Circle Wilmington, DE, 19804 (888) 547-4412 (302) 999-7394 http://www.picofdel.org
Parent Teacher Association (PTA) Delaware Congress of Parents and Teachers 925 Bear-Corbitt Road, Suite 101 Bear, DE, 19701 (302) 838-8770 de_office@pta.org http://www.delawarepta.org
P2P at Delaware Family Voices 61 Corporate Circle New Castle, DE, 19720 (302) 221-5360 annp@defv.org http://defv.org
Preschool, Disabilities Council for Exceptional Children 2900 Crystal Dr., Suite 100 Arlington, VA 22202 (888) 232-7733 https://www.doe.k12.de.us
Protection & Advocacy Community Legal Aid Society, Inc. Community Service Building 100 W. 10th Street, Suite 801 Wilmington, DE, 19801 (302) 575-0660 http://www.declasi.org
Partners in Policymaking of Delaware Developmental Disabilities Council Margaret M. O’Neill Building, 2nd Floor 410 Federal Street, Suite 2 Dover, DE, 19901 (302) 739-3333 http://ddc.delaware.gov/
Special Format Library Delaware Division of Libraries Library for the Blind and Physically Handicapped 43 S. DuPont Highway Dover, DE, 19901 (V/TTY)(800) 282-8676 (302) 739-4748 john.phillos@state.de.us http://libraries
Special Health Care Needs Children with Special Health Care Needs Bureau of Maternal and Child Health Division of Public Health 417 Federal Street Dover, DE, 19901 (800) 464-4357 (Helpline) (302) 741-2980 https://www.dhss.delaware.gov/dph/chca/dphcshcn.html
Division of Public Health & duPont Hospital for Children Office of EMS Blue Hen Corporate Center 655 Bay Road, Suite 4H Dover, DE, 19901 (302) 744-5410 www.dhss.delaware.gov/dph/ems/ems.html
Delaware Family Voices 222 Philadelphia Pike, Suite 11 Wilmington, DE 19809 (302) 669-3030/(877) 235-3588 psp@defv.org http://www.delawarefamilytofamily.org/
Speech, Language, and Hearing Delaware Speech-Language-Hearing Association P.O. Box 7383 Newark, DE, 19711 dshaweb@dsha.org http://dsha.org/
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.de.gov/
UCEDD Center for Disabilities Studies College of Education and Human Development University of Delaware 461 Wyoming Road Newark, DE, 19716 (302) 831-6974 (302) 831-4689 (TTY) mineo@udel.edu http://www.udel.edu/cds
Other Organizations State Council for Persons with Disabilities Margaret M. O’Neill Building P.O. Box 1401 Dover, DE, 19903 http://www.scpd.delaware.gov
Governor’s Ad Council 516 W Loockerman Street Dover, DE, 19904 (302) 739-4553 http://gacec.delaware.gov/
Easter Seals Delaware and Maryland’s Eastern Shore 61 Corporate Circle New Castle, DE, 19720 (800) 677-3800 (302) 324-4444 preuther@esdel.org http://www.de.easterseals.com
Â
Kelly Anne Dolan Memorial Fund: Children being referred for assistance must reside or be treated in Pennsylvania, New Jersey, or Delaware. Families may not apply to the Fund directly. Referrals must be made by a healthcare professional (for example, a social worker, case manager, nurse, doctor, or therapist). Provide assistance with expenses not covered by insurance, such as: Utility and phone bills, Mortgage/Rent, Car payments, Transportation costs, Disability needs, Air conditioners for children with severe pulmonary, cardiac, skin, liver, and kidney diseases, Medically necessary dietary supplements, special foods, and formulas, Co-pays, Child care, Funeral expenses. Assistance is paid directly to vendors or creditors to avoid misappropriation of funds.
Nevada Resources
ADA Center Pacific ADA Center 555 12th Street, Suite 1030 Oakland, CA, 94607 (800) 949-4232 (V/TTY) (510) 285-5600 (V/TTY adatech@adapacific.org http://www.adapacific.org
Assistive Technology Nevada Assistive Technology Collaborative Office of Disability Services 3656 Research Way, Suite 32 Carson City, NV, 89706 (775) 687-4452; (775) 687-3388 (TTY) kpreston@dhhs.nv.gov
Nevada Special Education Technology Assistance Project P.O. Box 603 Carson City, NV, 89702 (775) 283-2315 nsetap@aol.com http://www.nsetap.com/home.shtml
D D Council NV Governor’s Council on Developmental Disabilities 896 West Nye Lane, Ste. #202 Carson City, NV, 89703 (775) 684-8619 smanning@dhhs.nv.gov
Developmental Disabilities Nevada Division of Public and Behavioral Health Department of Health and Human Services Check website for various locations (775) 684-4200 dpbh@health.nv.gov http://dpbh.nv.gov/About/DPBH_Overview/
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 (713) 520-0232 (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org
Northern Nevada Center for Independent Living 999 Pyramid Way Sparks, NV, 89431 (800) 552-5588 (775) 353-3599 V/TTY nncil7@sbcglobal.net http://www.nncil.org
Southern Nevada Center for Independent Living 6039 Eldora Avenue Suite H-8 Las Vegas, NV, 89146 (800) 870-7003 (702) 889-4216 V/TTY info@sncil.org http://www.sncil.org/
Intellectual & Developmental Disabilities Opportunity Village 6300 W. Oakey Boulevard Las Vegas, NV, 89146 (702) 259-3707 Guthrie@opportunityvillage.org http://www.opportunityvillage.org
Learning Disabilities Learning Disabilities Association of America 4156 Library Road Pittsburgh, PA, 15234 (888) 300-6710 (412) 341-1515 http://www.ldaamerica.org
Mediation Nevada Department of Education 700 E. Fifth Street, Suite 113 Carson City, NV, 89701 (775) 687-9170 http://www.doe.nv.gov
Mental Health Nevada Division of Public and Behavioral Health Department of Health and Human Services Check website for various offices (775) 684-4200 dpbh@health.nv.gov http://dpbh.nv.gov/About/DPBH_Overview/
NAMI Nevada 680 S Rock Blvd Reno, NV, 89502 (775) 336-3090 info@naminevada.org president@naminevada.org https://naminevada.org/
Mental Health – Youth Division of Child and Family Services Department of Human Resources 4126 Technology Way, 3rd Floor Carson City, NV, 89706 (775) 684-4400 http://dcfs.state.nv.us
Parent Organizations Parent Teacher Association (PTA) Nevada Parent-Teacher Association 6134 W. Charleston Boulevard Las Vegas, NV, 89146 (800) 782-7201 (702) 258-7885 office@nevadapta.org http://www.nevadapta.org
Parent Training and Information Center (PTI) Nevada PEP 2101 S. Jones Blvd, Suite 120 Las Vegas, NV, 89146 (800) 216-5188 (in NV) (702) 388-8899 (775) 448-9950 Satellite Office Reno pepinfo@nvpep.org http://www.nvpep.org
Parent-To-Parent Family TIES of Nevada 3100 Mill Street, Suite 117 Reno, NV, 89502 (866) 326-8437 (775) 823-9500 info@familytiesnv.org http://www.familytiesnv.net
Preschool, Disabilities Office of Special Education, Elementary and Secondary Education, and School Improvement Programs Nevada Department of Education 700 E. Fifth Street, Suite 113 Carson City, NV, 89701 (775) 687-9170 http://www.doe.nv.gov
Protection & Advocacy Nevada Disability Advocacy and Law Center 6039 Eldora Avenue, Suite C Las Vegas, NV, 89102 (888) 349-3843 (toll-free) (702) 257-8150 (702) 257-8160 (TTY) ndalc@ndalclv.org http://www.ndalc.org
Special Education Office of Special Education, Elementary and Secondary Education, and School Improvement Programs Nevada Department of Education 700 E. Fifth Street, Suite 113 Carson City, NV, 89701-5096 (775) 687-9142 fmccabe@doe.nv.gov http://www.doe.nv.gov
Special Health Care Needs Title V – MCH & CYSHCN Nevada State Health Division Department of Health and Human Services 4150 Technology Way, Suite 210 Carson City, NV, 89706 (775) 684-4285 daquino@health.nv.gov http://health.nv.gov
Family-to-Family Health Information Center at Family TIES of Nevada 3100 Mill Street, Suite #117 Reno, NV, 89502 (866) 326-8437 (toll free) (775) 823-9500 (Reno office) (702) 740-4200 (Las Vegas office) info@familytiesnv.org http://www.familytiesnv.net
Speech, Language, and Hearing Nevada Speech-Language and Hearing Association P.O. Box 7313 Reno, NV, 89510-7313 (702) 452-9029 info@nvsha.org http://www.nvsha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.nv.gov/
Transition Services Nevada Department of Education Office of Special Education 1820 E Sahara, Suite 208 Las Vegas, NV, 89104 (702) 486-6621 tvenardos@doe.nv.gov http://www.doe.nv.gov/
UCEDD Nevada Center for Excellence in Disabilities University of Nevada, Reno Mail Stop 285 Reno, NV, 89557 (775) 784-4921 (800) 216-7988 (775) 327-5234 (TTY) http://nced.info/
Vocational Education and Rehabilitation Office of Career, Technical and Adult Education Department of Education 700 E. Fifth Street, Suite 111 Carson City, NV, 89701-5096 (775) 687-9144 pdryden@doe.nv.gov http://www.doe.nv.gov
Department of Employment, Training, and Rehabilitation 2800 E. St. Louis Ave., Las Vegas, NV 89104 500 East Third Street, Â Carson City, NV 89713 (775) 684-4040 detradmn@nvdetr.org http://detr.state.nv.us/
Other Organizations
Disability Resources, Inc. 50 E Greg St., Suite 102 Sparks, NV, 89431 (775) 329-1126 info@disabilityresourcesnv.org http://www.disabilityresourcesnv.org/
Easter Seals Sierra Nevada 6100 Neil Road, Suite 201 Reno, NV, 89511 (800) 228-7102 (775) 322-6555 info@eastersealsnv.org http://www.sierra.easterseals.com
Easter Seals Nevada (various locations) 6200 W. Oakey Boulevard Las Vegas, NV, 89146 (702) 870-7050 bpatchett@eastersealssn.org http://www.easterseals.com/nevada/
VSA arts of Nevada At the Lake Mansion 250 Court Street Reno, NV, 89501 (775) 826-6100 tammy@vsanevada.org http://vsanevada.org
Variety Children’s Charity of Southern Nevada PO Box 26701 Las Vegas, NV 89126 Ph: 702-901-3040 http://www.varietysn.org/
New York Resources
ADA Center Northeast ADA Center Employment and Disability Institute 201 Dolgen Hall Cornell University Ithaca, NY, 14853 http://www.northeastada.org
D D Council NYS Developmental Disabilities Planning Council One Commerce Plaza, Suite 1230 Albany, NY 12210 http://ddpc.ny.gov
Developmental Disabilities NYS Office for People with Developmental Disabilities 44 Holland Avenue Albany, NY, 12229 Contact form on web site http://www.opwdd.ny.gov/
Epilepsy Epilepsy Foundation of Long Island 1500 Hempstead Turnpike East Meadow, NY 11554 http://efli.org
Intellectual & Developmental Disabilities NYSARC, Inc. 29 British American Blvd. – 2nd Floor, Latham, NY 12110 http://www.nysarc.org
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/silc-net/silc-directory-results/NY
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 2013 H St. NW, 6th Floor Washington, D.C. 20006 http://www.ncil.org
Families Together in New York State, Inc. 737 Madison Avenue Albany, NY, 12208 http://www.ftnys.org
Mental Health – Youth Children’s Services NYS Office of Mental Health 44 Holland Avenue Albany, NY, 12229 https://www.omh.ny.gov/omhweb/childservice/
Preschool, Disabilities New York State Education Department Office of Special Education Preschool Unit 89 Washington Avenue, Room 309 EB Albany, NY, 12234 http://www.p12.nysed.gov/specialed/
Protection & Advocacy Disability Rights New York 725 Broadway, Suite 450 – Albany, NY, 12207 25 Chapel Street, Suite 1005 – Brooklyn, New York 11201 44 Exchange Blvd, Suite 110 – Rochester, New York 14614 http://www.drny.org
Special Education New York State Education Department Office of Special Education 89 Washington Avenue, Room 309 EB Albany, NY, 12234 http://www.p12.nysed.gov/specialed
Special Format Books Serving upstate New York NYS Talking Book and Braille Library Cultural Education Center 222 Madison Avenue Albany, NY, 12230 http://www.nysl.nysed.gov/tbbl/
Special Format Books Serving New York City and Long Island Andrew Heiskell Braille and Talking Book Library 40 West 20th Street New York, NY, 10011 http://www.nypl.org/locations/heiskell
Special Health Care Needs Children and Youth with Special Health Care Needs Program New York State Department of Health Corning Tower Building – Empire State Plaza Albany, NY, 12237-0619 http://www.health.state.ny.us/community/special_needs
Speech, Language, and Hearing NYS Speech-Language-Hearing Association, Inc. 1971 Western Avenue #1167 Albany, NY 12203 http://www.nysslha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.ny.gov/
Transition Services New York State Education Department Office of Special Education Special Education Policy, Transition Services 89 Washington Ave., Room 309 EB Albany, NY, 12234 http://www.p12.nysed.gov/specialed/transition/home.html
UCEDD Westchester Institute for Human Development University Center for Excellence in Developmental Disabilities in affiliation with New York Medical College Cedarwood Hall Valhalla, NY, 10595-1689 http://www.wihd.org
Vocational Rehabilitation New York State Education Department Adult Career and Continuing Education Services, Vocational Rehabilitation 89 Washington Avenue Albany, NY, 12234 http://www.acces.nysed.gov/vr/
Organizations for Parents Parent Network of WNY 1000 Main St. Buffalo, NY, 14202 http://parentnetworkwny.org
Community Parent Resource Center United We Stand of New York 91 Harrison Ave Brooklyn, NY 11206 http://www.uwsofny.org
The Family Resource Network, Inc (Serving Otsego, Chenango, Delaware, Broome, Tioga, and Tompkins counties) 46 Oneida Street Oneonta, NY, 13820 http://www.familyrn.org
New York State Parent Teacher Association (PTA) One Wembley Court Albany, NY, 12205-3830 http://www.nyspta.org
Parent Training and Information Center (PTI) Advocates for Children of New York (New York City) 151 W. 30th Street, 5th Floor New York, NY, 10001 http://www.advocatesforchildren.org
Parent Training and Information Center (PTI) Sinergia/Metropolitan Parent Center 2082 Lexington Ave., 4th Floor New York, NY, 10035 http://www.sinergiany.org
VSA arts of New York City 45 Main Street, Suite 616 Brooklyn, NY 11201 http://www.vsanyc.org
Variety Club New York +1 (315) 636-0340
Hannah and Friends: (Regional – Indiana, the Michiana area, New York, Rhode Island, and Florida.) Provide quality of life grants for families with individuals with developmental disabilities.Â
Illinois Resources
