So Your State Just Enacted an RDAC – Now What?
Upcoming Webinar from NORD
June 10, 2021
1:00pm – 2:00pm ET
Rare Disease Advisory Councils (RDAC) help to address the needs of rare disease patients and families by educating and advising state government officials on ways to address the unique challenges faced by the community. Do you want to help your state implement a strong and effective RDAC?
NORD is thrilled to launch our latest RDAC toolkit entitled, “Implementing a Rare Disease Advisory Council in Your State.” This toolkit will help states with newly signed RDAC legislation establish a high-functioning RDAC by sharing best practices from existing councils as part of this step-by-step guide to implementing an RDAC.
This webinar is free and intended for new RDAC leaders and members, patients, caregivers, providers, lawmakers, advocates and the general public.