COVID-19 Resources

March 19, 2020
The Dup15q Alliance is doing our part to prevent the spread of COVID-19 by cancelling in person events and hosting online learning opportunities.  We are also keeping up-to-date on information coming out of the CDC, FDA and WHO to help to ensure our community’s safety.

In times like these that the Dup15q Alliance is committed to be on the front lines of support for our families. 

COVID19 Financial assistance

COVID-19 – 211 Network

If you need assistance finding food, paying house bills or other essential services, use the search bar at the link below to find your local 211 or dial 211 to speak to someone who can help.

211 Network

Financial Assistance Resources

TailorMed are sharing the most up-to-date information through their Financial Navigation Service.  This is a live list that will be updating on an ongoing basis to share any opportunities that arise.

Learn More

COVID-19 Resource Relief


The purpose of the COVID-19 Resource Relief (CRR) program is to provide financial assistance to individuals living with any disability, diagnosis, or chronic illness to help alleviate the burden of the coronavirus-related quarantines and social distancing practices.

This virus has created a variety of brand new struggles in daily life, many of which are tied to the financial impact of widespread quarantine. One community being hit harder by these new challenges is the disabled community. For many who live with a disability, quarantine is not a choice, but a necessity for survival.

This assistance is provided in the form of one $100 Visa Gift Card to be used for food, hygiene products, and other living expenses associated with self-isolation and quarantine.

Apply Here

NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by Covid-19

t this time of crisis and with the health, safety and well-being of patients and caregivers as its top priorities, the National Organization for Rare Disorders (NORD®) today launched its COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare community affected by the COVID-19 pandemic. The program provides financial relief that may be utilized to support critical, non-medical needs.

Through the new program, NORD will provide financial assistance to eligible patients, covering up to $1,000 annually. It provides funds for essential expenses including, but not limited to unexpected utility expenses; cellular or internet service; emergency repairs to car, home or major appliances; and rent or mortgage payment assistance. Interested rare disease patients and families can reach out to NORD to find out if they meet eligibility requirements.

For more information on the NORD COVID-19 Critical Relief Program and to apply, please contact NORD by telephone at 203.242.0497, via email at, or visit To show your support, please consider making a donation to the program so that even more people can be helped. Finally, to stay informed, the NORD COVID-19 resource center presents information and links relevant to the rare community during this pandemic.

Read the Press Release Online


I Stay Home for Rare

The purpose of the I Stay Home For Rare Fund is to provide quick access to emergency monies needed by applicant families and individuals living with rare disease during the COVID-19 pandemic.Aid currently available in amounts ranging from $500-$2,500.

Financial assistance for

  • Food, rent, utilities, transportation, and other essential recurring household bills.
  • Medical care, medication, treatments, medical equipment and other recurring bills related to maintaining health.
  • Childcare services related to maintaining work status and/or physical and mental health for parents and caregivers.
  • Necessary items specifically related to pandemic protection such as masks, soap, cleaners, hand sanitizer, etc.