ADA Center Great Lakes ADA Center University of Illinois at Chicago Institute on Disability & Human Development (MC 728) 1640 West Roosevelt Road, Room 405 Chicago, IL, 60608 (800) 949-4232 (V/TTY) (312) 413-1407 (V/TTY) adata@adagreatlakes.org http://www.adagreatlakes.org
Assistive Technology Illinois Assistive Technology Program 1 W. Old State Capitol Plaza, Suite 100 Springfield, IL, 62701 (800) 852-5110 (V/TTY, in IL only) (217) 522-7985 (V/TTY) wgunther@iltech.org http://www.iltech.org
Autism Illinois Center for Autism 548 South Ruby Lane Fairview Heights, IL, 62208 (618) 398-7500 info@illinoiscenterforautism.org https://illinoiscenterforautism.org
D D Council Illinois Council on Developmental Disabilities 830 S. Spring Street Springfield, IL 62704 (217) 782-9696 (V/TTY) http://www.state.il.us/agency/icdd/
Developmental Disabilities Division of Developmental Disabilities Department of Human Services 319 E. Madison, Suite 4N Springfield, IL, 62701 (217) 524-7065 http://www.state.il.us/agency/dhs
Early Intervention Bureau of Early Intervention Department of Human Services 222 S. College, 2nd Floor Springfield, IL, 62704 (800) 323-4769 (in IL only) (217) 782-1981 janet.gully@illinois.gov http://www.dhs.state.il.us/ei
Epilepsy Foundation of Greater Chicago 17 N. State, Suite 650 Chicago, IL, 60602 (800) 273-6027 (312) 939-8622 (312) 628-4770(TTY) info@epilepsychicago.org http://www.epilepsychicago.org
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V) (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Illinois 18207-A Dixie Highway Homewood, ILÂ , 60430 (708) 206-1930 tony@thearcofil.org http://www.thearcofil.org
Learning Disabilities Learning Disabilities Association of Illinois 10101 S. Roberts Road, Suite 205 Palos Hills, IL, 60465 (708) 430-7532 LDAOFIL@ameritech.net http://ldaillinois.org/
Mediation Illinois State Board of Education Division of Special Education Services Springfield Office (217) 782-5589 Chicago Office (312) 814-5560 https://www.isbe.net
Mental Health Division of Mental Health Department of Human Services 110 S Grand Ave E  Springfield, IL 62762 (800)-843-6154  401 S Clinton St  Chicago, IL 60607  (800)-843-6154 http://www.dhs.state.il.us/page.aspx?item=33007
Mental Health America of Illinois 70 East Lake Street, Suite 900 Chicago , IL, 60601 (312) 368-9070 cwoz@mhai.org http://www.mhai.org
NAMI Illinois, National Alliance on Mental Illness 218 W. Lawrence Springfield, IL, 62704 (800) 346-4572 (217) 522-1403 namiil@sbcglobal.net https://namiillinois.org/
Parent Organizations Family Support Network of Illinois 5739 W. Martindale Lane Peoria, IL, 61615-9669 (309) 693-8981 fsn@familysupportnetwork.org http://www.familysupportnetwork.org/
Parent Teacher Association (PTA) Illinois Congress of Parents and Teachers 901 S. Spring Street Springfield, IL, 62704-2790 (800) 877-9617 (217) 528-9617 il_office@pta.org http://www.illinoispta.org
Parent Training and Information Center (PTI) Family Resource Center on Disabilities 20 E. Jackson Boulevard, Room 300 Chicago, IL, 60604 (800) 952-4199 (In IL) (312) 939-3513 (V) (312) 939-3519 (TDD) info@frcd.org http://www.frcd.org
Parent Training and Information Center (PTI) Family Matters Parent Training and Information Center 1901 S. 4th Street, Suite 209 Effingham, IL, 62401 (866) 436-7842 (217) 347-5428 (V/TTY) deinhorn@fmptic.org; info@fmptic.org http://www.fmptic.org
Parent-To-Parent Family Resource Center on Disabilities 20 E. Jackson Boulevard, Suite 300 Chicago, IL, 60604 (800) 952-4199 (In IL) (312) 939-3513 info@frcd.org http://www.frcd.org
Preschool, Disabilities Division of Early Childhood Education 100 N. First Street, C-428 Springfield, IL, 62777-0001 (217) 524-4835 hhenders@isbe.net http://www.isbe.net
Protection & Advocacy Equip for Equality, Inc. 20 N. Michigan, Suite 300 Chicago, IL 60602 (800) 537-2632 (V) (312) 341-0022 (V) (800) 610-2779 (TTY) contactus@equipforequality.org http://www.equipforequality.org
Special Education Illinois State Board of Education Kate Anderson Foley, Ph.D.​​​​ Assistant Superintendent/State Director of Special Education​ (217)-782-4870- Springfield (312)-814-5560- Chicago https://www.isbe.net/Pages/Special-Education-Programs.aspx
Special Format Library Illinois State Library Talking Book and Braille Service 401 E. Washington Springfield, IL, 62701 (800) 665-5576 ext. 5 (in IL) (217) 782-9435 (888) 261-5280 (TTY) sruda@ilsos.net http://www.ilbph.org
Special Health Care Needs Division of Specialized Care for Children University of Illinois at Chicago 3135 Old Jacksonville Road Springfield, IL, 62704-6488 (217) 558-2350 http://www.uic.edu/hsc/dscc/
Speech, Language, and Hearing Illinois Speech-Language-Hearing Association 35 East Wacker Dr., Suite 850 Chicago, IL Â 60601-2106 (312) 644-0828 ckeillor@bostrom.com http://www.ishail.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.state.il.us/
Technical Support to Schools Midwest PBiS Network 2900 Ogden Ave Lisle, IL 60532 (630) 620-9032 support@midwestpbis.org http://www.midwestpbis.org/
UCEDD Institute on Disability and Human Development (M/C 626) Department of Disability and Human Development University of Illinois at Chicago 1640 W. Roosevelt Road Chicago, IL, 60608 (312) 413-1647 dhd@uic.edu http://ahs.uic.edu/disability-human-development/
Vocational Education, Disabilities Illinois State Board of Education 100 N. First Street Springfield, IL, 62777-0001 (217) 782-4620 http://www.isbe.net
Other Pathways Awareness 150 N. Michigan Avenue, Suite 2100 Chicago, IL, 60601 (800) 955-2445 (800) 326-8154 (TTY) friends@pathways.org http://www.pathways.org
Variety – The Children’s Charity of Illinois 1001 W 75th St. #153 Woodridge, IL 60517 501c3 #36-1908475 312-822-0660 info@varietyofillinois.org
New Jersey Resources
ADA Center Northeast ADA Center Employment and Disability Institute Cornell University 201 Dolgen Hall Ithaca, NY, 14853 (800) 949-4232 (V/TTY/Spanish) (607) 255-6686 (V/TTY/Spanish) northeastada@cornell.edu http://www.northeastada.org
Autism The Daniel Jordan Fiddle Foundation P.O. Box 1149 Ridgewood, NJ, 07451-1149 (609) 588-8200 Ext 22 (800) 4-autism info@ djfiddlefoundation.org http://www.djfiddlefoundation.org
Autism New Jersey 500 Horizon Drive, Suite 530 Robbinsville Township, NJ, 08691 (609) 588-8200, Ext. 22 (800) 4-AUTISM information@autismnj.org http://www.autismnj.org
POAC (Parents of Autistic Children) 1999 Route 88 East Brick, NJ, 08724 (732) 785-1099 info@poac.net http://www.poac.net
FACES Autism Support Network PO Box 2341 Ventnor, NJ, 08406 (609) 412-3750 facesgroup@comcast.net http://faces4autism.org/
CHIP (health care for low-income uninsured children) New Jersey Family Care P.O. Box 8367 Trenton, NJ, 08650-4818 (800) 701-0710 http://www.njfamilycare.org
D D Council New Jersey Council on Developmental Disabilities 20 W. State St. Trenton, NJ, 08625 (609) 292-3745 njcdd@njcdd@org https://njcdd.org/
Developmental Disabilities Division of Developmental Disabilities New Jersey Department of Human Services P.O. Box 726 Trenton, NJ, 08625-0726 (609) 631-2200 (800) 832-9173 kenneth.ritchey@dhs.state.nj.us http://www.state.nj.us/humanservices/ddd/home/
Early Intervention Department of Health and Senior Services Division of Family Health Services Early Intervention System 50 E. State Street P. O. Box 364 Trenton, NJ, 08625-0364 (888) 653-4463 (NJEIS Referral) (609) 777-7734 (800) 322-8174 (Childfind Birth-21) www.njeis.org
Epilepsy Epilepsy Foundation of New Jersey 1 AAA Drive Suite 203 Trenton, NJ, 08691 (800) 336-5843 (609) 392-4900 http://www.efnj.com
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V) (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org/projects/cil-net/cil-center-and-association-directory
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of New Jersey 985 Livingston Avenue North Brunswick, NJ, 08902-1843 (732) 246-2525 info@arcnj.org http://www.arcnj.org
Learning Disabilities Learning Disabilities Association of New Jersey P.O. Box 6268 East Brunswick, NJ, 08816 (732) 645-2738 info@ldanj.org http://www.ldanj.org
Mediation Office of Special Education Programs New Jersey Department of Education 100 Riverview Plaza P.O. Box 500 Trenton, NJ, 08625-0500 (609) 984-1286 877-900-6960 http://www.state.nj.us/education/
Mental Health New Jersey Department of Human Services Division of Mental Health and Addiction Services Check website for specific phone numbers DMHAS@dhs.state.nj.us http://www.state.nj.us/humanservices/dmhas/home/
Mental Health Association in New Jersey 88 Pompton Avenue, Suite 1 Verona, NJ, 07044 (973) 571-4100 info@mhanj.org http://www.mhanj.org
NAMI New Jersey 1562 Route 130 North Brunswick, NJ, 08902 (732) 940-0991 info@naminj.org https://www.naminj.org/
Preschool, Disabilities Office of Special Education Programs New Jersey Department of Education 100 Riverview Plaza P. O. Box 500 Trenton, NJ, 08625-0500 (609) 984-4950 special.education@doe.state.nj.us http://www.state.nj.us/
Parent Organizations Special Parent Assistance & Resource Center (SPARC) UCP of Hudson County, Inc. 721 Broadway Bayonne, NJ, 07002 (201) 436-2200 http://ucpofhudsoncounty.org
Parent Teacher Association (PTA) New Jersey Congress of Parents and Teachers 8 Quackerbridge Plaza Mercervile, NJ 08619 (609) 587-0100 njpta@njpta.org http://www.njpta.org
Parent Training and Information Center (PTI) Statewide Parent Advocacy Network (SPAN) 35 Halsey Street, 4th Floor Newark, NJ, 07102 (800) 654-7726 (In NJ) (973) 642-8100 span@spannj.org http://www.spanadvocacy.org
Community Parent Resource Center Association for Special Children & Families PO Box 494 Hewitt, NJ, 07421 (973) 728-8744 http://www.ascfamily.org
Protection & Advocacy Disability Rights New Jersey 210 S. Broad Street, 3rd Floor Trenton, NJ, 08608 (800) 922-7233 (in NJ) (609) 292-9742 (609) 633-7106 (TTY) advocate@drnj.org http://www.drnj.org
Relay Services State: New Jersey (800) 852-7897 (V) (800) 852-7899 (TTY); 711 (TTY) (800) 229-5746 (Speech to Speech – English) (866) 260-9470 (Speech to Speech – Spanish)
Special Education Office of Special Education Programs New Jersey Department of Education 100 Riverview Plaza P. O. Box 500 Trenton, NJ, 08625-0500 (609) 292-0147 (877) 900-6960 http://www.state.nj.us/education
Special Format Library New Jersey Library for the Blind and Handicapped 2300 Stuyvesant Avenue Trenton, NJ, 08618 (800) 792-8322 (609) 530-3239 njlbh@njstatelib.org http://www.njlbh.org/
Special Health Care Needs Special Child Health and Early Intervention Services Division of Family Health Public Health Services Branch New Jersey Department of Health and Senior Services P.O. Box 364 Trenton, NJ, 08625-0364 (609) 984-0755 gloria.rodriguez@doh.state.nj.us www.state.nj.us/health/fhs/sch/index.shtml
Family Voices of New Jersey, at SPAN 35 Halsey Street, 4th floor Newark, NJ, 07102 (800) 654-SPAN, ext. 110 (973) 642-8100 span@spannj.org http://www.familyvoices.org
Speech Language and Hearing New Jersey Speech-Language Hearing Association 66 Witherspoon St, Suite 337 Princeton, NJ 08542 (888) 906-5742 info@njsha.com http://www.njsha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.state.nj.us/
Transition Services Office of Special Education Programs New Jersey Department of Education Riverview Executive Plaza Building 100 Route 29 P.O. Box 500 Trenton, NJ, 08625 (609) 633-6431 http://www.state.nj.us/education
UCEDD The Boggs Center on Developmental Disabilities Department of Pediatrics Rutgers Robert Wood Johnson Medical School 335 George Street, Suite 3500 New Brunswick, NJ, 08901 (732) 235-9300 http://rwjms.rutgers.edu/boggscenter
Vocational Education and Rehabilitation Office of Career and Technical Education New Jersey Department of Education 100 Riverview Plaza P. O. Box 500 Trenton, NJ, 08625-0500 (609) 633-0665 http://nj.gov/education/cte/
Alliance for the Betterment of Citizens with Disabilities 127 Route 206, Suite 18 Hamilton, NJ, 08610 (609) 581-8375 http://www.abcdnj.org
Easter Seals New Jersey 25 Kennedy Blvd, Ste 600 East Brunswick, NJ 08816 (800) 486-0027 (732) 257-6662 http://www.eastersealsnj.org
Family Support Center of New Jersey 35 Beaverson Blvd Brick, NJ 08723 (800) 372-6510 (in NJ) (732) 528-8080 http://www.fscnj.org
New Jersey Mentor Rehabilitative and Support Services for Persons with Acquired Brain Injury 505 S. Lenola Road Blason Office Plaza II, Suite 217 Moorestown, NJ, 08057 (856) 235-5505 paula.blum@thementornetwork.com http://www.thementornetwork.com
New Jersey Self-Help Group Clearinghouse (free help to those seeking to find or start a local or national support group) 375 E. McFarlan Street Dover, NJ, 07801 (800) 367-6274 (in NJ) (973) 989-1122 ed@selfhelpgroups.org http://www.njgroups.org
VSA arts of New Jersey 703 Jersey Avenue New Brunswick, NJ, 08901 (732) 745-3885 (732) 745-3913 (TTY) info@vsanj.org http://www.vsanj.org
Variety - the Children's Charity of Jersey Maufant Variety Youth Centre La Grand Route de St Martin St Saviour Jersey JE2 7GT Telephone:Â (01534) 856937 Email:Â admin@varietyjersey.org.je https://www.varietyjersey.org.je/
Kelly Anne Dolan Memorial Fund: Children being referred for assistance must reside or be treated in Pennsylvania, New Jersey, or Delaware. Families may not apply to the Fund directly. Referrals must be made by a healthcare professional (for example, a social worker, case manager, nurse, doctor, or therapist). Provide assistance with expenses not covered by insurance, such as: Utility and phone bills, Mortgage/Rent, Car payments, Transportation costs, Disability needs, Air conditioners for children with severe pulmonary, cardiac, skin, liver, and kidney diseases, Medically necessary dietary supplements, special foods, and formulas, Co-pays, Child care, Funeral expenses. Assistance is paid directly to vendors or creditors to avoid misappropriation of funds.
