Together We Are Moving Mountains
3 Rare Disease Communities Unite
Family and Science Conference
7/7/2021 – 7/9/2021
Denver, CO and Virtually
The Dup15q Alliance, Project 8p and Ring14 USA communities share very similar life experiences – our children face many of the same challenges, our parents have many of the same questions. We can answer these common questions more effectively together.
- Over 300 families will gather in person and virtually
- Sessions on the latest research, treatment and therapies
- Views from clinicians, providers and parents
- Sibling support, breakout sessions
- Q&A with professional livestream
Support our community by becoming a sponsor for this first time ever, combined conference. Help us in fostering camaraderie and understanding while making connections.
All 3 communities are neurodevelopmental disorders that have large chromosome copy number changes (duplications, deletions and/or rings) that involve multiple genes. To investigate and accelerate therapeutic developments in complex genetic changes, these communities developed the “Commission for Neurodevelopmental Copy Number Variants (CNVs)” funded by the Chan Zuckerberg Initiative. Since this commission is pushing for cross-syndrome therapies, we want the clinicians to see how similar our children are.