Programs and Resources
Dup15q Alliance has been providing family support and advocacy to families affected by dup15q syndrome for over 30 years. We envision a world where families, clinicians, and advocates enable dup15q individuals to thrive. We are proud to continue to offer programs that help uplift, support, and engage our community by providing the basic principles that the Alliance was founded upon through a variety of resources and support options, including:
- Information about dup15q syndrome including symptoms, diagnosis, and treatment.
- Educational Resources including brochures, printables, family dup15q family conferences, and webinars
- Dup15q Clinics through the LADDER Learning Network
- Community Connection Programs for families and siblings affected by dup15q syndrome.
- Support and resources to navigate the various transitions of the dup15q journey.
Support our family programming.
Our Programs
Newly Diagnosed Support
New family support calls
Resources and support
New Family Parent Ambassadors
Community Connections
Parent-to-Parent
Community Connections Chat
Regional Gatherings
Families in Crises Program
The Dup15q Counseling
Wrapped in Love Support
Parent Ambassador Peer Support
Navigating Teen Life
Puberty
Adaptive Items
IEP Transition into High School
Transitioning to Adult Life
Transition Educational Course
Transition Tools and Resources
Coming soon – Transition to Adulthood Road Map
Adult Life Connections
Adult Life Connections Calls
Adult Life Resources
Adult Life
Sibling Matters Program
Sibshops: virtual connections for siblings
VIP Sibling Kits
Sibling Spotlight
Junior Believe Ambassador
Support for youth who want to raise awareness and educate others about dup15q syndrome.
Bereavement Connections Program
Bereavement Connections Call
In Loving Memory Memorial Wall
Navigating School/IEP
The Dup15q Alliance IEP Handbook
IEP Help Ticket
School Tools and Resources
Navigating Financial Planning
SSI and SSDI and Special Needs Trusts
ABLE Account
Autism Speaks – Financial Planning
Super Duper Birthday Club
Sending a little sunshine
to individuals with dup15q
on their birthday.
Clinic Travel Support Fund
Support for families who have a need for their child seen at a Dup15q Clinic.
Resources for International Families
Resources to help families begin their search for information relevant to their particular diagnosis.
Support for Other 15q Disorder
Resources to help families begin their search for information relevant to their particular diagnosis.
On Demand
Get our past family conference sessions On Demand and organized by category.
Insurance Coverage tips
Insurance Coverage Tips for Adaptive Items
Resources by State
Search State Government Agencies Resources
Resource Navigator
Resources
Non-profit assistance
Community Support
Funding Resources
Extended Support
Extended Support Webinars
Newsletters and information
Mirror Newsletter Archive
Check out our newsletter archive of the Mirror. This was a monthly newsletter sent to families.