Dup15q Alliance is proud to be a participant of the The Interagency Collaborative to Advance Research in Epilepsy...
Partnerships
The Dup15q Alliance recognizes the importance of working together to achieve common goals through partnerships with other groups and initiatives that are focused on improving the lives of those with rare disorders.
THRIVE Initiative
Dup15q Alliance is proud to be a part of the THRIVE initiative. THRIVE is a collaborative initiative to engage,...
Global Genes Rare Foundation Alliance
Dup15q Alliance is proud to be a member of the The Global Genes RARE Foundation Alliance. We are a global community...
Canadian Organization for Rare Disorders – CORD
Dup15q Alliance is proud to be a member of CORD, Canada's national network for organizations representing all those...
National Organization for Rare Disorders – NORD
Dup15q Alliance is proud to be a patient organization member with NORD. NORD Mission Statement NORD, a 501(c)(3)...
Rare As One Project
The Rare As One grant will support Project 8p’s collaboration with the Dup15q Alliance, another patient-led advocacy...
Commission on Novel Technology in CNVs
Dup15q Alliance is proud to be a founding organization for the Commission on Novel Technology in Neurodevelopmental...
The Haystack Project
Dup15q Alliance is proud to be a member of The Haystack Project, committed to the Rare and Ultra Rare Disease...
Citizens United for Research in Epilepsy – CURE
Dup15q Alliance is proud to partner with Citizens United for Research in Epilepsy on several initiatives in the Rare...
Epilepsy Foundation
Dup15q Alliance is proud to partner with the Epilepsy Foundation on several rare disease initiatives in order to work...
Child Neurology Foundation – CNF
Dup15q Alliance is proud to partner on several projects with the Child Neurology Foundation moving the entire...
Rare Epilepsy Network- REN
The Rare Epilepsy Network (REN) is a partnership between rare epilepsy organizations, the Epilepsy Foundation,...