Assistive Technology North Carolina Assistive Technology Program Department of Health and Human Services Division of Vocational Rehabilitation Services 1110 Navaho Drive, Suite 101 Raleigh, NC, 27609-7322 (800) 662-7030 (919) 855-4800 http://www.ncdhhs.gov
CHIP (Health care for low-income uninsured children) Insure Kids Now 7500 Security Blvd. Baltimore, MD 21244 (877) 543-7669 https://www.insurekidsnow.gov/coverage/nc
D D Council North Carolina Council on Developmental Disabilities 3125 Poplarwood Court, Suite 200, Raleigh, NC, 27607 (919) 850-2901/(800) 3 http://www.nccdd.org
Developmental Disabilities Developmental Disability Services Team Division of Mental Health Developmental Disabilities and Substance Abuse Services Department of Health and Human Services 3005 Mail Service Center Raleigh, NC, 27699-3005 http://www.ncdhhs.gov
Early Intervention Women’s and Children’s Health Section Division of Public Health NC Infant-Toddler Program 1916 Mail Service Center Raleigh, NC, 27699-1916 (919) 707-5520 http://beearly.nc.gov
Epilepsy Epilepsy Foundation of North Carolina, Inc. Piedmont One, Ste 5541 A 1920 W. First Street Winston Salem, NC 27104 www.epilepsync.org
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Shepherd, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/NC
To find out the contact information for centers for independent living (CILs) in your state, contact:
National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of North Carolina 343 E. Six Forks Road, Suite 320 Raleigh, NC, 27609 http://www.arcnc.org
Mental Health Division of Mental Health Developmental Disabilities and Substance Abuse Services Department of Health and Human Services MSC: 3001 Raleigh, NC, 27699-3001 http://www.ncdhhs.gov/mhddsas/index.htm
Mental Health – Youth Community Policy Management Division of Mental Health Developmental Disabilities and Substance Abuse Services Department of Health and Human Services 3007 Mail Service Center Raleigh, NC, 27699-3007 http://www.ncdhhs.gov
Parent Organizations Community Parent Resource Center (Serving Burke, Caldwell, Catawba, McDowell and Alexander Counties) HOPE Parent Resource Center PO Box 11395 Hickory, NC, 28603 http://www.fsnhope.org
Community Parent Resource Center (Serving Buncombe, Haywood, Henderson, Madison, Polk, Rutherford, Transylvania and Yancey Counties) F.I.R.S.T. P.O. Box 802 Asheville, NC, 28802 http://www.FIRSTwnc.org
First in Families of North Carolina 3109 University Drive, Ste 100 Durham, NC 27707 http://www.fifnc.org
NAMI NC Young Families 309 W. Millbrook Road, Suite 121 Raleigh, NC, 27609 www.naminc.org
North Carolina Families United, Inc. The Center for Youth, Family and Community Partnerships University of North Carolina at Greensboro 209 B. North Graham Hopedale Rd Burlington, NC 27127 http://www.ncfamiliesunited.org
Parent Teacher Association (PTA) North Carolina Congress of Parents and Teachers 3501 Glenwood Avenue Raleigh, NC, 27612-4934 http://www.ncpta.org
North Carolina Rare Disease Network
The mission of the North Carolina Rare Disease Network is to improve the lives of millions of people with one of the 7000 devastating rare diseases.
Parent Training and Information Center (PTI) ECAC – Exceptional Children’s Assistance Center 907 Barra Row, Suite 102/103 Davidson, NC, 28036 http://www.ECAC-parentcenter.org
Special Education Exceptional Children Division Department of Public Instruction 6356 Mail Service Center Raleigh, NC, 27699-6356 http://www.ncpublicschools.org/ec
Special Format Library North Carolina Library for the Blind and Physically Handicapped State Library of North Carolina -Department of Cultural Resources 1811 Capital Boulevard Raleigh, NC, 27635 http://statelibrary.ncdcr.gov/lbph
Special Health Care Needs Children and Youth Branch Women’s and Children’s Health Section Division of Public Health Department of Health and Human Services 1928 Mail Service Center Raleigh, NC, 27699-1928 http://www.ncdhhs.gov
TelAbility For medical information, telehealth and community resources for children with special needs 1101 Weaver Dairy Road, Suite 202 Chapel Hill, NC, 27514 http://www.TelAbility.org
Speech, Language, and Hearing North Carolina Speech, Hearing and Language Association P.O. Box 28359 Raleigh, NC, 27611-8359 http://www.ncshla.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.ncgov.com/
Transition Services Education and Transition Services Exceptional Children Division North Carolina Department of Public Instruction 6356 Mail Service Center Raleigh, NC, 27699-6356 http://www.ncpublicschools.org/ec/
UCEDD Carolina Institute for Developmental Disabilities The University of North Carolina at Chapel Hill Campus Box 7255 Chapel Hill, NC, 27599-7255 http://www.cidd.unc.edu/
Vocational Education and Rehabilitation Career and Technical Education Department of Public Instruction 6359 Mail Service Center Raleigh, NC, 27699-6359 http://www.ncpublicschools.org
Division of Vocational Rehabilitation Services Department of Health and Human Services 2801 Mail Service Center Raleigh, NC, 27699-2801 http://dvr.dhhs.state.nc.usÂ
D D Council Tennessee Council on Developmental Disabilities Davy Crockett Tower, First Floor 500 James Roberston Pkwy Nashville, TN 37243 (615) 532-6615 tnddc@tn.gov https://www.tn.gov/cdd/
Developmental Disabilities Intellectual and Developmental Disabilities 400 Deaderick Street Nashville, TN, 37243 (615) 532-6530 http://www.tn.gov/didd
Early Intervention Tennessee’s Early Intervention System (TEIS) Tennessee Department of Education 710 James Robertson Parkway, 10th Floor Andrew Johnson Tower Nashville, TN, 37243-0375 http://www.tn.gov/education/early-learning
Epilepsy Epilepsy Foundation Middle and West Tennessee 95 White Bridge Road, Ste 215 Nashville, TN 37205 http://epilepsytn.org
Intellectual & Developmental Disabilities The Arc of Tennessee 151 Athens Way, Suite 100 Nashville, TN, 37228 http://www.thearctn.org
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/TN
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC 20036 http://www.ncil.org
Learning Disabilities Learning Disabilities Association of America 4156 Library Road Pittsburgh, PA, 15234-1349 http://www.ldaamerica.org/
Mediation Division of Special Education Department of Education Andrew Johnson Tower 710 James Robertson Parkway, 7th floor Nashville, TN, 37243-0380 (615) 741-5158 https://tn.gov/education/l
Mental Health Mental Health Association of Middle Tennessee 295 Plus Park Blvd, Ste 201 Nashville, TN 37217 http://www.ichope.com
NAMI-Tennessee 1101 Kermit Drive, Suite 605 Nashville, TN, 37217 http://namitn.org
Tennessee Voices for Children 701 Bradford Avenue Nashville, TN, 37204 http://www.tnvoices.org
Tennessee Home and Community Based Services Department of Mental Health and Substance Abuse Services 500 Deaderick St Nashville, TN 37243 oca.tdmhsas@tn.gov http://www.tn.gov/behavioral-health/
Community Parent Resource Center Chattanooga Area Resource and Education Project 1400 McCallie Ave, Ste 112 Chattanooga, TN, 37404 http://www.lifelinefamilies.org/
Parent Teacher Association (PTA) Tennessee Congress of Parents and Teachers, Inc. 1905 Acklen Avenue Nashville, TN, 37212-3788 http://www.pta.org
Parent Training and Information Center (PTI) Support and Training for Exceptional Parents, Inc. (STEP) 712 Professional Plaza Greeneville, TN, 37745 http://www.tnstep.org
Preschool, Disabilities Tennessee Department of Education Division of Special Education 710 James Robertson Parkway Nashville, TN, 37243 http://www.tn.gov/education
Protection & Advocacy Disability Law & Advocacy Center of Tennessee P O Box 121257 2416 21st Avenue South, Suite 100 Nashville, TN, 37212 http://www.dlactn.org
Relay Services (866) 503-0263 (V/TTY/ASCII)
Speech, Language, and Hearing Tennessee Association of Audiologists and Speech-Language Pathologists http://www.taaslp.org
Special Format Library Tennessee State Library and Archives 403 7th Ave. North Nashville, TN 37243 (615) 741-2764 tlabm.tsla@tn.gov http://sos.tn.gov/tsla/labm
Special Health Care Needs Children’s Special Services Tennessee Department of Health 710 James Robertson Parkway Nashville, TN, 37243 tn.health@tn.gov http://www.tennessee.gov
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.tennessee.gov/
UCEDD Boling Center for Developmental Disabilities University of Tennessee Health Science Center 711 Jefferson Avenue Memphis, TN, 38105 http://www.uthsc.edu/bcdd
Vanderbilt Kennedy Center for Excellence in Developmental Disabilities 110 Magnolia Circle Nashville, TN 37203 (615) 322-8240 http://vkc.mc.vanderbilt.edu/vkc/
Other Organizations Tennessee Disability Pathfinder (statewide bilingual disability information & referral service for all ages) Vanderbilt Kennedy Center for Excellence in Developmental Disabilities 1114 17th Avenue South, Suite 105 Nashville, TN, 37212 http://www.familypathfinder.org
Variety of Eastern Tennessee Attn. Amanda McPhetridge 101 E. Blount Ave. Knoxville, TN 37920 (865)925-9906 http://www.varietytn.org/
Pennsylvania Resources
ADA Center Mid-Atlantic ADA Center 401 North Washington Street, Suite 450 Rockville, MD, 20805 http://www.adainfo.org
Assistive Technology Pennsylvania’s Initiative on Assistive Technology Institute on Disabilities 1755 N. 13th Street Student Center, Room 411S Philadelphia, PA, 19122 http://disabilities.temple.edu/programs/assistive/piat/
Autism ABOARD (Advisory Board on Autism and Related Disorders) 35 Wilson Street, Suite 100 Pittsburgh, PA, 15223 www.autism-support.org
Autism Society of Greater Philadelphia 1036 Nash Avenue Lansdale, PA, 19446 http://www.asaphilly.org
Career and Tech Ed Bureau of Career and Technical Education Division of Field Support Department of Education 333 Market Street, 11th Floor Harrisburg, PA, 17126-0333 http://www.pde.state.pa.us
CHIP (health care for low-income uninsured children) Pennsylvania’s Children’s Health Insurance Program http://www.chipcoverspakids.com/
D D Council Developmental Disabilities Council 561 Forum Building, Commonwealth Avenue Harrisburg, PA, 17120 http://www.paddc.org
Epilepsy Epilepsy Foundation Western/Central Pennsylvania Locations in Pittsburgh, Harrisburg and Johnstown – http://www.efwp.org/contact/Contact.xml http://www.efwp.org
Epilepsy Foundation of Eastern Pennsylvania 919 Walnut Street, Suite 700 Philadelphia, PA, 19107-5237 http://www.efepa.org
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/PA
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Pennsylvania 101 S. Second Street, Suite 403, Executive House Harrisburg, PA, 17101 http://www.thearcpa.org
NAMI Pennsylvania 2149 N. Second Street Harrisburg, PA, 17110 http://nami-pa.org
Family & Youth Support & Advocacy Division 1211 Chestnut St., Suite 1100 Philadelphia, PA, 19107 (215) 751-1800 (800) 688-4226 Check website for local offices http://www.mhasp.org/family-youth
Parent Organizations Community Parent Resource Center (Serving American Street Empowerment Zone and providing intense training sessions to parents of children with disabilities in Philadelphia) Hispanos Unidos para Ninos Excepcionales (Philadelphia HUNE, Inc.) 2215 N. American St, Philadelphia, PA 19133 http://huneinc.org
Parent Teacher Association (PTA) Pennsylvania Congress of Parents and Teachers, Inc. 4804 Derry Street Harrisburg, PA, 17111 http://www.papta.org
Parent to Parent of Pennsylvania 6340 Flank Drive, Suite 600 Harrisburg, PA, 17112-2764 http://www.parenttoparent.org
Partners in Policymaking Institute on Disabilities/University Center for Excellence Temple University University Services Building, Room 610 1601 N. Broad Street Philadelphia, PA, 19122 http://disabilities.temple.edu
Preschool, Disabilities Bureau of Early Intervention Services Office of Child Development and Early Learning Department of Education and Public Welfare 333 Market Street, 7th Floor, PDE Building Harrisburg, PA, 17126-0333 http://www.pde.state.pa.us
Protection & Advocacy Disability Rights Network of Pennsylvania 1414 N. Cameron Street, Suite C Harrisburg, PA, 17103 http://www.drnpa.org
Special Education Bureau of Special Education Department of Education 333 Market Street, 7th Floor Harrisburg, PA, 17126-0333 Special Education Consultline: (800) 879-2301(V/TTY) http://www.pde.state.pa.us
Special Health Care Needs Division of Community Systems Development and Outreach Division of Child and Adult Health Services Department of Health, 7th Floor, East Wing Health & Welfare Building 7th & Forster Street Harrisburg, PA, 17120 http://www.state.pa.us
Speech, Language, and Hearing Pennsylvania Speech-Language-Hearing Association 700 McKnight Park Drive, Ste 708 Pittsburgh, PA 15237 http://www.psha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.pa.gov/
