The New Year Brings New Changes

February 2, 2023

Thank you, David Gifford, for your past 4 years of Service to the Dup15q Alliance as Board Chair.

“Being the Board Chairperson for the past four years has been an extremely rewarding experience, challenging at times, but always positive.

My connection with the Alliance is our granddaughter, Annabel Porath. The decision to apply for the board membership was driven by a desire to do more for her, and the community. Involvement with the Board has given me a better understanding of our syndrome and an appreciation for the tremendous work our Alliance team does for our community.

Although my time with the Board has come to an end, I will continue to be involved in whatever way I can. In the end, I got much more from being involved over these past years then I gave, and that is about as good as it gets.” – David Gifford

Looking towards the future, we are excited to Announce our First Co-Chairs of the Dup15q Alliance Board, Lisa Feehery and Anne Karch.

Related Posts

Dup15q Clinical Trial Locations Open

Dup15q Clinical Trial Locations Open

NEW US Dup15q Clinical Trial Location Open: Children's Hospital Los Angeles.  Interested in enrolling at CHLA? Contact  nagonzalez@chla.usc.edu Also Enrolling at  Rush University Medical Center. Interested in Enrolling? Contact  Margaret_R_Porwit@rush.edu For General...

LADDER Family-Friendly Reports

LADDER Family-Friendly Reports

LADDER has some new family-friendly resources that you can view on the LADDER website! In May, LADDER launched a social media campaign with the goal to increase the number of adults enrolled in LADDER and highlight experiences of caregivers, researchers, and...

6th Annual Big Give Event

6th Annual Big Give Event

Each May our community comes together, as we go LIVE for our annual BIG GIVE event. The BIG GIVE event brings a platform of dynamic speakers who have a passion for our loved ones with dup15q syndrome.  Our speakers GIVE to our Community on an ongoing basis and are our...