DEE-P Webinar: IEPs
The Dup15q Alliance is proud to be a partner of the DEE-P initiative (the Developmental and Epileptic Encephalopathies-Project), which is dedicated to serving the distinct needs of families with children most severely affected by DEEs.
Developmental and Epileptic Encephalopathies (DEEs) are defined as a group of rare neurodevelopmental disorders, characterized by early-onset seizures that are often intractable with a developmental delay.
DEE-P will focus on improving the accessibility of the best available resources, from all sources, to these families. The website will provide a unique space dedicated exclusively to providing—in one place—links to practical information of particular interest to this population. There will be no cost to participating organizations or families.
This webinar will be led by Monika Jones, JD/CEO of The Brain Recovery Project, and is aimed at helping families of children severely affected by DEEs through the Individualized Education Plan (or IEP) process. Please register and read the full description for resources you can use before the webinar itself.