Transition Services Pennsylvania Training and Technical Assistance Network (PATTAN) 3190 William Pitt Way Pittsburgh, PA, 15238 http://www.pattan.net
Variety - the Children's Charity of the Delaware Valley 2950 Potshop Road PO Box 609 Worcester, PA 19490 Phone: 610.584.4366 Fax: 610.584.5586 varietyphila.org
The Camphill School 551 W Seven Stars Rd Phoenixville, PA 19460 610-469-9236 http://camphillschool.org
UCEDD Institute on Disabilities/ UCEDD Temple University 1755 N 13th Street, Suite 411 Howard Gittis Student Center, South Philadelphia, PA, 19122 http://disabilities.temple.edu
Other Organizations Easter Seals of Western and Central Pennyslvania 2525 Railroad St Pittsburgh, PA 15222 (888) 372-7280 http://www.easterseals.com/wcpenna/
Kelly Anne Dolan Memorial Fund: Children being referred for assistance must reside or be treated in Pennsylvania, New Jersey, or Delaware. Families may not apply to the Fund directly. Referrals must be made by a healthcare professional (for example, a social worker, case manager, nurse, doctor, or therapist). Provide assistance with expenses not covered by insurance, such as: Utility and phone bills, Mortgage/Rent, Car payments, Transportation costs, Disability needs, Air conditioners for children with severe pulmonary, cardiac, skin, liver, and kidney diseases, Medically necessary dietary supplements, special foods, and formulas, Co-pays, Child care, Funeral expenses. Assistance is paid directly to vendors or creditors to avoid misappropriation of funds.
Ohio Resources
ADA Center Great Lakes ADA Center University of Illinois at Chicago Institute on Disability & Human Development (MC 728) 1640 West Roosevelt Road, Room 405 Chicago, IL, 60608 http://www.adagreatlakes.org
Assistive Technology Assistive Technology of Ohio Area 1700, 1314 Kinnear Rd. Columbus, OH 43212 (614) 292-2390/(800) 784-3425 atohio@osu.edu https://atohio.engineering.osu.edu/
D D Council Ohio Developmental Disabilities Council 899 E. Broad St, Ste 203 Columbus, OH 43205 http://www.ddc.ohio.gov
Developmental Disabilities Ohio Department of Developmental Disabilities 30 E. Broad St. Columbus, OH, 43215 (800) 617-6733 http://dodd.ohio.gov/Pages/default.aspx
Early Intervention Help Me Grow 246 N. High St., 5th Floor Columbus, OH, 43215 HMG@odh.ohio.gov http://www.helpmegrow.ohio.gov/
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/OH
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Ohio 1335 Dublin Road, Suite 100-A Columbus, OH, 43215 http://www.thearcofohio.org
Mental Health Ohio Department of Mental Health The James A Rhodes State Office Tower 30 E. Broad Street, 8th Floor Columbus, OH, 43215-3430 (614) 466-2596/(877) 275-6364 http://mha.ohio.gov/
Mental Health – Youth Office of Children’s Services and Prevention Ohio Department of Mental Health 30 E. Broad Street, 8th Floor Columbus, OH, 43215-3430 http://mha.ohio.gov/Default.aspx?tabid=313
Parent Organizations Parent Teacher Association (PTA) Ohio Congress of Parents and Teachers 40 Northwoods Boulevard Columbus, OH, 43235 http://www.ohiopta.org
Parent Training and Information Center (PTI) Ohio Coalition for the Education of Children with Disabilities 165 W. Center Street, Suite 302 Marion, OH, 43302-3741 http://www.ocecd.org
Preschool, Disabilities Office of Early Learning and School Readiness Ohio Department of Education 25 S. Front Street, Mail Stop 305 Columbus, OH, 43215-4183 education.ohio.gov/Topics/Early-Learning
Special Format Library The Public Library of Cincinnati and Hamilton County Library for the Blind and Physically Handicapped 17121 Lakeshore Blvd Cleveland, OH 44110 http://www.cincinnatilibrary.org/services/blind.html
Speech, Language, and Hearing Ohio Speech-Language-Hearing Association P.O. Box 309 Germantown, OH, 45327 http://www.ohioslha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.ohio.gov/
Transition Services Office for Exceptional Children Ohio Department of Education 25 S. Front Street, Mail Stop 205 Columbus, OH, 43215 http://www.ode.state.oh.us
UCEDD University of Cincinnati University Center for Excellence in Developmental Disabilities Cincinnati Children’s Hospital Medical Center Division of Developmental and Behavioral Pediatrics Mailing Address: MLC 4002, 3333 Burnet Avenue Cincinnati, OH, 45229-3039 https://www.ucucedd.org
Nisonger Center – UCEDD The Ohio State University McCampbell Hall 1581 Dodd Drive Columbus, OH, 43210 https://nisonger.osu.edu/
Vocational Education and Rehabilitation Ohio Department of Education Office for Exceptional Children 25 S. Front Street, Mail Stop 204 Columbus, OH, 43215-4183 http://education.ohio.gov/Topics/Career-Tech
Ohio Family and Children First 30 E. Broad St, 8th floor Columbus, OH 43215 http://www.fcf.ohio.gov/
VSA Ohio 77 S. High Street, 2nd Floor Columbus, OH, 43215 http://www.vsao.org
Parker’s Purpose Foundation: Monetary assistance given to any family who has a minor (18 and under) with a life altering illness or disability that is in an immediate financial crisis due to unforeseen medical expenses. Families who live in Ohio will be first priority in providing assistance but will extend outside the state if deemed necessary. Â
ADA Center Great Lakes ADA Center University of Illinois at Chicago Institute on Disability & Human Development (MC 728) 1640 West Roosevelt Road, Room 405 Chicago, IL, 60608 (800) 949-4232 (V/TTY) (312) 413-1407 (V/TTY) http://www.adagreatlakes.org
Autism Autism Society of Indiana 3951 N. Meridian St, Ste 220 Inianapolis, IN, 46208 (800) 609-8449 info@inautism.org http://www.inautism.org
Indiana Resource Center for Autism (IRCA) Indiana Institute on Disability and Community Indiana’s University Center for Excellence on Disabilities Indiana University 1905 North Range Road Bloomington, IN, 47408-2696 (812) 855-6508 (812) 855-9396 (TTY) http://www.iidc.indiana.edu/irca
CHIP (health care for low-income uninsured children) Hoosier Healthwise Children’s Health Insurance Program Indiana Family and Social Services Administration 402 W. Washington Street, Room 382, MS07 Indianapolis, IN, 46204-2739 (800) 889-9949 https://www.insurekidsnow.gov/coverage/in/index.html
D D Council Governor’s Council for People with Disabilities 402 W. Washington St. Indianapolis, IN, 46204 (317) 332-7770 GPCPD@gpcpd.org http://www.IN.gov/gpcpd/
Developmental Disabilities Family and Social Services Administration 402 W Washington St., #W451 PO Box 7083, MS26 Indianapolis, IN, 46207-7083 (800) 545-7763 http://www.in.gov/fssa/ddrs/2639.htm
Early Intervention Indiana Family and Social Services Administration Division of Disability and Rehabilitative Services Bureau of Child Development Services (BCDS) 402 W. Washington Street, Room W-386 Indianapolis, IN, 46204 (800) 545-7763 FirstStepsWeb@fssa.in.gov http://www.in.gov/fssa/ddrs/4655.htm
Epilepsy Epilepsy Foundation of Indiana 3901 W. 86th Street, Suite 380 Indianapolis, IN, 46268 (800) 526-6618 (317) 876-0600 info@indianaepilepsyfoundation.org http://indianaepilepsyfoundation.org
Family Voices Indiana Provides resources, advocacy, and family support in Indiana. 4060 W 400 S Lebanon, IN, 46052 (317) 944-8982 info@fvindiana.org http://www.fvindiana.org https://www.fvindiana.org/
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V); (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Indiana Medicaid Waiver The Family Supports home and community-based services (HCBS) waiver (FSW) provides limited, non-residential supports to individuals with developmental disabilities who live with their families or in other settings with informal supports. https://www.in.gov/medicaid/members/202.htm
Intellectual & Developmental Disabilities The Arc of Indiana 107 N. Pennsylvania, Suite 800 Indianapolis, IN, 46204 (317) 977-2375 http://www.arcind.org
Mediation Indiana Department of Education Center for Exceptional Learners 115 Washington Street – South Tower, Ste 600 Indianapolis, IN, 46204 (317) 232-0570 specialeducation@doe.in.gov www.doe.in.gov/specialed/special-education-due-process
Mental Health Division of Mental Health and Addiction Family and Social Services Administration 402 W. Washington Street, Room W353 Indianapolis, IN, 46204-2739 (317) 232-7845 http://www.IN.gov/fssa
Mental Health America in Indiana 1431 N. Delaware Street Indianapolis, IN, 46202 (800) 555-6424 (in IN only) (317) 638-3501 http://www.mhai.net
NAMI Indiana, National Alliance on Mental Illness P.O. Box 22697 Indianapolis, IN, 46222-0697 (800) 677-6442 (317) 925-9399 info@namiindiana.org http://www.namiindiana.org
Mental Health – Youth Children’s Services Bureau Division of Mental Health and Addiction Family and Social Services Administration 402 W. Washington Street, Room W353 Indianapolis, IN, 46204-2772 (317) 232-7934 kevin.moore@fssa.in.gov http://www.IN.gov/fssa
PACER grant Pacer provides individual assistance, workshops, publications and other resources to help families make decisions about education and other services for their child or young adult with disabilities. Parent-To-Parent information can be found under the PACER grant link. www.PACER.org
Parent Organizations Parent Teacher Association (PTA) Indiana Congress of Parents and Teachers, Inc. 2525 N. Shadeland Avenue, D-4 Indianapolis, IN, 46219-1787 (317) 357-5881 info@indianapta.org http://www.indianapta.org
Parent Training and Information Center (PTI) IN*SOURCE 1703 S. Ironwood Drive South Bend, IN, 46613 (800) 332-4433 (In IN) (574) 234-7101 (V/TTY); insource@insource.org http://www.insource.org
P2P at About Special Kids, Inc. 7172 Graham Road, Suite 100 Indianapolis, IN, 46250 (317) 257-8683 (800) 964-4746 familynetw@aboutspecialkids.org http://www.aboutspecialkids.org
Preschool, Disabilities Indiana Department of Education South Tower, Suite 600 115 W. Washington St. Indianapolis, IN, 46204 (317) 232-0570 (877) 851-4106 specialeducation@doe.in.gov http://www.doe.in.gov/specialed
Protection & Advocacy Indiana Disability Rights Indiana Protection and Advocacy Services 4701 N. Keystone Ave., Suite 222 Indianapolis, IN, 46204 (317) 722-5555 (800) 622-4845 info@indianadisabilityrights.org http://www.in.gov/idr/2523.htm
Partners in Policymaking c/o Governor’s Council for People with Disabilities 150 W. Market Street, Suite 628 Indianapolis, IN, 46204 (317) 232-7770 PIP@gpcpd.org http://www.in.gov/gpcpd/
Special Education Indiana Department of Education Division of Exceptional Learners 115 W. Washington St – South Tower, Ste 600 Indianapolis, IN, 46204-2798 (317) 232-0570 specialeducation@doe.in.gov http://www.doe.in.gov/specialed
Special Format Library Indiana State Library Talking Books 140 N. Senate Avenue Indianapolis, IN, 46204 (800) 622-4970 (317) 232-3684 (317) 232-7763 (TTY) lbph@library.in.gov http://www.in.gov/library/tbbl.htm
Special Health Care Needs Maternal & Children’s Special Health Care Services Division Indiana State Department of Health 2 N. Meridian Street, Suite 7B Indianapolis, IN, 46204 (800) 475-1355 (317) 233-1351 http://www.in.gov/isdh/19571.htm
Speech, Language, and Hearing Indiana Speech-Language-Hearing Association, ISHA 3125 Dandy Trail, Ste 110, Indianapolis, IN 46214 (317) 916-4146 http://www.islha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.in.gov
Transition Services Center on Community Living and Careers Indiana Institute on Disability and Community University Center for Excellence Indiana University 2853 E. Tenth Street Bloomington, IN, 47408 (812) 855-6508 tgrossi@indiana.edu http://www.iidc.indiana.edu/
UCEDD Indiana Institute on Disability and Community Indiana University 1905 North Range Road Bloomington, IN, 47408-2696 (812) 855-6508 (812) 855-9396 (TTY) iidc@indiana.edu http://www.iidc.indiana.edu
Vocational Education Department of Career and Technical Education 10 N. Senate Avenue, Room 212 Indianapolis, IN, 46204-2277 (317) 234-4106 cguidry@dwd.in.gov www.in.gov/dwd/2415.htm
Bureau of Rehabilitation Services Indiana Family and Social Services Administration Division of Disability and Rehabilitative Services 402 W. Washington Street, Room W453 P.O. Box 7083 Indianapolis, IN, 46207-7083 (800) 545-7763 (317) 234-4475 michael.hedden@fssa.in.gov http://www.IN.gov/fssa/
Other Easter Seals Wayne/Union Counties 4740 Kingsway Dr. Indianapolis, IN 46205 (317) 466-1000 http://eastersealscrossroads.org
* If your child is on a waiver program in your state you may want to check for respite changes. This is for Indiana Families. BDDS will temporarily allow respite care services to be provided by paid family caregivers, including parent(s), stepparent(s), and legal guardian(s). BDDS will temporarily allow for PAC, community habilitation and RHS to be provided to a minor by relatives, including parent(s), stepparent(s), and legal guardian(s) beyond 40 hours per week.You will need to check with your respite provider to make sure you qualify. Not all agencies are doing it.
