Who We Are

Dup15q Alliance is a nonprofit 501(c)(3) corporation. The community that is now known as the Dup15q Alliance was originally founded under the name of IsoDicentric 15 Exchange, Advocacy and Support (IDEAS) in 1994 by Donna Bennett, mother to Joshua (a young man with idic15) and Brenda Finucane, MS, CGC the Director of Genetic Services at Elwyn Inc.  Starting as a list of 13 families raising children with chromosome 15q duplications, the support group grew.

In 2004, the IDEAS community was officially incorporated into a nonprofit organization. To best reflect the variations of the disorder known as chromosome 15q11.2 – 13.1 duplication syndrome, the organization’s name was changed in 2011 to Dup15q Alliance. Today, there are over 2,000 families from around the world affiliated with Dup15q Alliance.

Dup15q Alliance Tax Identification Number is 20-0751232

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This site is intended to provide basic educational information about chromosome 15q11.2-13.1 duplication syndrome. It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action with regard to medical treatment or otherwise based on the information on this web site or bulletin board without first consulting a physician. Dup15q Alliance does not promote or recommend any treatment, therapy, institution or health care plan.

The information contained in this site is intended for your general education and information only and not for use in pursuing any treatment or course of action. Ultimately, the course of action in treating a given patient must be individualized after a thorough discussion with the patient’s physician(s).