Research Updates

Sci Spotlight- March 2026

Updates from the Director of Scientific & Clinical Initiatives March 2026 The last week of February is Rare Disease Week, culminating in Rare Disease Day on February 28th. This year, the FDA released a framework for consideration on Accelerating Development for...

Sci Spotlight- February 2026

Updates from the Director of Scientific & Clinical Initiatives February 2026 The Dup15q Alliance’s Believe in a Cure Gala will be making its final appearance in Philadelphia on March 7th! At the Gala, we will be raising funds to support the scientific and research...

Sci Spotlight- January 2026

Updates from the Director of Scientific & Clinical Initiatives January 2026 I can hardly believe that it was one year ago when I wrote my very first SCI Spotlight for the Dup15q Alliance. I wanted to take a moment to thank all the families who have been supportive...

Sci Spotlight- December 2025

Updates from the Director of Scientific & Clinical Initiatives December 2025 Happy New Year! As we move into 2026, my hope is that our community will become more informed of the important science happening in the world of Dup15q syndrome and beyond. Sadly, I...