Â
Hawaii Resources
ADA Center Pacific ADA Center 555 12th Street, Suite 1030 Oakland, CA, 94607 (800) 949-4232 (V/TTY) (510) 285-5600 (V/TTY); adatech@adapacific.org http://www.adapacific.org
Assistive Technology Assistive Technology Resource Centers of Hawaii 414 Kuwili Street, Suite 104 Honolulu, HI, 96817-5050 (800) 645-3007 (808) 532-7110 (V/TTY) jodi@atrc.org http://www.atrc.org
Autism Autism Society of Hawaii PO Box 61924 Honolulu, HI, 96839 (808) 342-0364 autismhi@gmail.com https://autismsocietyofhawaii.org
Career & Technical Education Career and Technical Education University of Hawaii Lower Campus Road, Lunalilo Portable 1 Honolulu, HI, 96822 (808) 956-7461 http://www.hawaii.edu/cte
CHIP (health care for low-income uninsured children) Med-QUEST Division P.O. Box 3490 Honolulu, HI, 96811-3490 (808) 587-3521 http://www.medquest.hawaii.gov/
D D Council State Council on Developmental Disabilities 919 Ala Moana Boulevard, Suite 113 Honolulu, HI, 96814 (808) 586-8100 waynette.cabral@doh.hawaii.gov http://www.health.hawaii.gov/
Developmental Disabilities Developmental Disabilities Division Hawaii State Department of Health 1250 Punchbowl St., Room 463 Honolulu, HI, 96813 (808) 586-5840 http://health.hawaii.gov/ddd/
Early Intervention Department of Health 1350 S. King Street, Suite 200 Honolulu, HI, 96814 (808) 594-0006 sue.brown@doh.hawaii.gov http://www.health.hawaii.gov/
Special Education Office of Curriculum Instruction and Student Support Special Education Services Branch Student Support & Special Education Sections 637 18th Avenue, Building C Honolulu, HI, 96816 (808) 733-4838 http://www.hawaiipublicschools.org/
Epilepsy Epilepsy Foundation of Hawaii 200 N. Vineyard Boulevard, Suite B259 Honolulu, HI, 96817 (808) 528-3058 efh@epilepsyhawaii.org http://www.epilepsyhawaii.org
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V) (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc in Hawaii 3989 Diamond Head Road Honolulu, HI, 96816 (808) 737-7995 info@thearcinhawaii.org http://www.thearcinhawaii.org
Learning Disabilities Learning Disabilities Association of Hawaii 200 N. Vineyard Boulevard, Suite 310 Honolulu, HI, 96817 (800) 533-9684 (in HI) (808) 536-9684 (V/TTY); LDAH@LDAHawaii.org http://www.ldahawaii.org
Mediation Hawaii Department of Education Special Education Section 1390 Miller St. Honolulu, HI, 96813 (808) 586-3230 http://www.hawaiipublicschools.org
Mental Health Behavioral Health Administration Department of Health 1250 Punchbowl Street Honolulu, HI, 96813 (808) 586-4416 webmail@doh.hawaii.gov http://health.hawaii.gov/
Mental Health America of Hawaii 1136 Union Mall, Suite 510 Honolulu, HI, 96813 (808) 521-1846 http://www.mentalhealth-hi.org
NAMI Hawaii, National Alliance on Mental Illness 770 Kapiolani Boulevard, Suite 613 Honolulu, HI, 96813 (808) 591-1297 info@namihawaii.org http://www.namihawaii.org/
Hawaii Families as Allies, Federation of Families for Children’s Mental Health 99-209 Moanalua Road, Suite 305 PO Box 1971 Aiea, HI, 96701 (808) 682-1511 hfaa@hfaa.net http://hifamilies.org
Mental Health – Youth Child and Adolescent Mental Health Division Department of Health 3627 Kilauea Avenue, Suite 101 Honolulu, HI, 96816 (808) 733-9339 http://health.hawaii.gov
Parent Organization Special Parent Information Network (SPIN) 1010 Richards Street, Room 118 Honolulu, Hawaii, 96813 (808) 586-8126 (V/TTY) spin@doh.hawaii.gov http://www.spinhawaii.org
Parent Teacher Association (PTA) Hawaii State Parent Teacher Student Association PO Box 96782 Honolulu, HI, 96782 (808) 943-2042 histateptsa@gmail.com http://www.hawaiistateptsa.org
Parent Training and Information Center (PTI) Hawaii Parent Training and Information Center Learning Disabilities Association of Hawaii 245 N. Kukui St., Ste 205 Honolulu, HI, 96817 (800) 533-9684 (in HI) (808) 536-9684 (V/TTY) nmoore@LDAHawaii.org http://www.ldahawaii.org
Protection & Advocacy Hawaii Disability Rights Center 1132 Bishop Street, Suite 2102 Honolulu, HI, 96813 (808) 949-2922 (V/TTY) info@HawaiiDisabilityRights.org http://www.HawaiiDisabilityRights.org
Special Education Student Support Services Branch Hawaii Department of Education 637 18th Avenue, Room C-101B Honolulu, HI, 96816 (808) 733-4400 paul_ban@notes.k12.hi.us http://www.hawaiipublicschools.org
Special Format Library Hawaii State Library for the Blind and Physically Handicapped 402 Kapahulu Avenue Honolulu, HI, 96815 (808) 733-8444 (808) 733-8446 (808) 733-8444 (TTY) http://www.librarieshawaii.org/
Special Health Care Needs Children with Special Health Needs Program Department of Health 741 Sunset Avenue Honolulu, HI, 96816 (808) 733-9055 (V/TTY) http://health.hawaii.gov/
Speech, Language, and Hearing Hawaii Speech-Language-Hearing Association P.O. Box 235888 Honolulu, HI, 96823 (808) 528-4742 hsha_membership@yahoo.com http://www.hsha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://portal.ehawaii.gov/
Transition Services Special Education Section, Student Support Services Branch Hawaii Department of Education 637 18th Avenue, Room C-102 Honolulu, HI, 96816 (808) 733-4832 maxine_nagamine@notes.k12.hi.us http://www.autismspeaks.org
UCEDD Pacific Basin Program University of Hawaii, Center on Disability Studies 1776 University Avenue, UA 4-6 Honolulu, HI, 96822 (808) 956-2303 robertsk@hawaii.edu http://www.hawaii.edu/cds
Vocational Rehabilitation Division of Vocational Rehabilitation Department of Human Services 600 Kapi’olani Blvd. #305 Honolulu , HI, 96813 (808) 586-9745 smitchell@dhs.hawaii.gov http://humanservices.hawaii.gov/vr
Other Easter Seals Hawaii 710 Green Street Honolulu, HI, 96813 (888) 241-7450 (808) 536-1015 (V/TTY) http://www.eastersealshawaii.org
Disability and Communication Access Board 919 Ala Moana Boulevard, Room 101 Honolulu, HI, 96814-4920 (808) 586-8121 (V/TTY) dcab@doh.hawaii.gov http://www.hawaii.gov/health/dcab
Colorado Resources
ADA Center Rocky Mountain ADA Center 3630 Sinton Road, Suite 103 Colorado Springs, CO, 80907 (719) 444-0268 (V/TTY) (800) 949-4232 (V/TTY) adainfo@adainformation.org http://www.adainformation.org
Assistive Technology Assistive Technology Partners Department of Rehabilitation Medicine University of Colorado Health Sciences Center 601 E. 18th Avenue, Suite 130 Denver, CO, 80203 (303) 315-1280 (303) 837-8964 (TTY) (800) 255-3477 http://www.assistivetechnologypartners.org
Autism Autism Society of Colorado 550 S Wadsworth Blvd, Ste 100 Lakewood, CO, 80226 (720) 214-0794 contact@autismcolorado.org http://www.autismcolorado.org
CHIP Program (health care for low-income uninsured children) Child Health Plan Plus (CHP+) P.O. Box 929 Denver, CO, 80201-0929 (800) 359-1991 http://www.cchp.org/
D D Council Colorado Developmental Disabilities Council 1120 Lincoln Street, Suite 706 Denver, CO, 80203-2117 (720) 941-0176 cddpc.email@state.co.us http://www.coddc.org
Developmental Disabilities Colorado Department of Health Care Policy & Financing Division for Intellectual and Developmental Disabilities 1570 Grant St. Denver, CO, 80203-1818 (303) 866-2993 https://www.colorado.gov/hcpf
Early Intervention Early Intervention Colorado CDHS-Division for Developmental Disabilities 4055 S. Lowell Blvd. Denver, CO, 80236 (888) 777-4041 http://www.eicolorado.org
Epilepsy Epilepsy Foundation of Colorado, Inc. 234 Columbine Street, Suite 333 Denver, CO, 80206-4711 (303) 377-9774 (888) 378-9779 (in CO) gail@epilepsycolorado.org http://www.epilepsycolorado.org
Independent Living For your Statewide Independent Living Council, contact: Independent Living Research Utilization 2323 S. Shepherd, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V/TTY) ilru@ilru.org http://www.ilru.org/html/publications/directory/
To learn about independent living centers in your area, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0034 (V) (202) 207-0340 (TTY) (877) 525-3400 (toll free) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of Colorado 8000 E. Prentice Avenue, Suite D-1 Greenwood Village, CO, 80111 (303) 864-9334 (800) 333-7690 http://www.thearcofco.org
Mediation Colorado Department of Education Exceptional Student Services 201 E. Colfax Avenue, Room 300 Denver, CO, 80203 (303) 866-6685 http://www.cde.state.co.us
Mental Health Mental Health America of Colorado 1120 Lincoln St., Suite 1606 Denver, CO, 80203 (720) 208-2220 info@mentalhealthcolorado.org http://www.mentalhealthcolorado.org/
Mental Health – Youth Division of Mental Health Services Department of Human Services 3824 W. Princeton Circle Denver, CO, 80236 (303) 866-7400 https://www.colorado.gov/cdhs
Parent Organizations Community Parent Resource Center Denver Metro Community Parent Resource Center 2600 S. Parker Rd., Suite 332 Aurora, CO, 80014 (303) 365-2772 info@denvermetrocprc.org http://www.denvermetrocprc.org
Parent Training and Information Center (PTI) PEAK Parent Center 611 N. Weber, Suite 200 Colorado Springs, CO, 80903 (719) 531-9400 (800) 284-0251 (719) 531-9403 (TTY) info@peakparent.org http://www.peakparent.org
Parent to Parent of Colorado 801 Yosemite Street Denver, CO, 80230 (877) 472-7201 info@p2p-co.org http://www.p2p-co.org
Preschool Disabilities Early Childhood Initiatives Colorado Department of Education 201 E. Colfax Avenue, Room 305 Denver, CO, 80203 (303) 866-6709 (303) 866-6712 (888) 777-4041 http://www.cde.state.co.us
Protection & Advocacy Disability Law Colorado Denver Office (800) 288-1376/(303) 722-0300 Grand Junction Office (800) 531-2105/(970) 241-6371 https://disabilitylawco.org/
Special Education Exceptional Student Services Unit Colorado Department of Education 201 E. Colfax Avenue Denver, CO, 80203 (303) 866-6694 http://www.cde.state.co.us
Special Format Library Colorado Talking Book Library 180 Sheridan Boulevard Denver, CO, 80226-8097 (303) 727-9277 (800) 685-2136 ctbl.info@cde.state.co.us http://www.cde.state.co.us/ctbl
Special Health Care Needs Health Care Program For Children with Special Needs (HCP) Department of Public Health and Environment 4300 Cherry Creek Drive South, Room A410 Denver, CO, 80246-1530 (303) 692-2370 (800) 688-7777 http://www.cdphe.state.co.us
Family Voices Colorado 13199 East Montview Blvd, Suite 200 Aurora, CO, 80045 (303) 733-3000 (800) 881-8272 info@familyvoicesco.org http://familyvoicesco.org
Speech, Language, and Hearing Colorado Speech-Language-Hearing Association P.O. Box 345 Sedalia, CO, 80135 (720) 733-9097 cshassoc@aol.com http://www.cshassoc.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: https://www.colorado.gov/
Transition Services Exceptional Student Leadership Unit Colorado Department of Education 201 E. Colfax Avenue Denver, CO, 80203 (303) 866-6799 http://www.cde.state.co.us/cdesped/transition
UCEDD JFK Partners University of Colorado Denver School of Medicine 13121 E. 17th Ave, C234 Aurora, CO, 80045 (303) 724-5266 http://www.jfkpartners.org
Vocational Education & Rehabilitation Colorado Community College System 9101 E. Lowry Boulevard Denver, CO, 80230-6011 (303) 620-4000
Division of Vocational Rehabilitation Department of Labor and Employment Check website for departments and local offices https://www.colorado.gov/pacific/dvr/
VSA Colorado Access Gallery/Studio 909 Santa Fe Drive Denver, CO, 80204 (303) 777-0797 info@accessgallery.org http://accessgallery.org/
California Resources
ADA Center Pacific ADA Center 555 12th Street, Suite 1030 Oakland, CA, 94607 (800) 949-4232 (V/TTY) (510) 285-5600 (V/TTY) adatech@adapacific.org http://www.adapacific.org
Assistive Technology California Assistive Technology System Department of Rehabilitation 2000 Evergreen Street Sacramento, CA, 95815 (916) 274-6325 (V/TTY) http://www.dor.ca.gov
Autism Autism Society of California PO Box 1355 Glendora, CA, 91740 (800) 869-7069 ca-california@autismsocietyofamerica.org http://www.autismsocietyca.org
Â
C.A.R.E Foundations
CARE Grant Program is for helping families with medication, autism diagnosis/evaluation, therapy session (including speech, OT and ABA,) and autism summer camps.
