Dup15q Alliance is proud to be a participant of the The Interagency Collaborative to Advance Research in Epilepsy...

The Dup15q Alliance recognizes the importance of working together to achieve common goals through partnerships with other groups and initiatives that are focused on improving the lives of those with rare disorders.
Dup15q Alliance is proud to be a participant of the The Interagency Collaborative to Advance Research in Epilepsy...
Dup15q Alliance is proud to be a part of the THRIVE initiative. THRIVE is a collaborative initiative to engage,...
Dup15q Alliance is proud to be a member of the The Global Genes RARE Foundation Alliance. We are a global community...
Dup15q Alliance is proud to be a member of CORD, Canada's national network for organizations representing all those...
Dup15q Alliance is proud to be a patient organization member with NORD. NORD Mission Statement NORD, a 501(c)(3)...
The Rare As One grant will support Project 8p’s collaboration with the Dup15q Alliance, another patient-led advocacy...
Dup15q Alliance is proud to be a founding organization for the Commission on Novel Technology in Neurodevelopmental...
Dup15q Alliance is proud to be a member of The Haystack Project, committed to the Rare and Ultra Rare Disease...
Dup15q Alliance is proud to partner with Citizens United for Research in Epilepsy on several initiatives in the Rare...
Dup15q Alliance is proud to partner with the Epilepsy Foundation on several rare disease initiatives in order to work...
Dup15q Alliance is proud to partner on several projects with the Child Neurology Foundation moving the entire...
The Rare Epilepsy Network (REN) is a partnership between rare epilepsy organizations, the Epilepsy Foundation,...
ADA Center
Southwest ADA Center
2323 S. Shepherd, #1000
Houston, TX, 77019
http://www.southwestada.org
Assistive Technology
Louisiana Assistive Technology Access Network
P.O. Box 14115
Baton Rouge, LA, 70898
http://www.latan.org
Autism
Autism Society of Louisiana
P.O. Box 80162
Baton Rouge, LA, 70898
http://www.lastateautism.org
CHIP
(health care for low-income uninsured children)
Louisiana Children’s Health Insurance Program
LaCHIP Processing Office
628 N. 4th Street
P. O. Bo 629
Baton Rouge, LA 70821-0629
http://new.dhh.louisiana.gov/index.cfm/page/222
D D Council
Louisiana Developmental Disabilities Council
P.O. Box 3455
Baton Rouge, LA, 70821-3455
swinchel@dhh.la.gov
http://www.laddc.org
Developmental Disabilities
Office for Citizens with Developmental Disabilities
P.O. Box 3117, Bin 21
Baton Rouge, LA, Baton Rouge
http://www.dhh.louisiana.gov
Early Intervention
Louisiana Part C Early Intervention
Office for Citizens with Developmental Disabilities
Louisiana Department of Health & Hospitals
P.O. Box 3117, Bin 21, 682 N. 4th Street
Baton Rouge, LA, 70802
http://www.earlysteps.dhh.louisiana.gov
Epilepsy
Epilepsy Foundation of Louisiana
3701 Canal Street, Suite H
New Orleans, LA, 70119
http://www.epilepsylouisiana.org
Independent Living
To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact:
Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX, 77019
http://www.ilru.org/projects/cil-net/cil-center-and-association-directory
To find out the contact information for centers for independent living (CILs) in your state, contact:
National Council on Independent Living
2013 H St. NW – 6th Floor
Washington, DC, 20006
http://www.ncil.org
Intellectual & Developmental Disabilities
The Arc of Louisiana
8336 Kelwood Drive
Baton Rouge, LA, 70806
http://www.thearcla.org
Learning Disabilities
Division of Educational Improvement and Assistance
Louisiana Department of Education
P.O. Box 94064
Baton Rouge, LA, 70804-9064
http://www.louisianabelieves.com/academics/students-with-disabilities
Mediation
Dispute Resolution
Louisiana Department of Education
1201 North Third Street
Baton Rouge, LA 70802-5243
http://www.louisianabelieves.com/academics/students-with-disabilities/dispute-resolution
Mental Health
Office of Behavioral Health
Louisiana Department of Health and Hospitals
628 N. 4th Street, 4th Floor
P.O. Box 4049
Baton Rouge, LA, 70821-4049
http://new.dhh.louisiana.gov/index.cfm/subhome/10
Mental Health America of Louisiana
660 N. Foster Drive, Suite C-201
Baton Rouge, LA, 70806
http://www.mentalhealthamerica.net/mental-health-america-louisiana
NAMI Louisiana, National Alliance on Mental Illness
P.O. Box 40517
Baton Rouge, LA, 70835
(866) 851-6264
http://www.namilouisiana.org
Louisiana Federation of Families for Children’s Mental Health
5627 Superior Drive, Suite #2
Baton Rouge, LA, 70816-6085
(225) 293-3508
Parent Organizations
Community Parent Resource Center
(Serving greater New Orleans area)
Pyramid Community Parent Resource Center
3132 Napoleon Avenue
New Orleans, LA, 70125
http://www.pyramidparentcenter.org
Families Helping Families of Louisiana
(a statewide network of ten regional family resource centers)
100 Benman Rd. Lafayette, LA 70506
Lafayette, LA 70506
http://www.fhfla.org
Parent Teacher Association (PTA)
Louisiana Parent-Teacher Association
9151 Interline Avenue, suite 1A
Baton Rouge, LA, 70809
http://www.louisianapta.org/
Preschool, Disabilities
Division of Standards, Assessments and Accountability
Louisiana Department of Education
1201 North Third Street
P.O. Box 94064
Baton Rouge, LA 70802-5243
http://www.louisianabelieves.com/early-childhood/early-childhood-programs
Protection & Advocacy
Advocacy Center
8325 Oak Street
New Orleans, LA, 70118
http://www.advocacyla.org
Relay Services
(800) 947-5277 (V)
(800) 846-5277 (TTY); 711 (TTY)
(888) 550-5277 (ASCII)
(888) 272-5530 (Speech to Speech)
(800) 737-1813 (Spanish)
Speech, Language, and Hearing
Louisiana Speech-Language-Hearing Association
8550 United Plaza Boulevard, Suite 1001
Baton Rouge, LA, 70809
http://www.lsha.org
Special Education
Louisiana Department of Education
1201 North Third Street
P.O. Box 94064
Baton Rouge, LA 70802-5243
http://www.louisianabelieves.com/academics/students-with-disabilities
Special Format Library
State Library of Louisiana
Talking Books
701 N. Fourth Street
Baton Rouge, LA, 70802
http://www.state.lib.la.us/special-services/talking-books
Special Health Care Needs
Louisiana Department of Health and Hospitals
Office of Public Health
Children’s Special Health Services
1450 L & A Road
Metairie, LA, 70802
http://new.dhh.louisiana.gov/index.cfm/page/740
Families Helping Families
286 Highway 3185
Thibodaux, LA, 70301
(985) 447-4461
(800) 331-5570
Bayoulandfhf@blfhf.org
http://blfhf.org
State Web Site
Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House:
http://www.louisiana.gov
UCEDD
Louisiana UCEDDERS
LSUHSC- Human Development Center
School of Allied Health Professions
1900 Gravier Street 10th Floor Room 1036
New Orleans, LA, 70112
http://www.hdc.lsuhsc.edu
Vocational Education and Rehabilitation
Louisiana Workforce Commission
Vocational Rehabilitation Program
1001 N 23rd St
Baton Rouge, LA, 70802
(225) 342-3111
http://www.laworks.net/workforcedev/