Community Parent Resource Center Parents CAN 1909 Jefferson St. Napa, CA, 94559 (707) 253-7444 parents@parentscan.org http://www.parentscan.org
Fiesta Educativa, Inc. (Serving E. Los Angeles) 161 S. Avenue 24 Los Angeles, CA, 90031-2299 (323) 221-6696 info@fiestaeducativa.org http://www.fiestaeducativa.org
Foster Youth Resources for Education (FYRE) (Serving Alameda County) 3075 Adeline St., Suite 210 Berkeley, CA, 94703 (800) 348-4232 (510) 644-2555 info@dredf.org http://www.dredf.org
Fuerza, Inc. 1340 E. McWood Street West Covina, CA, 91790 (800) 200-4323 fuerz@fuerzainc.org http://www.fuerzainc.org
Chinese Parents Association for the Disabled (Serving Los Angeles and Orange Counties) P.O. Box 2884 San Gabriel, CA, 91778 (626) 307-3837 chen_rachel@hotmail.com http://www.cpad.org
Vietnamese Parents of Disabled Children Association (Serving Orange and Los Angeles County) 7526 Syracuse Avenue Stanton, CA, 90680 (714) 527-9216 contact@vpdca.org
D D Council California State Council on Developmental Disabilities 1507 21st Street, Suite 210 Sacramento, CA, 95814 (866) 802-0514 (916) 322-8481 council@scdd.ca.gov http://www.scdd.ca.gov
Developmental Disabilities (providing services and support for infants, children, and adults with developmental disabilities) Department of Developmental Services California Health and Human Services Agency 1600 9th Street, Room 240 Sacramento, CA, 95814 (916) 654-1897 http://www.dds.ca.gov
Early Intervention Part C Coordinator Children and Family Services Branch Department of Developmental Services 1600 9th Street, Room 330, MS 3-8 Sacramento, CA, 95814 (800) 515-2229 (916) 654-2773 ringraha@dds.ca.gov http://www.dds.ca.gov/EarlyStart/Home.cfm
Epilepsy Epilepsy Foundation of San Diego County 2055 El Cajon Blvd San Diego, CA, 92104 (619) 296-0161 info@epilepsysandiego.org http://www.epilepsysandiego.org
Epilepsy Foundation Greater Los Angeles 5777 W. Century Boulevard, Suite 820 Los Angeles, CA, 90045 (800) 564-0445/(310) 670-2870 help@endepilepsy.org http://endepilepsy.org/
Independent Living To find the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V) (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org
To find the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc of California 1225 Eighth Street, Suite 350 Sacramento, CA, 95814 (916) 552-6619 tony@thearcca.org http://www.thearcca.org/
Learning Disabilities Learning Disabilities Association of California 808 West Balboa Blvd. Newport Beach, CA, 92661 (909) 621-1494 contact@ldaca.org http://ldaamerica.org
Mental Health Mental Health Association in California 1127 11th Street, Suite 925 Sacramento, CA, 95814 (916) 557-1167 rselix@mhac.org http://www.mhac.org
United Advocates for Children and Families 2035 Hurley Way, Suite 290 Sacramento, CA, 95825 (866) 643-1530 (916) 643-1530 information@uacc4families.org http://www.uacf4hope.org
NAMI California 1010 Hurley Way, Suite 195 Sacramento, CA, 95825 (916) 567-0163 support@namicalifornia.org http://www.NAMICalifornia.org
Mediation Department of Education Special Education Division 1430 N Street, 2nd Floor Sacramento, CA, 95814 (916) 323-2196 http://www.cde.ca.gov/sp/se/
Mental Health -Youth Children and Family Services California Department of Mental Health 1600 9th Street, Room 100 Sacramento, CA, 95814 (916) 651-2024 http://www.childsworld.ca.gov/
Parent Teacher Association (PTA) California State PTA 2327 L Street Sacramento, CA, 95816 (916) 440-1985 info@capta.org http://www.capta.org/
Parent Training and Information Center (PTI) Disability Rights Education and Defense Fund, Inc. (DREDF) 3075 Adeline Street, Suite 210 Berkeley, CA, 94703 (800) 348-4232 (510) 644-2555 info@dredf.org http://www.dredf.org
MATRIX Parent Network and Resource Center 94 Galli Drive, Suite C Novato, CA, 94949 (800) 578-2592 (415) 884-3535 info@matrixparents.org http://www.matrixparents.org
Parents Helping Parents 1400 Parkmoor, Suite 100 San Jose, CA, 95126 (408) 727-5775 (408) 748-8339 (TTY) info@php.com http://www.php.com
Rowell Family Empowerment of Northern CA 962 Maraglia St. Redding, CA, 96002 (530) 226-5129 (877) 227-3471 http://www.rfenc.org
Support for Families of Children with Disabilities 1663 Mission Street, 7th Floor San Francisco, CA, 94110-3111 (415) 282-7494 (Program office) (415) 920-5040 (Family Resource Center) http://www.supportforfamilies.org
Team of Advocates for Special Kids (TASK) 100 W. Cerritos Avenue Anaheim, CA, 92805 (866) 828-8275 (714) 533-8275 task@taskca.org http://www.taskca.org
Team of Advocates for Special Kids (TASK)Â San Diego 3180 University Ave. Ste. 430 San Diego, CA, 92104 (877) 609-3218 (619) 282-0846 task@taskca.org http://www.taskca.org
Parent-to-Parent P2P at Parents Helping Parents, Inc. 1400 Parkmoor Ave. San Jose, CA, 95126-3429 (408) 727-5775 http://www.php.com
Preschool, Disabilities Special Education Division Administrative Services Unit Department of Education 1430 N Street, Suite 530 Sacramento, CA, 95814 (916) 327-3547 http://www.cde.ca.gov/sp/se/
Protection & Advocacy Disability Rights California 1831 K Street Sacramento, CA, 95811-4114 (800) 952-5544 (In CA) 916-504-5800 (800) 719-5798 (TTY) info@disabilityrightsca.org http://www.disabilityrightsca.org
Special Education Special Education Division California Department of Education 1430 N Street, Suite 2401 Sacramento, CA, 95814 (916) 445-4602 http://www.cde.ca.gov/sp/se
Speech, Language, and Hearing California Speech-Language-Hearing Association (CSHA) (representing speech-language pathologists and audiologists) 825 University Avenue Sacramento, CA, 95825-6724 (916) 921-1568 CSHA@CSHA.org http://www.CSHA.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.ca.gov/
Transition Services Transition Services and Work Ability Special Education Division California Department of Education 1430 N Street, Suite 2401 Sacramento, CA, 95814 http://www.cde.ca.gov/sp/se/sr/wrkabltyI.asp
UCEDD Tarjan Center, a UCEDD University of California, Los Angeles 11075 Santa Monica Blvd., Suite 200 Los Angeles, CA, 90095 (310) 825-5054 MForgacs@mednet.ucla.edu http://www.semel.ucla.edu/tarjan
UCEDD at Children’s Hospital Los Angeles University of Southern California 4650 Sunset Boulevard Mailstop #53 Los Angeles, CA, 90027 (323) 361-2300 (213) 480-4192 (TTY) uscucedd@chla.usc.edu http://www.uscucedd.org/
UCEDD at the UC Davis MIND Institute UC Davis Health System 2825 50th Street Sacramento, CA, 95817 (916) 703-0235 http://www.ucdmc.ucdavis.edu/ddcenter/
Vocational Education, Disabilities Secondary, Postsecondary and Adult Leadership Division California Department of Education 1430 N Street, Suite 4503 Sacramento, CA, 95814 (916) 445-2652 painswor@cde.ca.gov http://www.cde.ca.gov/ci/ct/
Department of Rehabilitation 721 Capitol Mall Sacramento, CA, 95814 (916) 324-1313 (VOICE) (916) 558-5807 (TTY) ExternalAffairs@dor.ca.gov http://www.dor.ca.gov
Other Organizations California Association of School Psychologists 1400 K Street, Suite 311 Sacramento, CA, 95814 (916) 444-1595 memberservices@casponline.org http://www.casponline.org
Easter Seals Bay Area 180 Grand Avenue, Suite 300 Oakland, CA, 94612 (510) 835-2131, ext. 126 mpelfini@esba.org http://www.eastersealsbayarea.org
Family Resource Network (Serving Amador, Calaveras, San Joaquin, Stanislaus & Tuolumne Counties) 5250 Claremont Avenue, Suite 239 Stockton, CA, 95207 (800) 847-3030 (in 5 county region) (209) 472-3674 frnfamilies@aol.com http://www.frcn.org/
Variety - the Children's Charity of Northern California 582 Market St., Suite 101 San Francisco, CA 94104 info@varitync.org Main 415.781.3894 Fax 415.590.7222 Screening Room 415.781.3893 https://www.varietync.org/
Texas Resources
ADA Center Southwest ADA Center TIRR Memorial Hermann – ILRU 1333 Moursund Houston, TX 77030 (713) 520-0232 (V/TTY) (800) 949-4232 (V/TTY) http://www.southwestada.org
Assistive Technology Contact University Centers for Excellence in Developmental Disabilities – Center for Disability Studies.
Career & Technical Education Texas Education Agency 1701 N. Congress Avenue Austin, TX, 78701 (512) 463-9581 http://tea.texas.gov/cte/
D D Council Texas Council for Developmental Disabilities 6201 E. Oltorf, Suite 600 Austin, TX, 78741-7509 (512) 437-5432 (800) 262-0334 http://www.txddc.state.tx.us/
Epilepsy Epilepsy Foundation of Texas – Houston/Dallas/Ft. Worth (888) 548-9716 http://www.eftx.org/
Independent Living Texas State Independent Living Council (SILC) 4319 James Casey St. Suite 100 Austin, Texas  78745 (512) 371-7353 (877) 371-7353 http://www.txsilc.org/
Intellectual & Developmental Disabilities The Arc of Texas, Suite 100 8001 Centre Park Drive Austin, TX, 78754 (512) 454-6694 (800) 252-9729 http://www.thearcoftexas.org/
Learning Disabilities Learning Disabilities Association of Texas P.O. Box 831392 Richardson, TX, 75083-1392 contact@ldatx.org http://www.ldatx.org/
Mental Health – Youth Children with Special Health Care Needs (CSHCN) Services Program Purchased Health Services Unit Department of State Health Services 1100 W. 49th Street Austin, TX, 78756-3179 (800) 252-8023 (Program Hotline) (888) 963-7111 http://www.dshs.state.tx.us/cshcn/
Family Support Network, Texas A&M University 4225 Texas A&M University College Station, TX, 77843-4225 (979) 845-4612 sharp@tamu.edu
Texas PTA 408 W. 11th Street Austin, TX, 78701-2113 (512) 476-6769 (800) 825-5782 http://www.txpta.org/
Parent Training and Information Center (PTI) TEAM Project 4501 Cartwright Road, Suite 605 Missouri City, Texas 77459 (281) 969-5944 prnteam@sbcglobal.net http://www.prntexas.org/texas-ptis/team-project-2/
Parent Training and Information Center (PTI) PATH Project 1090 Longfellow Drive Beaumont, TX, 77706-4819 (409) 898-4684 (800) 866-4726 bramirezpath@gmail.com http://prntexas.org/texas-ptis/path-project/
Parent Training and Information Center (PTI) PEN Project 1001 Main Street, Suite 701 Lubbock, TX, 79401 (806) 762-1434 (877) 762-1435 (in TX) penproject@sbcglobal.net http://www.prntexas.org/texas-ptis/pen-project/
Texas Parent to Parent 3710 Cedar Street, Box 12 Austin, TX, 78705 (512) 458-8600 (866) 896-6001 http://www.txp2p.org/
Protection & Advocacy Disability Rights Texas 2222 West Braker Lane Austin, TX, 78758 (512) 454-4816 (V/TTY) (800) 252-9108 (In TX) (866) 362-2851 (Video Phone) http://www.DisabilityRightsTx.org
Special Format Library Talking Book Program Texas State Library and Archives Commission 1201 Brazos Austin, TX, 78701 (512) 463-5458 (800) 252-9605 http://www.texastalkingbooks.org/
Special Health Care Needs Children with Special Health Care Needs (CSHCN) Services Program Purchased Health Services Unit Department of State Health Services 1100 W. 49th Street, Austin, TX, 78714-9347 (512) 776-7355 (800) 252-8023 http://www.dshs.state.tx.us/cshcn/
Speech, Language and Hearing Texas Speech-Language-Hearing Association 2025 M Street NW, Suite 800 Washington, DC 20036 Phone: (855)330-TSHA (8742) http://www.txsha.org/
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.texas.gov
UCEDD Texas Center for Disability Studies The University of Texas at Austin Commons Learning Center 10100 Burnet Road Austin, TX, 78758 (512) 232-0740 (800) 828-7839 (512) 232-0762 (TTY) http://tcds.edb.utexas.edu/
Center on Disability and Development Texas A&M University Harrington 637 College Station, TX, 77843-4225 (979) 845-4612 http://cdd.tamu.edu/
Vocational Rehabilitation Department of Assistive and Rehabilitative Services 4800 N. Lamar Austin, TX, 78751 (800) 628-5115 http://www.dars.state.tx.us/
Governor’s Committee on People with Disabilities 1100 San Jacinto Austin, Texas 78701 (512) 463-5742 (512) 463-5746 (TTY) 711 (Relay Service) http://www.governor.state.tx.us/disabilities
Financial Assistance and Services Variety, The Children’s Charity of Texas 5555 North Lamar Blvd. Suite E126 Austin, TX 78751 p:512.328.5437 f: 512.420.8225 https://www.varietytexas.org/
Variety’s Peaceable Kingdom Retreat for Children 19051 FM 2484 Killeen, TX 76542 p:254.554.5555 f:254.200.1393 https://www.varietytexas.org/
Connecticut Resources
ADA Center New England ADA Center 180-200 Portland Street, Suite 1 Boston , MA , 02114 (800) 949-4232 V/TTY) (617) 695-0085 (V/TTY) adainfo@newenglandada.org http://www.newenglandada.org
CHIP Program (Health care for low-income uninsured children) HUSKY Plan c/o Department of Social Services 55 Farmington Ave. Hartford, CT 06105–3730 (877) 284-8759 http://www.ct.gov/hh/site/default.asp
DD Council Connecticut Council on Developmental Disabilities 460 Capitol Avenue Hartford , CT , 06106-1308 (800) 653-1134 (in CT) (860) 418-6160 (860) 418-6172 (TTY) Molly.Cole@ct.gov http://www.ct.gov/ctcdd/site/default.asp
Developmental Disabilities Department of Developmental Services (DDS) 460 Capitol Avenue Hartford , CT , 06106 (860) 418-6000 ddsct.co@ct.gov http://www.ct.gov/dds
Early Intervention Connecticut Birth to Three System Department of Developmental Services 460 Capitol Avenue Hartford , CT , 06106-1308 (800) 505-7000 http://www.birth23.org
Epilepsy Epilepsy Foundation of Connecticut, Inc. 386 Main Street Middletown , CT , 06457 (800) 899-3745 (860) 346-1924 efct@sbcglobal.net http://www.epilepsyct.com
Independent Living Connecticut Association of Centers for Independent Living 151 New Park Avenue Hartford , CT , 06106 (860) 656-0430 gwaterhouse@cacil.net http://www.cacil.net
Intellectual & Developmental Disabilities The ARC of Connecticut 200 Research Pkwy Meriden, CT, 06450 (203) 514-3028 https://thearcct.org/
Mental Health Mental Health Connecticut 61 S. Main St., Suite 100 West Hartford, CT 06107 (860) 529-1970 info@mhconn.org http://www.mhconn.org/contact/
Mental Health – Youth Department of Children and Families 505 Hudson Street Hartford , CT , 06106 (800) 842-2288 (in CT) (860) 550-6683 commissioner.dcf@ct.gov https://portal.ct.gov/dcf
Parent Teacher Association (PTA) Connecticut Parent-Teachers Association Wilbur Cross Commons Building, Suite 12 60 Connolly Parkway Hamden , CT , 06514-2519 (203) 281-6617 office@ctpta.org http://www.ctpta.org
Parent Training and Information Center (PTI) Connecticut Parent Advocacy Center (CPAC) 338 Main Street Niantic , CT , 06357 (800) 445-2722 (in CT) (860) 739-3089 cpac@cpacinc.org http://www.cpacinc.org
Parent-to-Parent PATH Parent to Parent of CT P.O. Box 117 Northford , CT , 06472 (800) 399-7284 (in CT) (203) 234-9554 nanfi@aol.com http://www.pathct.org
Preschool, Disabilities State Department of Education 165 Capitol Avenue Hartford , CT , 06106 (860) 713-6543 http://www.sde.ct.gov
Protection & Advocacy Office of Protection & Advocacy for Persons with Disabilities 60 B Weston Street Hartford , CT , 06120-1551 (800) 842-7303 (V/TTY in CT) (860) 297-4300 (860) 297-4380 (TTY) http://www.ct.gov/opapd
Special Education Bureau of Special Education Department of Education 165 Capitol Avenue, Room 360 Hartford , CT , 06106 (860) 713-6912 http://portal.ct.gov
Special Format Library Connecticut State Library Library for the Blind and Physically Handicapped 198 West Street Rocky Hill , CT , 06067 (800) 842-4516 (860) 721-2020 http://ctstatelibrary.org/lbph/
Speech, Language, and Hearing Connecticut Speech-Language-Hearing Association 124 Kennerson Road Eastford , CT , 06242 (860) 666-6900 csha@ctspeechhearing.org http://www.ctspeechhearing.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.ct.gov/
Transition Services Bureau of Special Education Department of Education 165 Capitol Avenue P.O. Box 2219 Hartford , CT , 06145-2219 (860) 713-6923 patricia.anderson@ct.gov http://www.sde.ct.gov/sde
Other Organizations WeCAHR (Western Connecticut Association for Human Rights) 325 Main Street Danbury , CT , 06810 (203) 792-3540 ptomka@wecahr.org http://www.wecahr.org
Easter Seals Connecticut 733 Summer Street – suite 104 Stamford , CT , 06901 (203) 388-2196 dshugrue@eastersealsct.org http://www.ct.easterseals.com
The Special Kids Support Center Connecticut Children’s Medical Center 282 Washington Street Hartford , CT , 06106 (877) 545-1944 (in CT) (860) 545-9000 http://www.ccmckids.org
Disabilities Network of Eastern Connecticut 19 Ohio Avenue – suite 2 Norwich , CT , 06360 (860) 823-1898 http://www.dnec.org
Massachusetts Resources
ADA Center New England ADA Center 180-200 Portland Street, Suite 1 Boston, MA, 02114 http://www.newenglandada.org
Epilepsy Epilepsy Foundation New England Headquarters: 540 Gallivan Blvd., 2nd Floor Boston, MA, 02124 http://www.epilepsynewengland.org/
Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 http://www.ilru.org/projects/cil-net/cil-center-and-association-directory
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Intellectual & Developmental Disabilities The ARC of Massachusetts 217 South Street Waltham, MA, 02453 (781) 891-6270 http://thearcofmass.org
Mediation Bureau of Special Education Appeals Department of Education One Congress Street, 11th Floor Boston, MA, 02114 http://www.doe.mass.edu/bsea
Mental Health Department of Mental Health One Ashburton Place, 11th Floor Boston, MA 02108 http://www.mass.gov/dmh
NAMI Massachusetts The Schrafft Center 529 Main Street, Suite 1M17 Boston, MA 02129 http://Â www.namimass.org
Parent/Professional Advocacy League (PAL) Statewide office: 45 Bromfield Street, 10th Floor Boston, MA, 02108 (Central office in Worcester, MA) http://www.ppal.net
Mental Health – Youth Department of Mental Health 25 Staniford Street Boston, MA, 02114 http://www.mass.gov/dmh
Parent Organizations Community Parent Resource Center Urban PRIDEÂ (Serving the city of Boston) One Westinghouse Plaza Building D, Suite 11 Hyde Park, MA, 02136 (617) 206-4570
Parent Teacher Association (PTA) Massachusetts PTA 405 Waltham Street, # 147 Lexington, MA 02421 http://www.masspta.org
Parent Training and Information Center (PTI) Federation for Children with Special Needs The Schrafft Center 529 Main Street, Suite 1102 Boston, MA, 02129 http://fcsn.org
Family TIES of Massachusetts Massachusetts Department of Public Health Donovan Health Building, 3rd Floor 5 Randolph Street Canton, MA, 02021 http://www.massfamilyties.org
Speech, Language, and Hearing Massachusetts Speech-Language-Hearing Association 411 Waverley Oaks Road, Suite 331B Waltham, MA 02452 http://www.MSHAHearSay.org
Special Education Special Education Planning and Policy Development Office Department of Education 75 Pleasant Street Malden, MA 02148-4906 http://www.doe.mass.edu/sped
Special Format Library Braille and Talking Book Library Perkins School for the Blind 175 N. Beacon Street Watertown, MA, 02472 http://www.perkinslibrary.org
Massachusetts State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.mass.gov
Transition Services Special Education Planning and Policy Development Office Massachusetts Department of Education 75 Pleasant Street Malden, MA 02148-4906 http://www.doe.mass.edu/sped
UCEDD Institute for Community Inclusion/UCEDD University of Massachusetts Boston 100 Morrissey Blvd. Boston, MA, 02125 http://www.communityinclusion.org
Eunice Kennedy Shriver Center University of Massachusetts Medical School 55 Lake Avenue North, S3-301 Worcester, MA 01655 465 Medford Street, Suite 500 Charlestown, MA 02129 http://www.umassmed.edu/shriver
Vocational Rehabilitation Massachusetts Rehabilitation Commission One Ashburton Place 11th Floor Boston, MA 02108 http://www.mass.gov/mrc/
Other Organizations Easter Seals Massachusetts (School transition services, assistive technology and augmentative communication assessments, therapy services, summer Camp, and low interest rate loans for assistive technology.) 484 Main Street Worcester, MA, 01608 http://www.easterseals.com/ma/
New England INDEX Shriver Center UMASS Medical School University of Massachusetts Medical School 55 Lake Avenue North, S3-301 Worcester, MA 01655 http://www.disabilityinfo.org/
D D Council Vermont Developmental Disabilities Council 322 Industrial Lane Berlin, Vermont 05633-0206 http://ddc.vermont.gov
Developmental Disabilities Division of Developmental Services Department of Disabilities, Aging and Independent Living HC 2 South, 280 State Drive Waterbury VT 05671-2030 http://dail.vermont.gov
Early Intervention Department for Children and Families Child Development Division NOB 1 North 280 State Drive Waterbury, VT 05671-1040 http://dcf.vermont.gov/cdd
Independent Living Vermont Center for Independent Living 11 E. State Street Montpelier, VT, 05602-3008 http://www.vcil.org
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 http://www.ncil.org
Mental Health Department of Mental Health Agency of Human Services P.O. Box 70 108 Cherry Street Burlington, VT, 05402-0070 http://www.healthvermont.gov
Mental Health America ( to identify an NMHA chapter in your state ) 500 Montgomery Street, Suite 820 Alexandria, VA, 22314-2971 http://www.mentalhealthamerica.net
NAMI Vermont 600 Blair Park Road, Suite 301 Williston VT 05495 http://www.namivt.org
Vermont Federation of Families for Children’s Mental Health 600 Blair Park Road Williston VT 05495 http://www.vffcmh.org
Mental Health – Youth Department of Mental Health 108 Cherry Street P.O. Box 70 Burlington, VT, 05402-0070 http://www.healthvermont.gov
Parent Organizations Parent Teacher Association (PTA) Vermont Congress of Parents and Teachers 82 Overlake Drive Milton, TB 05468 (802) 644-6652 https://www.facebook.com/VermontStatePTA
Parent Training and Information Center (PTI) Vermont Family Network 600 Blair Park Road, Suite 240, Williston, VT, 05495 Or 135 North Main St Suite #4, Rutland, VT 05701 http://www.vermontfamilynetwork.org
Protection & Advocacy Disability Rights Vermont 141 Main Street, Suite 7, Montpelier, VT, 05602 OR 1 Scale Ave., Suite 23, Howe Center, Bldg. 14, Rutland, VT 05701 http://www.disabilityrightsvt.org
Speech, Language, and Hearing Vermont Speech-Language-Hearing Association http://www.vsha.us
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact to your governor and/or your representatives in the Senate and House: http://www.vermont.gov/portal
UCEDD Center on Disability and Community Inclusion The UCEDD of Vermont/University of Vermont College of Education and Social Services Mann Hall – 3rd Floor 208 Colchester Avenue Burlington, VT, 05405-1757 http://www.uvm.edu/~cdci
Vocational Vocational Rehabilitation Division Department of Aging and Independent Living Agency of Human Services HC 2 South, 280 State Dr. Waterbury, VT 05671-2040 http://www.vocrehab.vermont.gov
Independent Living New Hampshire Statewide Independent Living Council c/o Governor’s Commission on Disability 57 Regional Drive Concord, NH, 03301 http://www.nh.gov/disability/silc
Granite State Independent Living 21 Chenell Drive Concord, NH, 03301 http://www.gsil.org
Special Format Library Talking Book Services, New Hampshire State Library 117 Pleasant Street Concord, NH, 03301 http://www.nh.gov/nhsl/talking_books
Special Health Care Needs New Hampshire Family Voices 129 Pleasant St. Concord, NH, 03301 http://www.nhfv.org
Speech, Language, and Hearing New Hampshire Speech-Language-Hearing Association, Inc. P.O. Box 1538 Concord, NH, 03302-1538 http://www.nhslha.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.nh.gov
D D Council Maine Developmental Disabilities Council 139 State House Station 225 Western Avenue Augusta, ME, 04333 http://www.maineddc.org
Developmental Disabilities, Adults Office of Aging and Disability Services Department of Health and Human Services 41 Anthony Avenue – SHS#11 Augusta, ME 04333-0011 (207) 287-9200 http://www.maine.gov/dhhs/oads/
Epilepsy Epilepsy Foundation Massachusetts, Rhode Island, New Hampshire & Maine P.O. Box 1412 – Saco, ME 04072 Headquarters in Boston: 540 Gallivan Blvd, 2nd Floor – Boston, MA, 02124 http://www.epilepsynewengland.org/
Mental Health – Youth Children’s Behavioral Health Services Department of Health and Human Services 2 Anthony Avenue Augusta, ME, 04333 http://www.maine.gov/dhhs/ocfs/cbhs/
Parent Organizations Parent Teacher Association (PTA) Maine PTA 42 Damon Pasture Lane Lakeville, ME, 04487 http://www.mainepta.org
Parent Training and Information Center (PTI) Maine Parent Federation 10 Caldwell Road P.O. Box 558 Augusta, ME, 04338-2067 http://www.mpf.org
Preschool, Disabilities Child Development Services 23 State House Station Augusta, ME, 04333 http://www.maine.gov/doe/cds/
Protection & Advocacy Disability Rights Center 24 Stone Street, Suite 204 Augusta, ME, 04330 http://www.drcme.org
Relay Services (800) 457-1220 (V) (800) 437-1220 (TTY); 711 (TTY) (800) 229-5746 (Speech to Speech-English) (866) 260-9470 (Speech to Speech-Spanish)
Special Format Library Library Services for the Blind and Physically Handicapped Maine State Library 64 State House Station Augusta, ME, 04333-0064 http://www.maine.gov/msl/outreach
Special Health Care Needs Department of Health and Human Services Division of Population Health 286 Water St. Augusta, ME 04333-0011 (207) 287-5357/(800) 698-3624 toni.g.wall@maine.gov http://www.maine.gov/dhhs/mecdc/population-health/mch/cshn/
Maxim Healthcare Services in Portland, Maine 7227 Lee Deforest Drive Columbia, MD 21046 | 410-910-1500 www.maximhomecare.com
Home Health Care Visiting Nurses in South Maine 15 Industrial Park Road Saco, Maine 04072 207-284-4566 www.homehealth.org
Speech, Language, and Hearing Maine Speech-Language-Hearing Association Strong Elementary School 110 N. Main Street Strong, ME, 04983 https://mslha.memberclicks.net/
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.maine.gov
Transition Services U Maine Maine Autism Institute for Education and Research 5766 Shibles Hall Orono, ME, 04469 http://umaine.edu
UCEDD University Center for Excellence in Developmental Disabilities The University of Maine Center for Community Inclusion and Disability Studies 5717 Corbett Hall Orono, ME, 04469-5717 http://www.ccids.umaine.edu
Vocational Rehabilitation Bureau of Rehabilitation Services Department of Labor 150 State House Station Augusta, ME, 04333-0150 http://www.maine.gov/rehab/
Other Organizations Pine Tree Society Discovering abilities together 149 Front Street Bath, ME, 04530 http://www.pinetreesociety.org
Michigan Resources
ADA Center Great Lakes ADA Center University of Illinois at Chicago Institute on Disability & Human Development (MC 728) 1640 West Roosevelt Road, Room 405 Chicago, IL, 60608 (312) 413-1407 (V/TTY) (800) 949-4232 (V/TTY) http://www.adagreatlakes.org
Assistive Technology Assistive Technology of Michigan 43000 W. Nine Mile Rd., Suite 113 Novi, MI 48375 (248) 348-7161 info@atofmich.com http://www.myisminctest.com/
Michigan Disability Rights Coalition 3498 East Lake Lansing Rd, Ste 100 East Lansing, MI 48823 (517) 333-2477 (800) 760-4600Â http://www.copower.org/assistive-tech
D D Council Michigan Developmental Disabilities Council 201 Townsend St, Ste 120 Lansing, MI 48913 (517) 335-3158 mdch-dd-council@michigan.gov http://www.michigan.gov/ddcouncil
Early Intervention Michigan Department of Education Office of Early Childhood Education and Family Services 13109 Schacey Road, Ste 4 DeWitt, MI 48820 (800) 327-5966 eoreferral@edzone.net http://www.1800earlyon.org
Epilepsy Epilepsy Foundation of Michigan 25200 Telegraph Rd, Ste 110 Southfield, MI 48033 (248) 351-7979 (800) 377-6226 letters@epilepsymichigan.org http://www.epilepsymichigan.org
Independent Living` To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX, 77019 (713) 520-0232 (V) (713) 520-5136 (TTY) ilru@ilru.org http://www.ilru.org/projects/cil-net/cil-center-and-association-directory
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC, 20036 (202) 207-0334 (V) (202) 207-0340 (TTY) ncil@ncil.org http://www.ncil.org
Intellectual & Developmental Disabilities The Arc Michigan 1325 S. Washington Avenue Lansing , MI, 48910 (517) 487-5426 (800) 292-7851 http://www.arcmi.org
Learning Disabilities
Learning Disabilities Association of Michigan 200 Museum Drive, Suite 101 Lansing, MI, 48933-1914 (517) 485-8160 (888) 597-7809 ldamich@sbcglobal.net http://www.ldaofmichigan.org
Mediation
Michigan Special Education Mediation Program 516 S. Creyts Rd, Suite A Lansing, MI 48917 (517)Â 334-0034 (800) 873-7658 info@msemp.org https://msemp.cenmi.org/
Mental Health
Department of Community Health Capitol View Building, 7th Floor 201 Townsend Street Lansing, MI, 48913 (517) 373-3500 http://www.michigan.gov/mdch
Association for Children’s Mental Health 6017 W. St. Joseph Highway, Ste 200 Lansing, MI 48917 (517) 372-4016 (888) 226-4543 (Parent line) http://www.acmh-mi.org
Mental Health Association in Michigan 30233 Southfield Road, Suite 220 Southfield, MI, 48076 (248) 647-1711 mark@mha-mi.org http://www.mha-mi.com
Mental Health – Youth
Division of Mental Health Services to Children and Families Department of Community Health Lewis Cass Building 320 S. Walnut Street Lansing, MI, 48913 (517) 241-5762 Falvay@michigan.gov http://www.michigan.gov/mdch
Parent Organizations
Michigan Alliance for Families Lansing Main Office 1325 S. Washington Avenue Lansing, MI, 48910 (517) 492-5021 (800) 552-4821 info@michiganallianceforfamilies.org http://www.michiganallianceforfamilies.org/
Parent Teacher Association (PTA) Michigan Congress of Parents, Teachers and Students 1390 Eisenhower Place Ann Arbor, MI 48108 (734) 975-9500 director@michiganpta.org http://www.michiganpta.org
Parent Training and Information Center (PTI) Michigan Alliance for Families – Region 1 3111 Grand River Avenue Detroit, MI, 48208 (800) 552-4821 (313) 833-3883 caryn.ivey@michiganallianceforfamilies.org http://www.michiganallianceforfamilies.org
Parent Training and Information Center (PTI) Michigan Alliance for Families – Region 2 1286 Pipestone, Suite A Benton Harbor, MI, 49022 (800) 552-4821 (269) 934-9471 michelle@michiganallianceforfamilies.org http://www.michiganallianceforfamilies.org
Training and Technical Assistance for Family Involvement Michigan Alliance for Family Parent Mentoring, Training and Leadership Opportunities 1325 S. Washington Avenue Lansing , MI, 48910 (517) 487-5426 (800) 292-7851 sandee.k@arcmi.org http://www.arcmi.org
Protection & Advocacy Michigan Protection and Advocacy Service, Inc. 4095 Legacy Parkway, Suite 500 Lansing , MI, 48911-4263 (517) 487-1755 (V/TTY) (800) 288-5923 (V/TTY) http://www.mpas.org
Office of Special Education and Early Intervention Services Michigan Department of Education 608 W. Allegan St. PO Box 30008 Lansing, MI 48933 (517) 373-0923 mde-ose@michigan.gov http://www.michigan.gov/mde
Special Education Funding: Ages Birth Through 26
Office of Special Education and Early Intervention Services Michigan Department of Education P.O. Box 30008 Lansing , MI, 48909 (517) 373-0923 easterlingd@mi.gov
Special Format Library Library of Michigan Service for the Blind and Physically Handicapped P.O. Box 30007 Lansing , MI, 48909 (517) 373-5614 btbl@michigan.gov www.michigan.gov/btbl
Special Health Care Needs
Children’s Special Health Care Services Division Michigan Department of Community Health 320 S. Walnut Lansing , MI, 48913 (517) 241-7186 (800) 359-3722 stifflerk@michigan.gov http://www.michigan.gov/cshcs
Speech, Language, and Hearing Michigan Speech-Language-Hearing Association 790 W. Lake Lansing Road, Suite 500A East Lansing, MI, 48823 (517) 332-5691 http://www.michiganspeechhearing.org
Community Parent Resource Center SPEAKS Education 125 Arlington Plaza, Ste 10 Sault Saint Marie, MI 49783 (906) 635-8984 (855) SPE-AKSE http://www.speakseducation.org
State Web Site Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House: http://www.michigan.gov/
Transition Services High School Redesign for Secondary Transition Services Office of Special Education and Early Intervention Services Michigan Department of Education P.O. Box 30008 Lansing , MI, 48909-7508 (517) 373-0923 KoroldenM@mi.gov http://www.michigan.gov/mde
UCEDD
Wayne State University Developmental Disabilities Institute 4809 Woodward Avenue 268 Leonard N. Simons Building Detroit, MI, 48202 (313) 577-2654 (888) 978-4334 DDI@wayne.edu http://ddi.wayne.edu
Office of Career and Technical Preparation Michigan Department of Education 201 N. Washington Square Lansing , MI, 48913 (517) 335-5858 http://www.michigan.gov/mdcd
Other Organizations
Easter Seals Michigan 2399 E. Walton Blvd Auburn Hills, MI 48326 (248) 457-6400 (800) 757-3257 (in MI) http://www.essmichigan.org
Michigan Department of Labor & Economic Growth Michigan Commission on Disability Concerns and Division on Deaf and Hard of Hearing 201 N. Washington Square, Suite 150 Lansing , MI, 48913 (517) 335-6004 (V/TTY); (877) 499-6232 dodhh@michigan.gov http://www.mcdc-dodhh.org
VSA arts of Michigan 1920 25th Ave – Ste B Detroit, MI 48216 (313) 843-2355 (V/TTY) http://www.vsami.org
Hannah and Friends: (Regional – Indiana, the Michiana area, New York, Rhode Island, and Florida.) Provide quality of life grants for families with individuals with developmental disabilities.Â
